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Curious to know how our charity was formed and what we do ? Take a look at our video and contact us for more information on how we offer support and fund IBC research 🧡youtube.com/watch?v=A5I-7S…
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The Inflammatory Breast Cancer Network UK
1K posts
The Inflammatory Breast Cancer Network UK
@IBCNetworkUK
Raise awareness of Inflammatory Breast Cancer (IBC) Promote and fund IBC research in the UK Support IBC patients and their families @ibcnetworkuk.bsky.social
England, United Kingdom Katılım Ağustos 2016
427 Takip Edilen382 Takipçiler
So grateful to be celebrating my 50th birthday after being diagnosed with inflammatory breast cancer at the end of 2022.
Instead of gifts, I’d ❤️ for you to donate to @IBCNetworkUK to fund research & raise awareness about this rare & aggressive cancer.
justgiving.com/page/nicola-mc…
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@DrScottArthurMP Please also include The Inflammatory Breast Cancer Network UK in this list. 2% of breast cancers diagnosed in the UK are IBC but we account for 10% of all breast cancer deaths. We are a volunteer-led and the only charity funding IBC research in the UK #HopeAlways
Dr Scott Arthur MP (Edinburgh South West) 🌍🌈🌹@DrScottArthurMP
Confirmed, the following charities are supporting my Rare Cancers Bill. Angel Mums Braid Tumour Charity Brain Tumour Research Pancreatic Cancer UK Less Survivable Cancers Taskforce Cancer52 Grace Kelly Childhood Cancer Trust Target Ovarian Cancer brainstrust AMMF – The Cholangiocarcinoma Charity The Urology Foundation Action Kidney Cancer Sarcoma UK Maggie’s Blood Cancer UK Shine Cancer Support Solving Kids Cancer British Liver Trust Radiotherapy UK Leukeamia UK, CCLG – The Children's Cancer and Leukaemia Group (CCLG) CLL Support Neuroblastoma UK Neuroendocrine Cancer UK Melanoma Focus Myeloma UK The Eve Appeal Hope for Tomorrow - hopefor Alike Yorkshire Cancer Research Young Lives vs Cancer
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The Inflammatory Breast Cancer Network UK retweetledi
Secondaries On The 2nd.
We want you to know about the signs and symptoms of #MetastaticBreastCancer so we are sharing our infographics that highlight what you should be aware of if you have had a primary breast cancer diagnosis.
These infographics are signposted by NHS England and used worldwide. They are translated into 12 languages.
We know that it can be hard to even think about a recurrence and MBC, but knowledge is power, and if you have any of these symptoms please speak to your medical team. Advocating for yourself is the most important thing you can do for yourself.
As we are focusing on awareness one of METUPUK's key aims, we'd be interested to start seeing your stories on how your #secondarybreastcancer was diagnosed and what signs you think people ought to be looking for.
Use the #2ndsonthe2nd and we'll share your posts.
Here's the link to the infographics buff.ly/4gd5T7t
#METUPUK #DarkerPink #BusyLivingWithMets #IAmThe31 #waitingroomfeet #BreastCancer #BreastCancerCommunity #BreastCancerJourney #BreastCancerSupport #DyingForACure #EarlyDetectionSavesLives #MetastaticBreastCancerAwareness #SecondaryBreastCancer #SecondarySisters #Stage4NeedsMore #StageIVNeedsMore #AdvancedBreastCancer
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@BreastCancerNow @Liz_ORiordan Thank you @Liz_ORiordan for sharing information about symptoms other than lumps. Signs of #InflammatoryBreastCancer can be very subtle. Skin, size and colour changes are most often seen
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Did you know that a lump isn’t the only sign or symptom of breast cancer?
@Liz_ORiordan takes us through some of the other signs and symptoms you should look out for.
Find more information on the signs and symptoms of breast cancer below 👇
breastcancernow.org/about-breast-c…
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The Inflammatory Breast Cancer Network UK retweetledi
The Inflammatory Breast Cancer Network UK retweetledi
Please join me in #WearItOrange today for #inflammatorybreastcancer awareness. We have chosen orange because one of the symptoms of this rare and aggressive breast cancer is peau d'orange, where the skin on your breast is dimpled like orange peel.
