Jenny M Khazen

@Benjamin_Trewin @AANmember Go Ben!!!!

Thrilled to share our group’s work on maintenance immunotherapy in #MOGAD has been accepted for oral presentation at the American Academy of Neurology Annual Meeting in Chicago this April. Window of early steroid benefit, dose thresholds & disability risk. 🧠 #AANAM @AANmember

A historic moment for the MOGAD community! Positive Phase III results from the METEOROID clinical trial mark the first successful MOGAD treatment study—made possible by the participants and their families. As the pre-eminent global nonprofit for #MOGAD, The MOG Project calls this a “historic day” and applauds “Hoffmann-LaRoche/Genentech’s landmark achievement and their investment in finding new, safe, and effective treatments for MOGAD.” Learn more: mogproject.org/meteoroid

Our school has done it again! 😃 On the news for the 100th time! Oliver Farag is my beautiful Y4 student, as well as my previous student, his sister Isabelle. Such a great school to be in. Go #SAPS! #PrimaryEducation @7NewsSydney

@TheMOGProject Thank you😊

@JustJen_K Such a handsome man. He’s too cute

@TheMOGProject @Benjamin_Trewin Goooooooo Ben!! Welcome to the team

We are thrilled to welcome Dr @Benjamin_Trewin with @JustJen_K to our ANZ Medical Advisory Board! Dr Ben is a Sydney-based neurologist & neuroimmunologist specialising in #MOGAD, #NMOSD & #MS. He is a clinician-scientist exploring relapse risk, treatment comparisons & long-term outcomes in autoimmune demyelination. Ben is committed to improving diagnosis, refining treatment strategies, & ensuring people living with autoimmune neurological disorders have access to individualised, evidence-based care. Read his full bio here 👉 #trewin" target="_blank" rel="nofollow noopener">mogproject.org/about/#trewin Welcome to the team 🧪🔬🥼👨🏻‍🔬

@TheMOGProject @dr_fiona_c Goooooo Fiona!! 😍

Look who we’ve poached with @JustJen_K to our ANZ Medical Advisory Council, @dr_fiona_c. Dr Fiona is Neurologist specialising in Neuro-Ophthalmology & Neuro-Immunology, with advanced clinical & research training across Australia, UK, & Oxford’s renowned #NMOSD & #MOGAD clinic. She is deeply committed to patient advocacy, education, & advancing care for rare neuroimmune disorders. Read her full bio here 👉 #chan" target="_blank" rel="nofollow noopener">mogproject.org/medical-adviso… Welcome to the team! 🔬👩🏻‍🔬🥼🧪

Vinod URGENTLY needs a STEM CELL TRANSPLANT DONOR for an aggressive form of cancer that will help give him the BEST CHANCE to come back home, hold his kids/wife & somewhat put this phase behind him & return back to normality. If you’re >18+ consider registering using the links below! @darshi_r #ThisIsBloodCancer #FightForACure #NoOneFightsALONE 🩸

To support the cause most dear to me. Finding a stem cell transplant donor for someone from a minority ethnic group can be difficult as they are underrepresented on international World Marrow Donor Association registries. If you are >18 years old, consider registering:

Are you a woman >18 who is diagnosed with #MOGAD/#NMOSD? Help us understand family planing,🤰🏻& postpartum by taking this survey! docs.google.com/forms/d/e/1FAI… 🌏 team: @EthelScl, @mlevy18, @chenmayo, @EoinFlanagan14, @ESotirchos, @darshi_r, @dr_fiona_c, @JustJen_K, Julia & Bernardita

@TheMOGProject We tried 😄

@JustJen_K My goodness this is too cute!

Transformed my 4 month old son’s hand & finger painting into a hot air balloon inspired by his favourite book ‘The World Needs Who YOU Were Made to Be!’ Combination of art, sensory & reading. 📖🎨🖌️

If you’re a woman >18 with #MOGAD or #NMOSD, we would like you to complete this survey to better understand family planning, pregnancy &/or postpartum in MOGAD & NMOSD! Survey in English: docs.google.com/forms/d/e/1FAI… Our international team: @EthelScl, @mlevy18, @chenmayo, @EoinFlanagan14, @ESotirchos, @darshi_r, @dr_fiona_c, @JustJen_K, Julia & Bernardita et al.. have combined to explore this HOT TOPIC & its importance. Spanish: docs.google.com/forms/d/e/1FAI…

Only 1 week left to go until our FIRST ever ANZ #MOGAD patient Q&As support group meeting with our 3 experts; @darshi_r, @Benjamin_Trewin & @dr_fiona_c with hosts @JustJen_K & Kathy! Rego link: us02web.zoom.us/meeting/regist… October 14th, at 6pm AEST 🇦🇺🇳🇿👁️🧠 *This will not be recorded to protect patient privacy*

@TheMOGProject 🩵

@JustJen_K He is so scrumptious and looks split image of you!

Delighted to share @andreuvilaseca7 et al study highlighting episodes of painful transient vision loss in #MOGAD ➡️ He came up with the interesting mixed Greek/Latin term of amaurosis fugax dolorosa ➡️ This may be an early clue to #MOGAD diagnosis 👇#F1" target="_blank" rel="nofollow noopener">neurology.org/doi/10.1212/NX…

Ts, how are you making sure you hear from all your Ss – even the quiet ones? This discussion routine, from educator @XpatEducator, can set them ALL up for success:

We’re keen to see an international study which follows relapsing #MOGAD patient’s MRIs from disease onset to relapses so we can get a better understanding of what happens to these patients paired with MRIs. Do they have atrophy? Neuropathy? Lesions completely disappeared? Lesions still active? 🤷🏻‍♀️

@TheMOGProject Double keen for this too

@TheMOGProject @EoinFlanagan14 @andreuvilaseca7 Omg I’m dead LOL

@EoinFlanagan14 @andreuvilaseca7 Great study! We can all attest that it is indeed painful AF!

mdpi.com/2227-9059/13/1… Now available online! @TheMOGProject @TheSumairaFDN @NeuroinmunUC