Lipodystrophy UK

Kicking off #ECLip2025 in Paris! #Lipodystrophy #RareDisease #Research #PatientAdvocacy

Ready to #RepresentPatients at #ECLip2025 in Paris. #Lipodystrophy #RareDisease #RaisingAwareness #PatientVoice #LipoSistersOnTour

March 31st was #WorldLipodystrophyDay but @rowett_abdn learn more about Lipodystrophy every day. Photographed are just some of the scientists who are researching treatments for this rare and debilitating condition with support from @diabetesUK @lipodystrophyUK @theBHF and more!

Today is #WorldLipodystrophyDay2025. #Lipodystrophy encompases a group of rare conditions characterised by a loss of #AdiposeTissue, causing severe #MetabolicComplications. You can find out more at lipodystrophyuk.org #TreatmentEquity #PatientVoice #StrongerTogether #WLD2025

Kicking off our Lipodystrophy Patient Day 2025!

All ready for our Lipodystrophy Patient Day 2025! We have a packed agenda tomorrow - Can’t wait. #Lipodystrophy #PatientSupport #RaisingAwareness #StrongerTogether #LipoSisters

I celebrated #RareDiseaseDay2025 in #ZebraStyle! Some wonderful colleagues joined me in bringing some joy& #Awareness to the office. We had great fun prancing about & entertaining the team! More importantly, we're helping #RaiseAwareness of #RareDisease, including #Lipodystrophy.

#ShowYourStripes #Care4Rare #Lipodystrophy #StrongerTogether #RareDiseaseDay #RaisingAwareness #PatientVoice

One week until #RareDiseaseDay! 🦓 On Feb. 28, we unite for the 300 MILLION people worldwide living with a #RareDisease. 💙💜💚 This is your moment to step up: #ShowYourStripes, share your story, and take action with NORD! Check out our social media toolkit and other resources here: bit.ly/49BBMmQ

Ready to represent, here at the “Connecting the Dots” first Oxford Rare Disease Student Conference 2025. #RaisingAwareness with the next generation of Clinicians and Researchers at @magdalenoxford #PatientVoice #RareDisease #Lipodystrophy

And that’s a wrap! Heading home. Fantastic meeting with some real progress made. Watch this space… #Lipodystrophy #RareDisease #PatientAdvocacy #PatientVoice

Ready for day 2! #Lipodystrophy #GlobalLeadersForum #PatientVoice #RareDisease #PatientAdvocacy #LipoSistersOnTour

Kick off day one of the Global Lipodystrophy Leaders Forum #StrongerTogether #PatientVoice #GlobalAlliance #patientadvocacy

Ready to represent! Flying towards the next Lipodystrophy Global Leaders Meeting where we’ll be discussing all things #Lipodystrophy and how we can make the biggest impact for #patients. #PatientAdvocacy #PatientVoice #GlobalAlliance #StrongerTogether #LipoSistersOnTour

Just nominated my favourite charity 💜😉 There is the option to nominate ⁦⁦⁦@LipodystrophyUk⁩, then other charities too if you have lots of favourites! Took me a few seconds 🤗 Please support us and share 😊 doinggoodleeds.org.uk/news/movement-…

Just nominated my favourite charity 💜😉 There is the option to nominate ⁦⁦⁦@LipodystrophyUk⁩, then other charities too if you have lots of favourites! Took me a few seconds 🤗 Please support us and share 😊 doinggoodleeds.org.uk/news/movement-…

Researchers have developed a ‘smart’ insulin (NNC2215) that switches on & off based on blood sugar levels, effectively lowering glucose without causing hypos. Created by an international research team, it uses a unique ‘switch’ mechanism to respond to changing glucose levels.

Working together towards a better future for patients! #lipodystrophy #research #diabetes #science

1/ As a professor from a severely under-represented intersectional background I sometimes get asked by mentees & peers how I deal with people’s & system bias adversely impacting me personally. So what works for me might not work for other but here goes: 🧵 #AcademicTwitter