The @IMFmyeloma is in Cleveland this weekend for its Patient & Family Seminar. If you or a loved one has #myeloma please join us for this free program. Knowledge is Power. @jmikhaelmd @imfmikemyeloma @midatlantismsg myeloma.org
English
Robin Tuohy
7K posts
Robin Tuohy
@IMFsupport
VP Patient Support @IMFmyeloma, care partner to @IMFmikeMYELOMA, #myeloma support group leader in CT & Care Partners groups. Engage, Empower, Educate! Hope!
Prospect, CT Katılım Aralık 2012
1K Takip Edilen2.5K Takipçiler
We learn from our #myeloma doctors but we also learn from other patients and care partners. Thank you @bkinoglu and Fatih for sharing your experience and helpful tips for others. @IMFmyeloma
English
One of our favorite couples fighting #myeloma and helping others. @IMFmyeloma #KnowledgeIsPower #mmsm
International Myeloma Foundation@IMFmyeloma
“If you want to live, you have to fight.” After weeks in the hospital with no answers, Terrence and his wife finally learned he had multiple myeloma. This April, we highlight the importance of timely diagnosis. #IMFMPOWER
English
Do you know how to manage side effects in #myeloma? @IMFnursemyeloma from the @IMFmyeloma Nurse Leadership Board shares how to find your path: navigating myeloma. @JWiework @IMFmikemyeloma
English
At today’s Myeloma Community Workshop in Egan, MN, Dr Dingli is contemplating the pros and cons and toxicities of CAR-T cell therapy in #myeloma @IMFmyeloma
English
Let’s talk about advancing treatment options through clinical trials. With David Dingli, MD, PhD @MayoCancerCare @IMFmyeloma #myeloma Community Workshop in Egan MN
English
Robin Tuohy retweetledi
"Why not replace stem cell transplant entirely with CAR-T therapy?" Dr. Joe breaks it down. Drop your questions below and bookmark this video for later.
#AskTheIMF #mmsm @Bethfaiman @jmikhaelmd
English
We are here! Are you? There is still time to stop by and learn about #myeloma @IMFmyeloma is in Egan, MN with an in person Myeloma Community Workshop today! @IMFnurseMyeloma @IMFmikeMYELOMA @JWiework @bkinoglu
International Myeloma Foundation@IMFmyeloma
#Minneapolis, will we see you at our free IMF Myeloma Community Workshop tomorrow? Learn about the latest myeloma developments and treatments, ask the experts your questions, find support in your community, and more! Coffee and light refreshments. mmsm.link/4qvcAY2
English
If you or a loved one is living with multiple myeloma, our CT #myeloma Fighters Information Group will be meeting in person on April 14. Please contact me for details.
English
It's the last day of @IMFmyeloma Myeloma Action Month! What have you lit up in red to show your support? The Southwest VT #myeloma support group created banners and lit up their Bennington Town Hall! #MoreThanMyeloma
English
Robin Tuohy retweetledi
For sure one of the coolest things I’ve ever gotten to be part of
A super impressive project, featuring interviews with everyone from the CEOs to the leading outside voices on AI risk. I’m in it too :)
Go watch on March 27!
The AI Doc@theaidocfilm
"The most urgent film of our time." THE AI DOC: OR HOW I BECAME AN APOCALOPTIMIST is only in theaters March 27. Watch the trailer now.
English
Robin Tuohy retweetledi
#KansasCity: Connect with the myeloma community, build your support network, ask the experts your questions, find support in your community, and for FREE on March 28, 2026! Will we see you there? Save your seat before spots are gone: mmsm.link/3Ns8Dox
#mmsm
English
Attn #myeloma community, if you have not yet read the FAQs of updated ASCO Living Guideline for Multiple Myeloma: Here it is: myeloma.org/blog/faqs-upda…
English
Robin Tuohy retweetledi
Traditional PET/CT can miss up to 30% of slow-growing #myeloma lesions. IMMunoPET uses antibodies labeled with zirconium-89 to specifically target myeloma. revealing both previously undetectable and additional disease sites. #mmsm #ASH25 @DrOlaLandgren
youtu.be/HP5ObhJ4nkw?si…
YouTube
English
Robin Tuohy retweetledi
A great news for drug approval in myeloma. Will fast forward patient access to new drugs! A success of I2TEAMM efforts @VincentRK @NoopurRajeMD @IMFmyeloma
@SagarLonialMD #mmsm
Source: U.S. Food and Drug Administration share.google/A1uZjJoEuFNOSq…
English
Save the Dates! I remember the first @IMFmyeloma Patient & Family Seminar that we attended in 2001 & the hope we felt based on the research, speakers, educational resources and most of all from the people! It's where shared journeys become shared strength! #myeloma #faMMily
International Myeloma Foundation@IMFmyeloma
Can’t wait to see you at one of our many in-person educational events! As always, our events are free, include lunch, and provide the latest myeloma education to help you live well with #myeloma. Find an event near you or join a webinar online at events.myeloma.org. #mmsm
English
Robin Tuohy retweetledi
New options for people with hard-to-treat myeloma outside the bone (extramedullary) mean more hope and the potential for longer, better lives. Research is leading the way.
@jmikhaelmd
#ASH25 #IMFASH25 #ASKTHEIMF
English
Today @ 6:00 pm est is @IMFmyeloma free webinar with patient perspectives from #ASH25: panel discussion with @PetalResilient @jimjhs17, Jill Zitzewitz
led by @jmikhaelmd
register: myeloma.org/videos/top-mye…
learn more “Myeloma Voices at ASH” #ASH25 : myeloma.org/resources-supp…
English
If you or a loved one has #myeloma: you may wish to join this virtual meeting: Las Voces de Mieloma (Spanish)
20 de enero de 2026, de 10 a. m. a 11 a. m. (hora del Pacífico)
Regístrese en lasvoces.support.myeloma.org
Speaker: Dr. Enrique M. Ocio, MD, PhD
myeloma.org/support-group/…
Español