Amazing new sensory room created by Sunderland AFC for their SEN spectators bit.ly/1h6fwqu
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Kabuki UK Charity
156 posts
Kabuki UK Charity
@KabukiUK
Kabuki UK was set up in 2012 to address a lack of UK-based information and support for Kabuki Syndrome, a rare genetic disorder. We are a voluntary, non-profit
UK Katılım Şubat 2012
62 Takip Edilen121 Takipçiler
This video gives informaiton about knowing your rights when it comes to healthcare and the NHS.
ow.ly/XVVxx
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The link to the Family Day tickets will be posted soon, just sorting it out so that its nice and simple
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M&S are developing a range of clothing with kids with additional needs in mind. There is a FB Group here facebook.com/groups/1690790…
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Need help travelling on the train? The Assisted Travel Service is so helpful. Find the phone numbers here ow.ly/WZIGR
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Whats your story? If you would like to add it to the website please get in touch, there are some to read here kabukiuk.org.uk/#!stories/c4up
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Sensory friendly cinema screenings, find one near you here ow.ly/WZB4N
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A huge thank you to Ellesmere Guiding for their Christmas Carol singing which raised over £100
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Possible evidence that a Ketogenic diet may help people with Kabuki Syndrome ow.ly/Vok1T
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Have you been refused assessment for an EHCP? Here is the link to IPSEA's guidelines on what to do next. ow.ly/V1OmA
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Check out this Q&A with Dr. Hans Bjornsson, featured on BioMed Central Blog!: blogs.biomedcentral.com…/epigenetics-chromatin-cli…/
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Here are some "Wow Moments" which our members have told us about, if you have one send a picture & tell us about it kabukiuk.org.uk/#!wow-moments/…
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Great episode of Get Well Soon on CBeebies at the moment about having an Echocardiagram ow.ly/UNbJX
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Here are some of our members stories, if you would like to send yours in just get in touch kabukiuk.org.uk/#!stories/c4up
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Don't forget about the Grant Schemes, here is the link kabukiuk.org.uk/#!grants/c7qf
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Kabuki UK Charity retweetledi
See what our Legal Team think about the amendment & download our Transition Timeline resource here: ipsea.org.uk/news/2015/chan… (2 of 2)
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Kabuki UK Charity retweetledi
.@ElliotDunster highlights @scope concerns about proposed reductions to support for those in the ESA WRAG #welfarebill
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Kabuki UK Charity retweetledi
Listen to our podcast on supporting your child through bullying issues & how the school can help. ow.ly/S2ra7
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Amended regulations extend the timeline for transition from a statement to an EHC plan to 18 weeks. You can see what IPSEA think here;
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