Lance Venable retweetledi
Lance Venable
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Lance Venable
@LanceVenable
Golf professional; @williamjewell grad '91; Travel; Love my wife and 2 poodle pups; History buff; John 3:16; #GreatestGameEverInvented #PracticeMore4LowerScore⛳
Grapevine, Texas Katılım Ağustos 2012
495 Takip Edilen214 Takipçiler
Lance Venable retweetledi

@historyinmemes The FCC warned The Ed Sullivan show to only show Elvis from the waist up on TV. The show ignored them and history was made (1956) twitter.com/timecaptales/s…
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Lance Venable retweetledi

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@mark_joubert H.....HOLD
O.....ON
P......PRAY
E.....EXPECTANTLY
GOD IS WITH YOU, GUS, YOUR FAMILY & ALL THE CARE TEAM.
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Latest update on Gus:
Yesterday was a day full of challenges. That seems to be the rule rather than the exception with our Gus! He failed the ECMO clamp test, so he was not able to come off of the support. Once more, our team has reinforced the fact that his heart function is actually quite good -- especially given that it wasn't beating just over a week ago.
The reasons he failed the test were lung function and hypotension. The night ended with him heavily sedated and paralyzed so that they could manage bleeding from the chest cavity caused by the exploration earlier that day. Extended periods of bleeding are always a risk on ECMO. Thankfully by around midnight they were able to slow his bleeding.
It feels like we've added another set of challenges to our already lengthy list. Right now the primary concern is no longer the heart, but the right lung. This means we've added pulmonology to our medical team! Following the ECMO trials yesterday, Gus received a bronchoscopy in which they discovered a large mucus plug blocking off the branch to his right lung. They were able to partially break it down, but given his size it is difficult to do these kinds of invasive procedures. As of this morning, his right lung was essentially collapsed and filled with mucus. There were also signs of a bacterial infection found in some of his secretions; the mucus extracted during the bronchoscopy is being evaluated.
Today, we hope, will be a calmer day. They will work on helping Gus shed fluid, remain free from excessive bleeding, balance his myriad of meds, and strategize on how to address his lungs. Tomorrow we will probably have another bronchoscopy in hopes of removing more of the mucus. We desperately need to see some kind of recovery in the right lung.
Our team is concerned that we are in a race between recovery and risk. His heart is much better, but his lung and hypotensive issues are preventing him from coming off of ECMO. There is also the growing risk of infection from the open chest cavity (for those who don’t know, it is often left open and patched to reduce inflammation and give the new heart room after transplant; it also serves to provide easy access for cannulating while on ECMO). Because of this, we could be looking at closing up his sternum as early as Monday and switching his ECMO connections to the neck.
The concern over hypotension also persists. We hope that this is somehow tied to the lungs and infection. Perhaps addressing these things will help him retain fluid and maintain good blood pressure for the next ECMO trial -- something that would probably happen early next week if his lung makes progress.
He's also been sedated a lot over the last few days and could continue to be in the coming days. This has a lot of benefits for someone in critical condition like Gus. It also has consequences -- like delirium. This weighs heavily on us, though we know it is needed at this time.
Friends, we have come so far, and God has answered so many of our prayers. Admittedly, we do feel a sense of discouragement from all these ups and downs. The waves of difficult news are wearing us down. Still, we prayed for his heart to start beating and it did. We prayed for his heart to recover and it has significantly. Gus has come close to death many times and God has preserved his life. God's grace is sufficient. Now it is time to pray with equal fervency for God to heal his lungs and bring him to a place where he is stable enough to come off ECMO. Please especially pray that the bronchoscopy tomorrow would be successful in removing mucus. In the mean time, we must pray diligently that God would preserve his life and keep him from any additional complications while he's on ECMO.
Please continue to pray with us and for us. Thank you for all who continue to pray steadily on our behalf. Your prayers continue to fortify us in our weakness and weariness.
"And this is the confidence that we have toward him, that if we ask anything according to his will he hears us. And if we know that he hears us in whatever we ask, we know that we have the requests that we have asked of him." I John 5:14-15
"Let us then with confidence draw near to the throne of grace, that we may receive mercy and find grace to help in time of need." Heb. 4:16
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Since some have asked along these lines, here is a link to the GoFundMe setup by our family. Please feel no pressure to give! We simply want to provide a way for people to give who would be blessed to do so. The Lord has been meeting our needs and our friends and family have been very supportive: shorturl.at/juEZ7

