Lisa's Legacy for ALS

Remembering Lisa with affection, admiration and love today on the one year anniversary of her passing. We honor her courage and legacy. Lisa you continue to guide and inspire. You are a Northstar shining bright for all fighting ALS. #endALS Join the fight at @iamalsorg

Fighting on while fighting ALS/MND. An inspiring story. bbc.com/sport/articles…

Want the latest on Clene’s CNM-Au8® Expanded Access Program for ALS? Join us March 12 at 5 PM ET for a live webinar with Dr. Jinsy Andrews and the Clene Inc. team. Hosted by the Sean M. Healey & AMG Center for ALS. Register: massgeneral.org/neurology/als/…

The Sean M. Healey & AMG Center for ALS has contracted with Keros Therapeutics, Inc. to design a new Healey ALS MyMatch trial evaluating rinvatercept (KER-065). Read the press release: massgeneral.org/neurology/als/… #ALSResearch #ALSMyMatch

BIG NEWS—Flag submissions are open! A personalized flag is the PERFECT way to honor those you love whose lives have been touched by ALS. Request a flag TODAY @ bit.ly/ALSflags

VectorY Therapeutics Announces First Participant Dosed in Phase 1/2 PIONEER-ALS Clinical Trial of VTx-002 in People with Amyotrophic Lateral Sclerosis (ALS) - businesswire.com/news/home/2026…

Please join us on Thursday, 2/12, at 5:00 pm ET for an expanded access discussion featuring James Berry, MD, MPH and representatives from Rapa Therapeutics. They will provide an update on the RAPA-501 EAP. Register: mgb-org.zoom.us/webinar/regist…   #ALSResearch #HealeyHope

How can researchers use statistics in clinical trials? This article highlights the approach researchers use in the HEALEY ALS Platform Trial, leading to faster trials. Read more: vox.com/future-perfect… #ALSResearch #HealeyHope

@alsadvocacy Thinking of you. ❤️

29 years ago this morning we lost Mom to the stinking ALS. The lack of progress we've made against this beast is simply not acceptable.

Scientists just cracked the multiple sclerosis code after decades of searching. Two specific gut bacteria are triggering the disease, and they've proven it using identical twins and mice. This changes everything we know about MS:

If you're in North Dakota, Alaska, or Hawaii and have received emails from ALS organizations to advocate for Act for ALS, please know that Act for ALS has provided us with a robust natural history study, and we need to fill it with YOUR data... all-als.org

ALL ALS is the natural history study that we have needed for years. NIH stepped up and established a study that has the breadth and depth to answer questions that have gone unanswered in smaller, narrower studies. all-als.org 1/

The 2026 ALS Scholars in Therapeutics applications are now open! In this 2-year program, scholars will gain experience in therapy development for ALS and benefit from mentorship by world renowned scientists and clinicians. Learn more: massgeneral.org/neurology/als/… #ALSResearch

Twice a month, we share helpful tips, resources, and information to help you navigate the road ahead. Sign up for our free newsletter at youralsguide.com/newsletter #ALS #ENDALS

Registration is open. The 9th annual... MoreThanOurStories - Feb 10-11, 2026 In person Washington, DC or online. A different kind of public policy conference. morethanourstories.org #kickALS All are welcome.

It is indeed an honor to publish @RealEricDane’s new memoir about his account of being diagnosed with ALS and how he is dealing with it. I’m so humbled and honored that he chose The Open Field to publish his important story, an imprint known for publishing bestselling books that rise above the noise and move humanity forward. I cannot wait for the world to read his story and learn more about his intention and his goals. Thank you for entrusting me with your story, Eric! #theopenfield apnews.com/article/eric-d…

#ALLInForALLALS #ALLALS #ALS #HealeyHope #ALSResearch

Please join us on 12/11 at 5:00 pm ET for a brief presentation and Q&A session on Expanded Access Protocols (EAPs). This week, we are featuring Nicole Johnson and Kate Nycz, who will share their insights on EAPs. Register: mgb-org.zoom.us/webinar/regist… #ALSResearch #HealeyHope

#ALS steals movement, speech, and breath… but it hasn’t stolen my will to make noise. Please RP to help raise my voice and end this horrific disease. 💙 #ALSAwarenes