UK IBD Registry

A busy time for the team, but the festive period is for celebration. This week, 3 research studies we have led or been involved in were accepted for the European Crohn's and Colitis Conference in 2024! Huge thanks to all our participants, partners, stakeholders and supporters.

Wishing the @CrohnsColitisUK team and #IBD representatives the best of luck for today💜 #CrohnsAndColitisAwarenessWeek

What a fantastic informative post from @GutsCharityUK for #CrohnAndColitisAwarenessWeek💜 #IBD #Crohns #Colitis

Finding the right words to talk about #IBD isn't always easy. Using resources such as @CrohnsColitisUK Talking Toolkit can be a great place to start💜 #CrohnsAndColitisAwarenessWeek

As an organisation focused on improving the lives of people with #IBD, awareness events are an important part of our year. This includes #CrohnsAndColitisAwarenessWeek starting today! 💜@CrohnsColitisUK @CICRAcharity @GutsCharityUK @IBDSuperHeroes @GetYourBellyOut @BritSocGastro

Our research into effectiveness of different classes of biological therapies for #IBD (BISCUITS) is being presented at ISPOR today. This is a methodology poster showing how using the #IBDRegistry can deliver efficient research. Read more: rb.gy/0zsm57 #ISPOREurope

Fantastic to see #IBD awareness reaching the big screen!💜

We’ve published our 2023 annual report on biological therapies in #IBD – an essential part of our expanding quality improvement work to support better treatment and care for people with IBD in the UK #data #NHS Find out more at: ibdregistry.org.uk/2023/10/ibd-re…

More than 5,000 people with #IBD have now joined @IBDRegistry to help improve IBD treatment and care and support #research. 🎉 Thank you to everyone who has joined! Continue to help grow this valuable resource at ibdregistry.org.uk/join #Crohns #colitis

It's #WorldPatientSafetyDay! As the national registry for #IBD, we recognise the importance of patient safety. From data protection and drug safety studies to our Patient Advisory Group, read more about our work here: ibdregistry.org.uk/information-fo… #WorldPatientSafetyDay2023

We've extended the deadlines for the Benchmarking surveys to Monday 11th September🗓️ We encourage all IBD services to register for and complete the Service Survey. It takes 30 minutes to complete. You may provide estimates or skip questions as needed. ibduk.org/ibd-benchmarki…

Thank you to the #IBD team at Jenny Lind for sharing how participating in @IBDRegistry provides valuable insights to help them improve their IBD service – read their story at ibdregistry.org.uk/clinical-case-… 💜 #NHS #InflammatoryBowelDisease

📢 1 week left to complete the IBD Service Survey 2023! This gives UK #IBD services the chance to have your say on how you're doing against the IBD Standards. @IBDUKTEAM @CrohnsColitisUK @BritSocGastro surveys.ibdregistry.org.uk/redcap/surveys…

Not long left to complete the 2023 #IBD Patient Survey and Service Survey. Closing date Friday 25 August!

Congratulations to Chesterfield Royal Hospital for submitting #data using our new platform! 🥳 Great to work together to capture valuable #health data to help improve treatment and care for people with #IBD 👏 @royalhospital

We've extended the deadline for the Service Survey to 25th August 🗓️ We want to give enough time for as many UK IBD Services to complete the survey as possible. This is a chance for services to tell us how they're doing against the IBD Standards 2019. surveys.ibdregistry.org.uk/redcap/surveys…

Great to see more #IBD hospital teams signing up to our new #data platform to submit valuable #health data 🥳 Thank you for participating in the @IBDRegistry to help improve treatment and care for people with IBD! 😀 @UHMBT @WorcsAcuteNHS @UHSussex

Fantastic to see more #IBD hospital teams successfully submitting data to our new platform! 👋 We're so pleased to be working with you to help improve treatment and care of people with IBD 💜 #NHS @AlderHey @ImperialNHS @MSEHospitals @uhbwNHS @UHDBTrust

📢 UK IBD services - The IBD Service Survey 2023 deadline has been extended to Friday 25 August. We are proud to deliver the Service Survey on behalf of IBD UK, including any support needed by clinical teams in their completion. surveys.ibdregistry.org.uk/redcap/surveys…

The 2023 Service Survey, as part of the #IBD UK Benchmarking 2023, is now open and will close on Friday 25th August. Follow the link below to register for the survey and benchmark your IBD service against the IBD Standards 👇 bit.ly/3PWcn0I