MND Iceland

It’s Friday, I’m in love.

I walked again today. Each walk is harder but each walk is ever more important. I am so lucky to have an amazing team to help me. Not today ALS. Definitely not today.

🤝 This masterclass for allied professionals focuses on navigating difficult discussions, emphasizing cultural and linguistic sensitivity. 🌍 📅 Tuesday, December 3rd in Montreal. 🔗 Registration info: ow.ly/wiKY50T1TuN

TOMORROW (8/18) is our 2nd annual Big Island Walk & Roll to Cure ALS, at Old Kona Airport in Kailua-Kona, Hawaii. All funds raised support the mission priorities of the ALS Network. Register at alswalkbigisland.org

🎉 Happy #NationalNonprofitDay! 🎉 At #MDA, we believe in a world where everyone can thrive, and with your help, we can make this vision a reality! Visit MDA.org to learn more about how you can get involved.

@NotSoVanilla In Iceland I do get one person paid 24/7 to help me with my daily life, by the government. I do pay more taxes than you bud I would not like to change with you living in US 😢

idk what i would do if i didn't live with my parents and have their homeowners help to take care of me. we don't live in a country that cares for its sick and disabled.

With heavy hearts, ALS took our friend Laurie Roselle last week, just shy of three years since her diagnosis. Last year, she wrote about her ALS story, sharing this new purpose to "educate & raise funds to find a cure for ALS." We're honored to carry on this purpose in our work.

@ALSMNDAlliance A must to attend, at least virtually🥰 Hope to meet you there.

The Allied Professionals Forum (APF) is in Montreal, Canada, this December 4-5. With over 400 delegates attending from more than 40 countries 🌍, the APF provides the opportunity to engage in a truly global conversation. Get the Early Bird rate now! 🐦💸 #category" target="_blank" rel="nofollow noopener">site.pheedloop.com/event/Alliance…

Shoutout Beth Wolfe yoga & Walnut Creek farm va #goatyoga

Halla Tómasdóttir has been inaugurated as the 7th President of Iceland 🇮🇸

@PresidentISL 🥰🥰

Fun night full of laughs with friends & @HunterGreen2022 seeing our buddy Jay Mohr do his thing. #NotTodayALS

Four ALS drugs to keep an eye on clinicaltrialsarena.com/features/trial… via @TrialsArena

When was the last time these NFL draft experts got it right? Their opinions are guesses at best. Please stop talking and let the kids compete.

Dear Every ALS Neurologist, Look at the navigator below. It makes EAP requests easy peasy. Thanks, @reaganudall

@alsadvocacy I totally agree. We ask med companies to share their info so we do not repeat trials and we can not make one list of this thing 😥Maybe we can go on one of these and they have it all? Duplicating each other? @ALSMNDAlliance

This slide bothered me when I saw it yesterday. Why are people with ALS sent to 7 different places for trial information? Why not send them to one excellent resource? And they say they all collaborate. Right.

Our care workers & family caregivers deserve better wages & working conditions. That’s why Rachael (@rachael_scar) & Carl, Ady Barkan’s wife & son, & Izamar (@BarriosIzamar), one of Ady’s caregivers, headed to DC to join w/ other allies & call on our electeds to invest in care.