ME Research UK - Researcher Zone

Congratulations to @tinakatsaros on completing your PhD lab work, and good luck as you progress to the final stage of writing up your thesis! You can read more about Tina's @MEResearchUK -funded PhD level research here: meresearch.org.uk/research/cause…

"Deficient TRPM3-linked mitochondrial Ca2+ influx in natural killer cells associated with myalgic encephalomyelitis/chronic fatigue syndrome" Magawa et al., BMC Immunology (2026) link.springer.com/article/10.118… #MECFS #MEresearch

NHS Digital has introduced a SNOMED CT UK code for very severe ME/CFS. Until now, medical record codes existed only for ‘mild’, ‘moderate’, and ‘severe’ ME/CFS, but not ‘very severe’ ME/CFS. However, all still under "Chronic fatigue syndrome (disorder)"- tinyurl.com/y3wrh3ru

"Central noradrenergic deficiency in post-infectious chronic fatigue: neurobehavioral correlates" Aregawi et al., (2026) academic.oup.com/braincomms/adv… #MECFS #MEresearch

"Human Endogenous Retroviruses in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Emerging Roles in Pathogenesis, Immunity, Biomarkers and Therapeutics" Perera et al., International Journal of Molecular Sciences (2026) mdpi.com/1422-0067/27/1… #MECFS #MEresearch

Many congratulations to Hollie Byrne, Sarah Knight and the team at Murdoch Children's Research Institute whose paper on hypothalamus connectivity in adolescent ME/CFS was recognised as a top viewed article in the Journal of Neuroscience Research. bit.ly/4erLnPk

*Funding scheme which may be of interest to ME/CFS researchers* @NIHRresearch Pre-Application Support Fund (Cohort 9) - "offers extra support to prepare a competitive application for an NIHR career development award" Closes 16th July. More info: nihr.ac.uk/funding/pre-ap…

*Reminder* PolyBio's 2026 Spring Symposium takes place tomorrow, 22nd May. Info: polybio.org/2026-spring-sy… #MECFS #longCOVID #MEresearch #PAIS

"The fatigue enigma: towards an integrative theoretical framework across clinical conditions." Davies, J. L et al. Fatigue: Biomedicine, Health & Behavior, 1–14. tinyurl.com/5tu9h6nd

Today marks Clinical Trials Day! Every new drug or improved treatment, every life saved or made better through health or social care. They all happen because of people like you taking part in research. Together, we can help research go further, faster - developing life-changing treatments for ourselves, our loved ones and everybody. Whatever your age, gender or background, we can all be part of research. ❤️ Sign up to #BePartofResearch ⬇️ bepartofresearch.nihr.ac.uk/join?utm_sourc…

For those who missed it last week, a reminder @MEResearchUK are inviting ECRs to discuss heterogeneity in research populations for the 2026 Founders' Science Writing award. Info: bit.ly/4tHXlwr #MECFS #MEresearch #ScienceWriting #Competition

Pre Print - "Biological Insights from Genome-Wide Association Studies and Whole Genome Sequencing of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" Maccallini P. 15 May 2026 - tinyurl.com/2swwxj94

*Patient perspective article* "A Perspective on Observation as Intervention in Chronic Diagnostic Complexity" Caroline Niederman. Journal of Patient Experience (2026) #MECFS #MEresearch

ME Research Funded Research - "Endogenous Retroviruses in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Emerging Roles in Pathogenesis," Perera, K.D. et al. Immunity, Biomarkers and Therapeutics. Int. J. Mol. Sci. 2026, 27, 4309. tinyurl.com/sub87mmb

"Sleep in myalgic encephalomyelitis/chronic fatigue syndrome shows marked night-to-night fluctuation under free-living conditions—results from a matched case-control study" Saurel et al., Journal of Clinical Sleep Medicine (2026) #MECFS #MEresearch

"Myalgic encephalomyelitis/chronic fatigue syndrome and menopause: a scoping review." Humphreys, G., et al. Fatigue: Biomedicine, Health & Behavior, 1–9. tinyurl.com/2wx87bvj #MECFS #MEresearch

"Plasma Extracellular Vesicle Surface Marker Profiling Reveals Immune Cell–Associated Mitochondrial Membrane Potential Alterations in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" Ikeda et al, Open Forum Infectious Diseases (2026) #MECFS #MEresearch

Yesterday the Government announced £4.75m funding for Sequence ME - tinyurl.com/yd2xj9ju - which will bring cutting edge technology to bear on 6,000 samples and refine the results of DecodeME.

Article by Dr Nicola Clague-Bake and Dr Michelle Bull entitled "Do no harm: supporting people with ME/CFS" published in Frontline, the physiotherapy magazine for members of the chartered society of physiotherapy. csp.org.uk/frontline/arti… #MECFS #MEresearch

*Pre-print* "“Don’t confuse your tired with my fatigue”: A content analysis of TikTok media relating to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID" Johnstone et al., (2026) PsyArXIV osf.io/preprints/psya… #MECFS #MEresearch #longCOVID