IIH UK

The impact of headache in IIH vm.tiktok.com/ZNdgaQNKC/

A big SHOUT OUT to Nicola! She has taken on the challenge of walking 200,000 steps during Awareness Month to raise funds for us. Thank you Nicola, you're a star! justgiving.com/page/nicola-iih If you are doing a fundraiser for us please let us know

We have selection of information leaflets on our website that are viewable online also home printer friendly. You can find them on the leaflets page of our website here: iih.org.uk/leaflets

In 2019 we undertook a survey asking 'What is the lived experience of headache in people with IIH. This survey shows the breadth and depth of the impact of headache in IIH. You can read about it here: iih.org.uk/product/90/5/2…

Research Trials are so important and we have a few videos to share with more information on how they work. 1. What is a trial? #iihuk #iihukcharity #trials #researchtrials #whatisatrial #iihawareness #iihwarrior

~ Fundraising ~ IIH Awareness Month is nearly here and we like to run a small online raffle during September. We are putting out a call for prizes. Please drop us a message if you run a small business/hobby and would like to donate a prize.

The wonderful @HOPE4TC at our conference earlier this month.

🧠 This month we joined the @IIHUKOfficial National Conference to share how the Hope Programme is supporting people living with Idiopathic Intracranial Hypertension 💬 Next course 17/09! 🔗 bit.ly/3Tp9hmA #HopeProgramme #IIH #ChronicIllnessSupport #PeerSupport

TÜnde was diagnosed with Idiopathic intracranial hypertension #IIH around a year before starting the #HopeProgramme. She had just been trying to deal with all her symptoms and appointments. TÜnde heard about the course from support group @IIHUK Read more: h4c.org.uk/hopestories/20…

Tanya heard about the course from support group IIH UK National Charity where she found acommunity of people who were in the same situation. Read more: h4c.org.uk/hopestories/20… #LiveWellWithHope #FindYourHope

Naomi says that living with #IIH “was quite an eye-opener – it was a whole new world out there for me”. She was actively looking for more information, support and to learn from other people with IIH Read more h4c.org.uk/hopestories/20… #HopeProgramme #LiveWellWithHope #FindYourHope

Venous Sinus stenting is rapidly emerging as an alternative treatment to medically refractory IIH cases [pseudotumor cerebri] cases. Dedicated venous stents like River & Boss stent will be available soon & will be a game changer! Awaiting results of 4 RCTs! #IIH #Neurology #BIH

When a headache is more than a headache… Check out my new Substack post! I talk about my journey with Idiopathic Intracranial Hypertension and my recent brain surgery. #IIH #idiopathicintracranialhypertension open.substack.com/pub/hlcarterau…

🌞 The June Hope newsletter is out now! 🧠 Help shape the future of HOPE 🗓️ New course dates 🐶 Tips from Harry 🎤 Highlights from IIH UK national conference 📩 Read more: bit.ly/3Iz57pG #HopeProgramme #CommunitySupport #IIH #PeerSupport #HopeForTheCommunity

Fundraising for us is easy! Find out more here: iih.org.uk/section/6/1/ho… Already have an idea? Set up your Just Giving page here: justgiving.com/iihuk/donate #iih #iihuk #justgiving #donate #fundraise

Still a few places left, sign up now 💚💙 Our next course starting 17th September still has a few spaces left, book now. h4c.org.uk/courses-all/ii… #IIH #IIHUK #TheHopeProgram #Mindfulness #Wellbeing #Hope

TÜnde was diagnosed with Idiopathic intracranial hypertension #IIH around a year before starting the #HopeProgramme. She had just been trying to deal with all her symptoms and appointments. TÜnde heard about the course from support group @IIHUK Read more: h4c.org.uk/hopestories/20…

We're stronger together. 100+ orgs backed by thousands of people working to ensure every person affected by a neurological condition can access the right care at the right time. Thank you for being a strong voice for change. Learn more bit.ly/3oBTlhy #BackThe1in6

Tanya heard about the course from support group IIH UK National Charity where she found acommunity of people who were in the same situation. Read more: h4c.org.uk/hopestories/20… #LiveWellWithHope #FindYourHope

Awareness Month ~ Day 1 Today is the first day of IIH Awareness Month! We'll start the month off with this poem written by Rachel Turner, one of the founding members of IIH UK.