HyperIgM

353 posts

HyperIgM

HyperIgM

@HyperIgM

Katılım Haziran 2015
88 Takip Edilen170 Takipçiler
HyperIgM
HyperIgM@HyperIgM·
Did you know April is Primary Immunodeficiency Awareness Month? To help spread the word, we’re giving away two $25 Starbucks gift cards along with a Hyper IgM Foundation mug. #hyperigm #PIAwareness
HyperIgM tweet mediaHyperIgM tweet media
English
0
0
0
29
HyperIgM retweetledi
Immune Deficiency Foundation
Immune Deficiency Foundation@immunedeficienC·
Don't miss three days of connection, learning, and networking with the primary immunodeficiency (PI) community. Featuring the most up-to-date information from world-renowned healthcare professionals, this will be an experience you won't want to miss! bit.ly/3TU743j
Immune Deficiency Foundation tweet media
English
0
7
18
11.6K
HyperIgM
HyperIgM@HyperIgM·
@AK_The_Great @rarediseaseuk Hi Alan, are we already in touch with you? We have a support group for Hyper IgM patients, not as many Type 2, but some.
English
0
0
0
0
Alan Kendall
Alan Kendall@AK_The_Great·
@rarediseaseuk Im one of the #1in17 as I have Hyper IgM syndrome type 2. Today is also coincidentally my birthday, sending love and support to all of those with a #RareCondition and those supporting us.
English
1
0
2
0
HyperIgM retweetledi
ESID
ESID@ESIDsociety·
ESID is pleased to announce an excellent grant funding opportunity. Researchers with interest in advancing a cure for Hyper IgM Syndrome - the Hyper IgM Foundation is calling you to apply! hyperigm.org/hyper-igm-foun…
ESID tweet media
English
0
6
9
0
HyperIgM
HyperIgM@HyperIgM·
Heartwarming story of 11 year old #HyperIgM patient, Adam, from Australia. We are so glad to see how well Adam is doing after his bone marrow transplant. Looking forward to seeing him grow and thrive and maybe one day command a battalion! makeawish.org.au/wishes/wish-st…
English
0
0
1
0
HyperIgM
HyperIgM@HyperIgM·
Akiva Zablocki, President of the Hyper IgM Foundation, shares his family's secrets to avoiding germs in hopes of curtailing the spread of the coronavirus. #coronavirus #hyperigm #RareDiseaseDay
English
0
0
2
0
HyperIgM
HyperIgM@HyperIgM·
We wanted to share with you some touching words from a partner of one of our rare adult patients. This year the Foundation allocated grant funds to support Dr. Caroline Kuo’s Gene Editing research at UCLA. We were… instagram.com/p/B5yu4H3gF2j/…
English
0
0
0
0
HyperIgM
HyperIgM@HyperIgM·
Congratulations to Dr. Caroline Kuo from UCLA, and BIG news for Hyper IgM!! Dr. Kuo just received a $4.9 million award from the California Institute for Regenerative Medicine (CIRM) in support of her development of… instagram.com/p/B4U0VlyAOtq/…
English
0
1
0
0
HyperIgM
HyperIgM@HyperIgM·
The Hyper IgM Foundation is proud to announce that it joins the Primary Immune Deficiency Treatment Consortium (PIDTC) as one of its Patient Advocacy Group (PAG) partners. The PIDTC consists of 42 centers in North… instagram.com/p/B4AmDVAgryn/…
English
0
0
1
0
HyperIgM
HyperIgM@HyperIgM·
Big thank you to Lisa Boyer and her wonderful team at Wells Fargo!! Through their efforts during the annual Wells Fargo Community Support Campaign, they raised $500 for the Hyper IgM Foundation. We love the size of… instagram.com/p/B2zdgX_gbyS/…
English
0
0
1
0