LivJoy Foundation

We’re continuing to recruit mothers with the full mutation/fragile X syndrome -- learn more here: scfamilystudy.com/research-study… With thanks to funding support from @canresearchSC and @LivJoyFdn🦋💗

🦋 💜 LivJoy Foundation is excited to announce the Females with Fragile X Syndrome Webinar Series presented by @NFXFoundation - a dedicated focus on girls and women with FXS, whose unique needs often go overlooked. 🦋 💜fragilex.org/resources/webi…

See this Instagram post by @nfxfoundation instagram.com/p/DNfoYtIvdQP/…

Delighted to share that I’ve started my role as a Postdoctoral Fellow at @USCArnoldSchool, funded by @LivJoyFdn, to further research focused on representing girls and women with fragile X syndrome. Learn more about their story and mission here: livjoy.org 🦋💗

We are proud to announce our partnership with University of South Carolina Arnold School of Public Health in creating the LivJoy Postdoctoral Fellowship to study females with fragile X. x.com/USCArnoldSchoo…

As parents of two daughters with fragile X syndrome, Brian and Rachel Clouse created @LivJoyFdn to help girls and families like theirs by supporting programs and research 🦋 ow.ly/mwrQ50R39Yq #ArnoldSchoolImpact #FragileX

sc.edu/uofsc/posts/20… #fragilexsyndrome #fragilex #fragilexgirls

Volunteers from #TeamWally, LivJoy Foundation & friends of FRAXA united at TD Garden for the 7th Boston Bruins 50/50 event. Thanks to all for launching new #FragileX #research this spring! 🏒💪 #TeamUnity #BostonBruins #FXResearch fraxa.org/celebrating-te…

The 50/50 raffle pres. by @DraftKings will support FRAXA, whose mission is to find effective treatments and ultimately a cure for Fragile X syndrome, now through the 3rd period of the game on 1/15. Three-game carryover jackpot ends 1/20. Tickets 🎟️: bbru.in/3PkVU4l

It’s World Fragile X Day. Thanks to Cape Cod Children’s Museum for helping LivJoy Foundation raise awareness of Fragile X.

On #InternationalWomensDay the following resources on our website provide an insight into the educational and emotional issues experienced by girls and women living with #fragilex, and the challenges they can face. Contact us for tailored support: fragilex.org.uk/girls-women-re…

See this Instagram post by @fraxsocal instagram.com/p/CpdYO6sPZ63/…

Common myth/ misunderstanding: Fragile X Syndrome only affects boys/men. #DayoftheGirl #internationaldayofthegirl youtube.com/watch?v=cW1V2_…

Females and Fragile X Syndrome — Webinar Replay fragilex.org/fxs/females/we…

#FragileX affects males & females differently. Recent studies found learning differences in both mice and humans. A team at UC Irvine funded by #FRAXA is exploring these differences to design optimal treatments for all. #FXResearch fraxa.org/sex-specific-l…