IPCOR

Have you experienced prostate cancer treatment and would like to help improve support services for other men? If you're in or near Cork and Ballinasloe, please reach out and tell us about your experience!

The IPCOR Registry & Biorepository is building on one of the most comprehensive prostate cancer datasets in Europe. By combining clinical insight with lived experience, IPCOR 2 is guiding smarter, more equitable prostate cancer care—at home and internationally.

How do men really feel during prostate cancer diagnosis and treatment? IPCOR is one of the few registries in the world capturing PROMs at multiple time points to assess real-world quality of life. By listening to men’s experiences, we hope to enable more patient-centred care.

Ireland’s Rapid Access Prostate Clinics (RAPCs) were introduced in 2009 for men at risk. The impact? Earlier diagnosis But challenges remain: GP referral gaps, location and capacity. IPCOR data shows it’s working, but we need to strengthen and scale the system.

IPCOR data shows that inequalities in PSA screening are a critical concern. Men in urban areas are 34% more likely to be diagnosed than those in rural areas. Disparities matter. IPCOR is committed to using real-world data to spotlight gaps and drive fairer systems of care.

1 in 6 men in Ireland will be diagnosed with prostate cancer. Prostate is a small gland below the bladder that produces seminal fluid. Changes can be an early warning sign of cancer. If you notice any of these symptoms, speak to your GP. Early detection can save lives!

Please encourage all men with prostate cancer and their partners to complete this survey. @ISU_Urology @hseNCCP @IrishCancerSoc @iaun_nurses

The PRO-ACT Survey is live! Developed with input from patients, partners, & healthcare professionals, this study will explore the impact of prostate cancer treatment on sexual well-being & mental health. Read more: bit.ly/4gbjMTG #ProstateCancerResearch #PPI #NothingAboutUsWithoutUs

@ISU_Urology @hseNCCP @HSEResearch

Publication Alert! Irish Prostate Cancer Outcomes Research (IPCOR) registry: Cohort Profile. As the IPCOR clinical quality registry and biorepository moves ahead in its second phase, read about our work between 2015-2020, collecting data of newly diagnosed prostate cancer cases across 16 hospitals of Ireland: bmjopen.bmj.com/content/14/12/… @IrishCancerSoc @UCD_Research @MovemberIreland @ISU_Urology

Publication Alert - Are we there yet? Closing the gap of prostate cancer presentation disparities in Ireland. Read our article on this essential issue in prostate cancer: pubmed.ncbi.nlm.nih.gov/39538309/#:~:t…. @IrishCancerSoc @MovemberIreland @ISU_Urology @UCD_Research @MovemberAUS #publicaction

This November, Movember is back with a €2.5M investment to relaunch the Irish Prostate Cancer Outcomes Research @IPCOR_Ireland registry. The new digital registry will improve prostate cancer care and drive groundbreaking research 🔬 For more information: ucd.ie/conway/engagem…

IPCOR is hiring! Calling out to all clinical research professionals interested in a Research Nurse or Research Assistant position. We're excited to expand our research team at the first hospital site of the IPCOR clinical quality and outcomes registry. IPCOR is a landmark international initiative funded by Movember. These positions are expected to last a minimum of 3 years with annual contract renewal. Valuable training and skills for managing digital registry software and processes will be provided. For the detailed job description and online application process, please visit the UCD job portal: lnkd.in/eyXM9f3K Posting code: 017850 & 017864 #hiring

Great time at #ICHOM2024, hearing insightful and inspiring accounts of measuring health outcomes for clinical quality improvement, ensuring patient-centred systems! Excited for our team members to present 2 abstracts showcasing how the IPCOR registry plans to work toward VBHC for Irish men.

Proud to partner with Movember for IPCOR. Read more about the new edition of our prostate cancer outcomes registry:

After 10 years of dreaming and a very busy 10 months, we are delighted to have developed the Irish prostate cancer registry on the Dacima database. Looking forward to recruiting our first men in IPCOR 2.0 across Mater Galway and St Vincent’s’ hospital. Welcome done to Ray, Wasfa and the IPCOR / Movember team.