Kerry Longmore

Join us at our AGM next week – all welcome! Hear updates from leading experts: 👨‍⚕️ Stephen O’Neill on NIKRF research 👩‍⚕️ Dr Aisling Courtney on transplantation in NI 📅 Wed 17 Sept, 7pm 📍 Seminar Room, Level 11, Belfast City Hospital Light refreshments served – see you there!

Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. Researchers at #UCD want to understand your experience to create positive change. Please complete this short survey to have your voice heard: …althandagriscience.fra1.qualtrics.com/jfe/form/SV_7R… #RareDiseaseNI

Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. Researchers at #UCD want to understand your experience to create positive change. Please complete this short survey to have your voice heard: …althandagriscience.fra1.qualtrics.com/jfe/form/SV_7R… #RareDiseaseNI

You are all invited to a Family Fun Day in honour of Belle-Rose, in aid of the kidney research team. #RARDTAC #kidneyresearch #RAiN #RenalResearchni #LightingTheWay #RareDiseaseNI #RareDisease

That's us ready to go.... @balmoralshow Kidney Disease ...We Got This! Stand 49 Eikon Pavilion #LightingTheWay #kidneyresearch #kidneydisease

@PatientClient eventbrite.com/cc/regional-re…?

❕40,000 people in NI live with a chronic neurological condition 📣 Take the opportunity to share your views on analysis, findings and proposed recommendations in the final report of the Regional Review of Neurology Services 🗣️Registration also open for public engagement events

We did it! Team @CPH_QUB completed the Belfast Marathon in support of @NIKRFcharity – raising £500 and counting! Huge thanks to our amazing team, @QUBelfast charity committee, all at CPH (staff & students), and Susan from NIKRF for your incredible support!

@NicolaAnnWard @CPH_QUB @NIKRFcharity @QUBelfast @dlogan411 @EHCassinelli Fabulous team @CPH_QUB this is amazing!!

On the 7th of May, we mark #CystinosisAwarenessDay with some of our wider, global cystinosis community 💛 How can you help? Share this post to help us raise awareness 📢 #CystinosisAware 🌏

Calling those that care for someone with a rare condition. You are warmly invited to attend Caring with Rare: The Soft Launch of the Rare Disease Carer Support Tool 4th April, 9.30-1.30 pm, Riddel Hall, Stranmillis. events.humanitix.com/caring-for-rar…

Calling those that care for someone with a rare condition. You are warmly invited to attend Caring with Rare: The Soft Launch of the Rare Disease Carer Support Tool 4th April, 9.30-1.30 pm, Riddel Hall, Stranmillis. events.humanitix.com/caring-for-rar…

Calling those that care for someone with a rare condition. You are warmly invited to attend Caring with Rare: The Soft Launch of the Rare Disease Carer Support Tool. events.humanitix.com/caring-for-rar… @qubengagemhls_d @a_j_mcknight @Christinezoo @NI_RDP @CarersNI @22q11Ireland

Please help @thedaisygarland this Purple Day (worldwide #epilepsy awareness day, March 26th) by joining us in raising epilepsy awareness and much-needed funds for our vital work 💜 Thank you x thedaisygarland.org.uk/Appeal/purple-…

The LifeArc Centre for Acceleration of Rare Disease Trials, would like for you to join their Lived Experience Advisory Panel to help deliver a new approach for Rare Disease trials: lnkd.in/eM9Gzm-G rarediseasetrials.org.uk/leap-applicati… #raredisease #patient #patientinvolvement

The LifeArc Centre for Acceleration of Rare Disease Trials, would like you to join their Lived Experience Advisory Panel to help deliver a new approach for Rare Disease trials: lnkd.in/eM9Gzm-G rarediseasetrials.org.uk/leap-applicati… #raredisease #patient #patientinvolvement

The LifeArc Centre for Acceleration of Rare Disease Trials, would like you to join their Lived Experience Advisory Panel to help deliver a new approach for Rare Disease trials: lnkd.in/eM9Gzm-G rarediseasetrials.org.uk/leap-applicati… #raredisease #patient #patientinvolvement

The LifeArc Centre for Acceleration of Rare Disease Trials, would like for you to join their Lived Experience Advisory Panel to help deliver a new approach for Rare Disease trials: lnkd.in/eM9Gzm-G rarediseasetrials.org.uk/leap-applicati… #raredisease #patient #patientinvolvement