Jain Foundation

For Rare Disease Day: Jain Foundation science staff directing the global research to find a cure!

For Rare Disease Day, we want to share a documentary (made by an amazing person) that inspires us. youtube.com/watch?v=-Opi4d…

What is Limb Girdle Muscular Dystrophy type 2B/Miyoshi Myopathy? youtu.be/Go8rH0v5MeQ via @YouTube

Want some cool gear for LGMD awareness day Sept 30th? Check out our new store! cafepress.com/lgmdawareness #lgmdawareness #lgmd

Stephanie gave a very moving talk at the #2BEmpowered2016 conference youtube.com/watch?v=poZtoe… #LGMDawareness #LGMD #causes #raredisease

Excited to support a patient who made #lgmdawareness gear! #LGMD #nonprofit #adayinthelife #causes #raredisease

#LGMDAwarenessday 2016 is official in Georgia this year! #LGMD #LGMDawareness #raredisease

Cody Miller won gold in Men's 4x100m medley relay & brings #awareness to #raredisease, pectus excavatum! shar.es/1ZPe1Y

#LGMD Consortium's Free Genetic Testing Program Is A Major Success, helping over 1200 people! shar.es/1ZEQQV @rareDR #LGMDawareness

It's official in Washington! #LGMDAwareness Day will be Sept 30th! Thanks Brad for applying! #lgmd #nonprofit

Step aside, Olympics here’s the Cybathlon: devices to help people with disabilities #lgmdawareness via @NatureNews goo.gl/gbxqah

LGMD Consortium provides free genetic sequencing, visit lgmd-diagnosis.org to learn more businesswire.com/news/home/2016… #LGMDawareness #lgmd

Chris gave an inspirational talk about achieving your dreams despite #lgmd at #2bempowered2016 #lgmdawareness youtu.be/1KS-xkNg-_E

2016 #LGMD Awareness #Scholarship = huge success reaching over 87,000 people! Even got mentioned here goo.gl/7FL44A #LGMDawareness

Todays #staffspotlight - Sarah, Director of Patient Outreach and Community Strategies! #lgmd #lgmdawareness

Today's #staffspotlight! Meet Elaine, a Research Program Officer at #thejainfoundation #lgmdawareness #nonprofit

Today's #staffspotlight -meet Miriam, our Head of Operations! #LGMDawareness #thejainfoundation

Jill Viles gave an inspirational talk at the #2BEmpowered2016 Patient Conference youtu.be/HDTZEmMKNMU #LGMDawareness #JainFoundation

Help us choose a design for a t-shirt, which would you wear? 99designs.com/contests/poll/… #LGMDawareness

The #2bempowered2016 Patient Conference was a great hit! Here's Yumi's opening talk youtu.be/KUPEoOvodPw #lgmdawareness #LGMD