MNDA-EastKent
1.4K posts
@MNDAEastKent
MNDA-East Kent is a voluntary group supporting people living with MND and their carers.
50% of people with #ALS #MND die within 2 years of first symptoms. Riluzole improves survival by about 35% and is the only licensed disease-modifying therapy for this condition in the UK. Riluzole must be made available for people living with ALS / MND. theguardian.com/society/2024/j…
I'll be #Batting2EndMND at Tenterden Cricket Club's Annual Festival! Funds raised will support the East Kent MND Association's work providing services for people living with MND. Do book early as limited places!
We live in a digital world, but what happens to our digital life when we die? @JamesNorris, founder of @DigitalLegacyCo and @MyWishesApp, explores some of the options available to us. Read more: ow.ly/Nnkv50IUyfW #DyingMattersAwarenessWeek #InAGoodPlace #DMAW2022
If you have #ALS #MND please consider taking part in our short survey on non-motor symptoms. These are symptoms unrelated to muscle weakness. For example, cold legs, bladder problems, etc. Put together by @AliShojaie_KCL and @AhmadAlKhleifat surveymonkey.co.uk/r/Z9ZDJVL @mndassoc
If you have #ALS #MND please consider taking part in our short survey on non-motor symptoms. These are symptoms unrelated to muscle weakness. For example, cold legs, bladder problems, etc. Put together by @AliShojaie_KCL and @AhmadAlKhleifat surveymonkey.co.uk/r/Z9ZDJVL @mndassoc
