Hydrocephalus Assoc.

Are you a parent of a child (0–18) living w/ hydrocephalus & looking for support? RAISE is a space for parents & caregivers to connect, share experiences & navigate the emotional and practical challenges of raising a child w/ hydrocephalus. Sign up here: hydroassoc.org/raise-resilien…

Did you know we host a Chronic Pain Group that meets virtually? Join us this weekend, Saturday the 21st at 10am ET. This expert led group will help you become familiar w/ the resources available to effectively manage your chronic pain symptoms. us02web.zoom.us/meeting/regist…

Meet Kyle 👋 Diagnosed with hydrocephalus at 6, he’s had 64 surgeries. During med school he endured 20 more & still earned his MD. Don’t miss the chance to hear Kyle speak at #HACONNECT26 this July in Indianapolis! Read more of his story here: hydroassoc.org/people-view/ky…

Meet Allison 👋 Diagnosed w/ hydrocephalus at 11 months old, Allison faced a difficult first few years. By the age of 3, she had already undergone 3 brain surgeries. This year, her mom joined us in D.C. to advocate for stronger funding & research! hydroassoc.org/people-view/al…

#HACONNECT26 has sessions for everyone! Check out these two great speakers: William E. Whitehead, MD, MPH from Texas Children's Hospital and Mark Luciano, MD from The Johns Hopkins Hospital. Register today and apply for financial aid: bit.ly/40hI3lc

Whether you’re living w/ hydrocephalus or caring for someone who is, having your medical info accessible can make a big difference! HydroAssist helps you keep treatment history & symptoms organized & ready when you need them, wherever life takes you. Download HydroAssist Today 📲

New HAPPIER Study published in the journal Risk Management & Healthcare Policy, sheds light on the real-world challenges many people w/ hydrocephalus face when trying to access medical care in the US. Learn more about the study here 👉 hydroassoc.org/happier-access…

Join us next week on March 18th for our Precocious Puberty and Hydrocephalus webinar! Dr. Rebecca Persky, a Pediatric Endocrinology Attending, will deep dive into precocious puberty & answer your questions live! hydroassoc.org/event/webinar-…

What’s your favorite part of HA CONNECT? For many kids, it’s Kids Camp! Kids Camp is offered to all children with or without hydrocephalus between the ages of 3 and 11 years old. Learn more here: hydrocephalusconference.org/kids-camp/?utm… #HACONNECT26

Curious about hydrocephalus-related cognitive issues? You won't want to miss these 3 experts in July at #HACONNECT26 🥳 Learn more about the over 70 educational and interactive sessions you can expect to see at HACONNECT! hydrocephalusconference.org/register/

Our new video, A Glimpse Into Shunt Evolution, walks through the first shunts created, the major milestones that followed & the innovations shaping the future. This is a powerful look at the progress that continues to impact so many w/ hydrocephalus. youtu.be/_N46-C1CimI?si…

Meet Sophia 👋Born w/ hydrocephalus she has faced health challenges since infancy, including cerebral palsy, seizures, PCOS, endometriosis & SIBO. Today, she is a certified personal trainer, gym owner & author who uses her journey to empower others! hydroassoc.org/people-view/so…

The Hydrocephalus Action Network Meet-Up is next week! This meet-up brings together advocates from across the US to connect, share experiences & receive timely updates on legislative actions impacting the hydrocephalus community. Register today: us02web.zoom.us/meeting/regist…

We’re excited to welcome the chair of HA's Medical Advisory Board, Mark HAMILTON, MDCM, FRCSC, FAANS from University of Calgary / Foothills Hospital as a HA CONNECT 26 speaker! 🎉 Have questions about #HACONNECT26 ? Check out our FAQ page: hydrocephalusconference.org/faqs/?utm_sour…

📣Scholarship Opportunity 📣Are you 17 or older, a U.S. resident, living with hydrocephalus, and preparing to start school this year or already enrolled in an accredited program? You could be eligible for our Hydrocephalus Scholarship. Apply today! hydroassoc.org/Scholarship/

Thank you to the Rudi Schulte Research Institute (RSRI) for supporting our National Conference on Hydrocephalus! Register for the conference today: hydrocephalusconference.org/registration/ #HACONNECT26

Hydrocephalus affects people worldwide, but some forms like x-linked hydrocephalus are considered rare & genetic. On #RareDiseaseDay, we stand with the rare disease community 💙 Learn more about x-linked hydrocephalus: hydroassoc.org/finding-our-wa…

For years, Carly she felt alone in her journey with hydrocephalus. Everything changed when she attended HA CONNECT. HA CONNECT is more than a conference. It’s where community becomes real! Join us in Indianapolis this summer & find your people 💙 hydroassoc.org/ha-connect-whe…

Join us in Columbus, Oh for a FREE Education Day on April 11th at 9am ET! Learn in a relaxed, conversational format from neurosurgeons about hydrocephalus management & from researchers who will share what’s new in hydrocephalus research. Register today: hydroassoc.org/event/free-hyd…

We have dates open in March, April and May for our RAISE program! Learn more about this program, the facilitators and register all on our website: hydroassoc.org/raise-resilien…