Idiopathic pulmonary fibrosis

Which 5 words would you use to describe IPF? Share your answer on the Raremark website here: bit.ly/3KiqU1s #MakeTheRareReal #IPF #IdiopathicPulmonaryFibrosis

Almost 9 out of 10 carers (91%) have taken time off from work for caregiving duties. What’s the financial cost of being a rare caregiver? We take a look: bit.ly/3nxs4MM #MakeTheRareReal

When a family member gets a life-altering diagnosis life may suddenly feel broken. Here are a few ways to heal from @DeniseMBrown3, founder of @CareYrsAcademy: bit.ly/34UKmkx

Taleena Koch, the founder of Breathe Support Network, explains why you need a pulmonologist who specializes in pulmonary fibrosis to get the best IPF care.

What do IPF patients and caregivers think about their medication? Find out here: bit.ly/3FG4qUy

Living with IPF has its challenges, but there are ways you can stay in control. Here are some tips: bit.ly/3A1qJ66 #IPF #PulmonaryFibrosis

See how others are living with IPF and share your experiences at Raremark. Head to our website to become a member: bit.ly/3Gv4WG2

"If you are not a priority in your life, you will not be fully equipped to care for another." Taleena Koch, the founder of the Breathe Support Network, shares some lessons she learned as a caregiver: bit.ly/3Ked8wH

What is genetic testing and what happens when someone has a test? We spoke to specialists to find out: bit.ly/3Gnk60f

Do you have trouble remembering what to talk to your doctor about, or what they tell you? Here are some tips to help you keep track. #IPF #PulmonaryFibrosis

Noah Greenspan, DPT goes over five aspects of your health that are important to consider while living with IPF: #IPF #PulmonaryFibrosis bit.ly/2zCpBek

Open communication is important between you and your caregiver. This downloadable patient tool can help guide you through some important discussions. Get it here: bit.ly/33h2rsj #IPF #IdiopathicPulmonaryFibrosis

What advice would you give to someone who just got diagnosed with IPF? Sign up or log in to Raremark and share your answer: bit.ly/3HJhNVn #IPF #IdiopathicPulmonaryFibrosis

Together we can help each other understand, manage, and talk about IPF. Join Raremark: bit.ly/3HEeMFQ

Fatigue is one of the most common symptoms of idiopathic pulmonary fibrosis (IPF). Here's some advice on how to manage fatigue, read the article in full here: bit.ly/3n5nSDA #IPF #PulmonaryFibrosis

“I cherish quality time spent with family and friends now, and I’m not sure I would have appreciated this simple pleasure so early in my life if it weren’t for my IPF diagnosis.” Read about Charlene's and other people's experiences here: bit.ly/3rcSchd

Have a look at this article for some tips and suggestions to help manage life with pulmonary fibrosis: bit.ly/3sYdCAS #IPF #PulmonaryFibrosis

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