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Hello friends,
Today has been a fairly uneventful day. Amanda and I actually enjoyed a decent night of sleep last night because Gus was so stable. We hope for the same tonight.
Tomorrow will be another big day for us! Please pray!
Here's a recap and look at the day ahead:
Gus received a second TPE (therapeutic plasma exchange) treatment today. As mentioned in previous updates, the current operating theory is that inflammation caused by trauma to one of Gus' lungs is responsible for the severe episodes of hypotension that put him back on ECMO support. The TPE treatments reduce inflammation markers and could set him up for a better transition off of ECMO.
The good news is that he has been relatively stable the last two days since going back on ECMO. His heart function, from all appearances, may have improved, so our team is optimistic about his ability to come off of ECMO.
Consequently, we will begin the trial phase again tomorrow! We will start with another low-flow trial in which they will be looking for good heart function and good blood pressures. If he does well with that, we could attempt another clamp trial to temporarily suspend ECMO support. Amanda and I are nervous given what happened last time -- but he can't stay on ECMO indefinitely. We are relying on our team to move forward as Gus permits.
Unfortunately, we received some discouraging news this morning from a neurological standpoint. Gus experienced more seizures overnight. They have been monitoring him constantly and they've been able to treat his seizures effectively. An ultrasound revealed that he suffered additional brain damage over the last few days. What kind of damage it is or how bad it is cannot be determined without an MRI -- which cannot be conducted until he is off ECMO. On a positive note, while he's been under a lot of sedation the last two days, when he has woken up (like he did this evening) we've seen good motor function along with some of his typical "Gus-isms." For that, we are thankful.
The lung damage believed to have contributed to his inflammatory hypotension has not improved -- which is not surprising. Lungs cant take weeks or months to heal. The main concern was reducing the inflammation caused by the lung damage. His TPE treatments should have helped with this. The hope is that we will not see the same issues with hypotension when he comes off ECMO -- assuming his heart function remains as good as it has been.
For those who have been praying for us, please pray the tomorrow goes smoothly; that his heart performs well during his ECMO trials. Pray that it is clear to our team how we should progress -- as this is obviously a very sensitive moment. We don't want to stay on ECMO longer than necessary, and his heart is showing promising signs that it is ready to do its job without support. Pray that we can avoid complications during the trials and progress in a more controlled environment.
If we can get off ECMO with Gus in a stable condition, we can address other issues (like his lungs and brain). In the mean time, we are glad to report that (as of tonight) none of his other organs are showing signs of failure beyond the injuries I've mentions. Kidneys and liver are doing good!
Given what happened the other day, Amanda and I are very trepidatious going into tomorrow, but God has given us peace, and we are comfortable following the lead of our medical team. We continue to be extremely grateful for all our doctors and nurses. Pray for us that we might have continued peace and entrust our son into God's hands. It remains our sincere desire that God should be glorified and Christ magnified in the midst of this difficulty.
Thank you so much for praying with us and following our story. It's virtually impossible to respond to all of you, but we see and are encouraged by all those who have joined with us in pleading for our son. God has answered many prayers and we look forward to seeing how he will use this situation for his glory and our good.
Here's a sweet picture from several days ago:

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Friends: we are so remarkably grateful to report that after hours of working hard to get Gus' blood pressure stable, Gus' heart seems to have steadied out for the time being. He will not be going back on ECMO as of right now.
The Lord has done great things for us today! We remain cautiously optimistic, but God has been good to us.
We are incredibly thankful for the amazing team of nurses and doctors who acted quickly and efficiently and fought for hours to give Gus this opportunity. They persisted, and God has blessed these efforts and answered our prayers. May God be glorified. Praise the Lord.
Please join us in praying for his continued stability tonight. Pray also that after everything he's been through today, inflammation and infection can be avoided. His new heart is still weak, especially the right ventricle. Time is the best thing for his heart now and we are hoping for it to come into full, healthy function in the days ahead. Not out of the woods yet, but thankful for God bringing us this far!
"But I have trusted in Your mercy; My heart shall rejoice in Your salvation. I will sing to the Lord, Because He has dealt bountifully with me."
Psalm 13:5-6

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@TCUMensGolf @PGATOUR God Bless. Take care of you and your team.
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