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@RCGPAC Today we are wearing it orange to raise awareness of the symptoms of inflammatory breast cancer. 🍊 Stop by and say hi! 🧡 Booth J20 #RCGPAC #rcgpac2024 #BCAW #InflammatoryBreastCancer #OrangeInThePink #WearItOrange #HopeAlways
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@RCGPAC We’ve had a super first day, many excellent conversations about #InflammatoryBreastCancer
We are the breast cancer few patients have heard about, you may never see a case in your career. Come along to J20 to learn more (and we have chocolate!) 🍊 #RCGPAC24 #HopeAlways
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@FourteenFish @RCGPAC We are really excited to collaborate with you on an inflammatory breast cancer specific learning module. Thanks for stopping by our booth!
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We're really excited to be exhibiting at the @RCGPAC in Liverpool this year!
Come along to stand D44 today and tomorrow where you can speak to a member of the team all about our Appraisal Toolkit and Clinical Library!
#RCGPAC2024
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@IamToyinRoberts @RCGPAC Toyin, come and see us on the exhibition floor tomorrow. Booth J20… we have chocolate! (and also lots of helpful information about inflammatory breast cancer)
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First @RCGPAC
I might be shy but if you see me, just say hi 😀😀
Totally amazing day aside the food.
#RCGPAC2024
#RCGPAC
#Liverpool
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@ThanksCancer Head on over to our Insta for much less… pink!
Skin changes is a common symptom of inflammatory breast cancer, like orange peel (peau d’orange) 🍊
Mostly affecting younger patients, swelling misdiagnosed as mastitis and often there is no lump
instagram.com/reel/DALg2-DgQ…
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The last week of September is the calm before the storm for all my twisted titty sisters.
🌪️🩷🌪️🩷🌪️🩷🌪️
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@MartinHGames If you’re minded towards a cancer cause, please consider the smaller, less well known ones or local hospice as an alternative.
Our charity is entirely voluntary and 97 pence of every £1 donated goes directly to fund research (the other 3p covers operational costs)
#HopeAlways
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The salaries of many ceos of charities is pretty shocking. I’m unhappy that money I give to some of these is paying such huge sums to the bosses.
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Bookmark this for an inspiring lunch break read - ibcnetworkuk.org/s/IBCNewslette…
Thank you to our supporters, fundraisers and volunteers for everything you do!
#HopeAlways
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@ohyouresotough Thank you for everything you do ❤️🎉
Wishing you a joyful birthday from the UK! 🎂🥳
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Thank you for the birthday wishes. I definitely feel loved today (and everyday but lots and lots today) 🥹❤️❤️❤️ cancer friends are second to none 🫶
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A potential opportunity for inflammatory breast cancer patients employed during cancer treatment in the UK #inflammatorybreastcancer #workingwithcancer
Leah Hardy 🇺🇦@LeahFHardy
Am writing an article about what it's like working with cancer. I'm specifically looking to interview someone who was employed during cancer treatment (not self-employed/an entrepreneur). Can anyone help please?
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@dannywallace Dear Danny,
If you do do it, would you consider our charity as the beneficiary. Fewer than 2% of all breast cancers are inflammatory breast cancer, but we account for more than 20% of all breast cancer deaths.
Thanks ever so much,
The IBC Network UK
p.s. Yes, we said do do 🧡
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I have just been invited to appear on Celebrity Pointless.
I’m refusing until the BBC apologises for the dishonest question setters last time I was on.
I will from now on be campaigning vigorously to abolish the license fee.
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@NCVO #loveyoursmallcharity
Fewer than 2% of all breast cancers diagnosed in the UK are #InflammatoryBreastCancer, but #IBC accounts for almost 10% of all breast cancer deaths. We are a volunteer-led charity working to change these devastating statistics
#NoLumpStillCancer #HopeAlways
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Small charities are the beating heart of our communities ❤️
This #SmallCharityWeek, we need your help to make sure they can continue to thrive.
Pledge your LOVE for small charities in your community today by resharing our content and adding #LoveYourSmallCharity.
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@kate_rackham Sending love to Mark, your girls and your family ❤️🩹
We will keep advocating and connecting, see you down the beautiful road x
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If you’re reading this, it means I have died. But do not cry for me. I have lived my life on my own terms, the way I have wanted to. I joined X because I needed an outlet, what I got was so much more. You made me feel validated in my feelings and much less alone. Thank you ❤️
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A fantastic day for our devoted fundraising crew to complete their ultra challenge. More power to their footsteps! Follow along on Insta🤩 instagram.com/p/C7Uod1WNl154…
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The Inflammatory Breast Cancer Network UK retweetledi
