TLLC - Jaclyn

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TLLC - Jaclyn

TLLC - Jaclyn

@JaclynTllc

All things #lichensclerosus | I create and share evidence-based LS information and provide support | patient representative/patient partner

Toronto, Ontario Katılım Ocak 2023
117 Takip Edilen40 Takipçiler
TLLC - Jaclyn retweetledi
ISSVD
ISSVD@ISSVD·
An observational retrospected study from 1990 to 2011 looked at whether pediatric vulvar lichen sclerosus persists beyond puberty and menarche. The average follow-up was 14 years, and patients were re-evaluated by muldisiciplinary clinicians.
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TLLC - Jaclyn retweetledi
Vulval Cancer UK Awareness
Vulval Cancer UK Awareness@VulvalCancerUK·
Gynaecological Cancer Awareness Month 4 women would have been told today they have #vulvalcancer and it would have been a double shock as it would of been the first time they had heard of this cancer. Don’t let it be it’s rare so don’t care. Help us raise awareness
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TLLC - Jaclyn
TLLC - Jaclyn@JaclynTllc·
New LS survey from the CORALS team looking to get the patient's voices on what symptoms impact them the most. Please put the list in priority order with #1 representing the most important and #10 the least important to you. ohsu.ca1.qualtrics.com/jfe/form/SV_1G…
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Vulval Cancer UK Awareness
Vulval Cancer UK Awareness@VulvalCancerUK·
Lichen Sclerosus is Under-reported and under-recognised. Many get misdiagnosed as thrush and even when diagnosed they given the wrong information or no information. This petition will help change that 🔗petition.parliament.uk/petitions/6327…
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Vulval Cancer UK Awareness
Vulval Cancer UK Awareness@VulvalCancerUK·
1045 signatures to get the government to respond to our petition. Please sign ✍🏻 and Retweet
Vulval Cancer UK Awareness@VulvalCancerUK

What it’s like having #LichenSclerosus ➡️Increased risk of vulval, penile or anal cancer. ➡️It’s Under-reported and under-recognised ➡️Please help us get to 10,000 signatures so the government will respond. ➡️We only have until 9th August 🔗➡️petition.parliament.uk/petitions/6327…

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TLLC - Jaclyn retweetledi
ISSVD
ISSVD@ISSVD·
This brochure will show you how to perform a vulvar self-exam for abnormalities. However, this is not a substitute for an examination by a health care professional, so if you are concerned, consult your health care provider. brochure available at: bit.ly/vulvarselfexam…
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TLLC - Jaclyn
TLLC - Jaclyn@JaclynTllc·
Did you know that pain or difficulty inserting tampons is often a symptom of vulvodynia and/or vaginismus?⁠ The Tampon Campaign, spearheaded by the BC Centre for Vulvar Health, is trying to get this information on tampon packaging. @ubykotex @Tampax
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TLLC - Jaclyn retweetledi
ISSVD
ISSVD@ISSVD·
ISSVD launches the Vulvar Ulcer Algorithm, a comprehensive and interactive document with valuable information designed with the user in mind. We encourage you to take advantage of this document and share this tool with other healthcare professionals. Visit:onx.la/7f4a6
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