Motor neuron disease

The blood–brain barrier can be damaged and leaky decades after an athlete retires from contact sport. This leakiness seems to trigger a lasting immune response that is closely tied to cognitive decline go.nature.com/480ufQ7

#LeedsNews: Meet Frankie the therapy dog bringing comfort to patients at The Rob Burrow Centre for Motor Neurone Disease. Frankie is the latest team member to join the #RobBurrowCentreforMotorNeuroneDisease – and he’s paws-itively thrilled about his new role leedsstar.co.uk/health/meet-fr… #Leeds

trib.al/yB7wbv5 Rugby player diagnosed with MND at just 29 after noticing his voice change

Higgs Boson breakthrough was UK triumph, but British physics faces 'catastrophic' cuts bbc.in/4bNIdqW

Ex-football player says his MND is 'gradually getting worse' bbc.in/4d7X295

“We want to give people hope there will be end to this quite ghastly disease.” Evertonian Dr Usman Khan on his London Marathon target to raise vital funds for the Motor Neurone Disease Association. ✍️ ⬇️

‘Cryosleep’ remains the preserve of science fiction, but researchers are getting closer to restoring brain function after deep freezing go.nature.com/4uy7v3U

Jimmy Johnstone vs Terry Cooper England vs Scotland 22/5/71 'Jinky' died 20yrs ago today, taken by motor neurone disease aged just 61 😔 #MND #CelticFC #SCO

Close to a thousand school children have dunked themselves in icy water, breaking a world record in the fight against MND. #9News

"You have to focus on what you can do." Life advice from 2023 medicine laureate Katalin Karikó who is encouraging us all to focus on things that are within our control and pay less attention to what we can't control. For more life advice and to hear her life story, watch our full interview with her: youtu.be/X-jLB2cbdB8

'My son spotted I had MND before my doctors did' bbc.in/4aXjzUv

My husband thought his stiff leg was just a trapped nerve... our world fell apart when he was diagnosed with deadly motor neurone disease trib.al/r0VWMCo

Last week, we had the pleasure of bringing together leading experts from both the FTD and ALS fields for a workshop to kick off the development of new educational slide decks. The workshop focused on synthesising knowledge within and across these closely connected areas to draft high-quality educational materials, with launch planned for early autumn. As always, these resources will be free and accessible to everyone. Make sure to stay updated about the launch by signing up for our monthly newsletter: neurotorium.org/contact/ A sincere thank you to Prof. Eva Feldman (@EvaFeldmanMDPhD), Prof. James Rowe, Prof. Jon Rohrer (@jonrohrer), Assoc. Prof. Matthew Harms, Prof. Matthew Kiernan (@nervecentrals), Prof. Nortina Shahrizaila, Prof. Dame Pamela Shaw, and Prof. Steve Vucic (@SteveVucic) for your outstanding contributions and engagement.

trib.al/zb3JJTJ Rob Burrow Centre for Motor Neurone Disease: ROW4MND ocean rowers visit new Seacroft Hospital facility before Irish Sea challenge

There’s continued discussion about a perceived link between rugby & MND, but some commentary can miss key points from existing studies & data. MND research is complex & this is no exception. That's why we’re resharing this article to provide more clarity: myname5doddie.co.uk/whats-on/artic…

Rewards outweigh risk – I’d play rugby again, says MND sufferer Lewis Moody Former England player and World Cup winner taking part in hour-long documentary with Ben Youngs that explores links between concussion and brain health By @ElganTimes ⬇️ #Echobox=1772476062" target="_blank" rel="nofollow noopener">thetimes.com/sport/rugby-un…

Cyclists raise funds for Rob Burrow MND centre - full story ⬇️ bbc.in/4l39Wqt

Today Exeter City and Bolton Wanderers fans are paying tribute to Pete Eveleigh AKA Evo He suffered from Motor Neurone Disease There will be a 1 minute applause for him in the 33rd minute, will be missed by all his family, friends and the football community❤️ #ecfc #bwfc

Scotland will become the first UK country to trial a screening programme to detect Spinal Muscular Atrophy from birth. i.stv.tv/40vzLGf

🗣️ "I'm delighted and I'm honoured" Davy Zyw will be making history as the first man with Motor Neurone Disease to compete in the Winter Paralympics as a snowboarder.