Imagining Futures

So excited to be joining Nuffield Council on Bioethics as a new council member nuffieldbioethics.org/news-blog/nuff…

📢New paper 📢Mapping the benefits and harms of antenatal and newborn screening prog... sciencedirect.com/science/articl…

Felicity Boardman talking about ethical considerations in newborn screening programmes @ Adelphi Genetics Forum Oct 25 youtu.be/GxPzKcZr9ww?si… via @YouTube

📢new paper involving the If team 📢bmjmedicine.bmj.com/content/4/1/e0…

📢new paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet‐specific autoantibodies - Faustini - 2025 - Diabetic Medicine - Wiley Online Library onlinelibrary.wiley.com/doi/10.1111/dm…

📢New Paper Involving IF Team: a systematic review on the attitudes of individuals with/at risk of adult-onset genetic conditions on reproductive genetic testing📢 onlinelibrary.wiley.com/doi/10.1002/jg…

Great time presenting IF study findings at #ESHG2025 today :)

📢 New paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet-specific autoantibodies onlinelibrary.wiley.com/doi/10.1111/dm…

So great to see this collection come together! After a fascinating few days at @Fond_Brocher in the summer of 2023, we now have an edited collection of papers addressing the question of severity and its uses in genomics nature.com/collections/ji…

How to use the QRDC guidance for remote qualitative studies 👇

New Paper: Special Issue in EJHG on Severity. What started as a @Fond_Brocher workshop in the summer of 2023 is now a wonderfully rich and diverse collection of papers spanning policy, practice and lived experiences: doi.org/10.1038/s41431…

New paper: comparing in-person and remote qualitative data collection @JulieRoberts12 @sophie_stan2 @Corinna_Clark_ @fegriffiths

New Paper: #JMIR #Preprint: Advances in newborn screening: development of an online scenario-based tool to enable research participation and public engagement. preprints.jmir.org/preprint/59686 #digitalhealth via @jmirpub

New article on the QRDC guidance: ncrm.ac.uk/news/show.php?… @NCRMUK @JulieRoberts12 @ImaginingFuture @sophie_stan2 @chinwe_onuegbu

@AliMakesHay @Corinna_Clark_ @SergNetwork @JaneChudleigh if the link isn't working please go to warwick.ac.uk/SERG and you will see the information and link to register

@Corinna_Clark_ @SergNetwork @ImaginingFuture @JaneChudleigh Is the link on the website broken?

SERG meeting registration now open for our London meeting (25th Nov) warwick.ac.uk/fac/sci/med/re… @SergNetwork @ImaginingFuture @JaneChudleigh

@AliMakesHay @Corinna_Clark_ @SergNetwork @JaneChudleigh @AliMakesHay it works when I click on it. Have you managed to register?

📣Save the date! Next SERG meeting Mon 25th Nov 10:00am, Friend's House, Euston Rd, London. Hybrid available. Focus: Newborn screening for rare diseases. Speakers @CelineLewis23 (generation study) @JaneChudleigh (SCID pilot) sign up details to follow📣

New paper involving IF team: Full article: Neurologists’ understanding of reproductive medicine options for genetic forms of motor neuron disease tandfonline.com/doi/full/10.10…

Use of remote methods in qualitative research has various impacts; for participants, for researchers, and for the data produced. Careful study design and delivery are so important. See new guidance, available from today: