Jon Rohrer

Great to be at @JPNDeurope meeting on digital technologies in frontotemporal dementia today. A jointly led meeting between @UCLIoN and Erasmus Medical Centre in Rotterdam - @rhianconvery Jackie Poos. EDiT-FTD is a 1 year programme to develop a roadmap for implementation. #endftd

You can still watch @Channel4's #LoveLossAndDementia doc. Prof @cathmummery discusses the causes of dementia & how researching younger brains can help detect the earliest signs of the disease & Prof. @jonrohrer discusses new drug trails. bit.ly/3YaAyMy

💙 Agnès' reaction to hearing Jordan may be able to get into clinical trials says it all for us. Investment in research brings us all hope for the future. #LoveLossAndDementia @Channel4

Tune into @Channel4 tonight at 10pm for @AnnaRichardso: #LoveLossAndDementia. This powerful documentary explores the huge impact of #dementia on families, featuring @jonrohrer (@UCLIoN) & @cathmummery (@drcionucl). bit.ly/47NUyrq

Great to be involved in this documentary along with @jonrohrer - an exploration of the impact of dementia on families including those at risk of developing a genetic form. Anna Richardson: #LoveLossAndDementia Tune in - 2 Oct, 10pm. youtube.com/watch?v=JHsRuj…

We are looking for a new postdoc to work on digital measures and trials in genetic FTD - come and talk to us at ISFTD @jonrohrer @LucyL_Russell #isftd2024

Arabella Bouzigues summarizes progress in ⁦@GENFI1⁩ at ⁦@AFTDHope⁩ Roundtable Meeting. Its longitudinal deep phenotyping is leading to biomarker discovery, validation & trials support - with essential input from participant, family and clinician ⁦⁦@UKRI_News⁩

CAS warmly welcomes Jonathan Rohrer @jonrohrer @uclhas #CASFellow and member of Johannes Levin's and Nikolaos @koutsouleris' #CASResearchGroup "Tools for Transnational Neuropsychiatric Research“. @LMU_Uniklinikum @DZNE_de @SyNergy_Cluster @LMU_SNAP

Talking all things type 1 diabetes with @BesserBesser (pinched your photo!), Alzheimer's with @jonrohrer and the brain with @n_j_davis at @newscievents Future of Medicine event

@PhoebeFoster_ and I had the pleasure of hosting the first annual GENFI Participant Spring Webinar 💻 Big thanks to our speakers and most importantly to all participants who joined & continue to participate in the GENFI study as without you this research wouldn’t be possible ☺️

Thanks to @UCL_Global and their funding support, @jonrohrer and @rhianconvery have set up a research site in Indonesia to help tackle frontotemporal dementia (FTD)▶️bit.ly/44tMOJH Applications are open (24 May - 21 June) for future projects🗓️bit.ly/3QwcOyj

Final programme now online for May 15th’s meeting - ftduk.org. From digital metrics (@rhianconvery) and novel pathology (@tammarynlashley) to TBK1 models, extracellular vesicles (@slfwlr) and TDP-43 (@ASanchezAvila), with novel therapies (@orchard_tx, @alchemabtx).

This year’s FTD UK meeting will be May 15th in Cambridge - registration is already open via the website ftduk.org. Programme to follow! Please join us. #endftd

Prodromal frontotemporal dementia can be tricky to identify with confidence, making the detection and study of early stages of illness especially difficult. New research diagnostic criteria for "MCBMI" have good accuracy @AlbertoBenussi @GENFI1 @allftd alzres.biomedcentral.com/articles/10.11…

'Altered plasma protein profiles in genetic #FTD – a GENFI study' Abbe Ullgren, Linn Öijerstedt ... Caroline Graff @GENFI1 @karolinskainst #FrontotemporalDementia #biomarkers #C9orf72 bit.ly/3QZ0OWt

The #CASResearchGroup "Tools for Transnational Neuropsychiatric Research" led by Nikos @koutsouleris & Johannes Levin @LMU_Uniklinikum has successfully started at Schloss Fürstenried. We look forward to welcoming the fellows of the #CASResearchGroup for their longer stays.

ISTAART PIA day has been fantastic…. And it was great to run the FTD PIA meeting this afternoon with a fantastic committee @LucyL_Russell @MC_Tartaglia @M_Malpetti and a great set of ECR talks - we even managed to start a mentoring scheme! #AAIC23

Team @FTDtalk are off to #AAIC2023 in Amsterdam. Please come and speak to us after our talks or at our posters to hear about the latest on FTD and @GENFI1. @immy_swift @aitanasogorb @mtmclarke @KeralaAdamsCarr @rhianconvery @PhoebeFoster_ @SGoldsmith0 @LucyL_Russell @BocchettaM

Thank you @jonrohrer and the whole @GENFI1 team and especially @BarbaraBorroni7 and Brescia team for the awesome @GENFI1 meeting in beautiful Brescia!🤩So happy to be part of #GENFI ! @UniOulu @Pohde_fi @OYS_sairaala @Oulu_Brain_Mind @FinFtd #C9orf72 #EndFTD

Congratulations to @BrainAppeal @RareDementia on their award winning Rare Space garden at the Chelsea Flower Show - raising awareness for non-memory led dementias like FTD. #endftd