Hydrocephalus Assoc.

Our HundredX Kick-off Party is THIS Wednesday at 7 PM ET 🥳 Join us for giveaways, early access to surveys, music, community & a fun night with your favorite HA staff 🎉 Best part? We’ll wrap in under an hour — so don’t miss it! 🤑 hydroassoc.org/event/hundredx…

Only 1 week left to save with Early Access Pricing for HA CONNECT26! Register today to lock in discounted rates before prices increase: hydrocephalusconference.org/register/?utm_… We’re thankful for Indiana University & their support of our National Conference on hydrocephalus!

You asked for more local hydrocephalus events, and we’re bringing them to you! If you’re within driving distance, join us for one of our FREE Education Days: 📍 Chicago: May 30 📍 Durham: June 6 📍 Cincinnati: June 27 Registration is open: hydroassoc.org/local-educatio…

Meet #HACONNECT26 Speaker Sarah Curci, PhD 👋 You won’t want to miss her session on handling anxiety & depression. May is Mental Health Awareness Month & HACONNECT is bringing multiple sessions focused on mental well-being. Register today! bit.ly/4n21klg

What happens before, during, & after shunt revision surgery? Our latest article explains why revisions are needed, what recovery looks like, & more to help patients, caregivers, & supporters feel informed & prepared. Read more: hydroassoc.org/shunt-revision…

This isn’t your typical HundredX webinar. We’re turning our annual kick-off into a PARTY 🥳 Join us on May 27 at 7 PM ET to learn how HundredX works, start completing surveys live, win prizes & help raise money for HA (and your WALK team!) 🤑 bit.ly/4wrMWXA

Thank you to Medtronic for supporting the National Conference on hydrocephalus 🎉 Don’t miss your chance to explore the interactive exhibit hall & attend 70+ sessions led by world-renowned experts at #HACONNECT26 hydrocephalusconference.org/register/?utm_…

Whether it is a planned surgery or an unexpected hospital stay, having the right things with you can make a tough situation feel a little more manageable. What do you always pack when heading to the hospital❓ Share your go-to items in the comments below ⬇️

This Brain Tumor Awareness Month, we’re sharing Kyleigh’s story! Diagnosed as an infant w/ a tectal glioma & hydrocephalus. When her shunt began to fail, everything changed—but one word carried her: continue. Read her full story here: bit.ly/3QnniTl

Thank you to Riley Children’s Health for your continued commitment to the hydrocephalus community! Register today to access 70+ educational and interactive sessions designed for all ages this July: hydrocephalusconference.org/register/?utm_…

Using AI to learn about hydrocephalus? It can be a powerful tool—but it’s not perfect. Knowing how to ask the right questions, verify sources & use AI alongside trusted medical guidance is key. Read more about how to use AI safely & effectively: hydroassoc.org/using-ai-to-re…

@shuntedmdphd @KennedyKrieger @HopkinsMedicine Correct!

@HydroAssoc @KennedyKrieger @HopkinsMedicine Is this only for noncommunicating hydrocephalus?

Researchers at @KennedyKrieger & @HopkinsMedicine are inviting adults w/ obstructive hydrocephalus to join a remote study. Your experience can help shape more accessible, effective care for the future! discover.kennedykrieger.org/jfe/form/SV_eg…

Happy Mother’s Day! 💙 Post a photo of your mom or the one who made you a mom ⬇️

The wait is OVER! The 2026 WALK To End Hydrocephalus T-shirt is here! 🥳 All registered participants who raise $100 will receive this t-shirt. Who's excited to rock the new t-shirt this fall? Click here to view our WALK sites and register today ➡️ hydroassoc.org/find-a-walk-ne…

Our Kids Camp is open to children ages 3–11 & runs during #HACONNECT26 so parents can participate knowing their kids are in a safe, fun environment. It’s more than childcare, it’s an unforgettable experience for your kids too! bit.ly/480VI4s

With HydroAssist, your hydrocephalus treatment details go wherever you go. Whether you're across town or across the country, your information is right there when you need it! Find HydroAssist in your app store and travel with confidence. hydroassoc.org/hydroassist/

Shunts are the most common treatment for hydrocephalus & work by diverting excess cerebrospinal fluid to another part of the body. Different types serve different needs—understanding them can help you make more informed care decisions. hydroassoc.org/hydrocephalus-…

Thank you to @CereVasc for your continued commitment to the hydrocephalus community & your work developing minimally invasive treatments! Register for #HACONNECT26 by May 30th to take advantage of early pricing: hydrocephalusconference.org/register/?utm_…

If you’re looking for a way to get active and support our mission, consider running an endurance event for the Hydrocephalus Association! There are only a few days left to register for Grandma’s Marathon, so be sure to sign up today before spots fill up: hydroassoc.org/endurance-fund…