MND Peer Support

#MNDPeerSupport study has now recruited 140 participants out of a target of 160. #thankyou to @mndassoc @mariecurieuk @LOROSHospice @UHSussex #research #carersweek

#MNDPeerSupport study has now recruited 132 participants out of a target of 160. #thankyou to @mndassoc @mariecurieuk @kingsmnd @UHSussex #research #carersweek

#MNDPeerSupport study has now recruited 128 participants out of a target of 160. #thankyou to @mndassoc @mariecurieuk @kingsmnd @UHSussex #research #carersweek

#MNDPeerSupport study has now recruited 124 participants out of a target of 160. #thankyou to @mndassoc @mariecurieuk @kingsmnd @UHSussex #research #AcademicTwitter #carersweek

#newday our #MNDPeerSupport study will continue recruitment until May 2025! 🎉 #trending We have now recruited 119 participants out of a target of 160. 🎯 #thankyou to @mndassoc @mariecurieuk @kingsmnd @UHSussex #research #AcademicTwitter #carersweek

#BreakingNews‌ @MND_PeerSupport recruits 100 #Carers of individuals living with #MND. Huge #ThankYou to @mndassoc @mariecurieuk @kingsmnd @WaltonCentre @RoyalStokeED @RoyalDevonNHS @UHSussex @SwanseabayNHS @LOROSHospice @LaneFoxResearch @severnhospice

Are you a carer of someone living with #MND? Are you interested in taking part in a #research trial to see whether #online #peersupport can reduce #stress levels and promote #wellbeing. Interested? Please contact us at peersupport@kcl.ac.uk. More details, rb.gy/scyv6s.

We are running a virtual peer-to-peer support programme for informal caregivers of individuals with #MND at risk of becoming or currently technology-dependent. Read more here rb.gy/scyv6s or email peersupport@kcl.ac.uk #RCT #peersupport

Do you look after patients with neuromuscular conditions? #NMD Please complete our survey to tell us what you think is important to measure in future studies on secretion clearance. Your voice is vital to make this work! delphimanager.liv.ac.uk/secretion_clea…

Are you living with a neuromuscular condition? Or are you caring for someone with #NMD? Please complete our survey to tell us what is important to measure in future studies of treatment to help clear mucus. Your voice is vital to make this work! shorturl.at/pvUW6

Do you care for someone with motor neurone disease? You may be able to join this @MND_PeerSupport study, which #PilgrimsHospices is supporting, or become a peer supporter for someone in need. For more info, email peersupport@kcl.ac.uk or click here: ow.ly/IO0t50JTJJH 💙

Our new preprint: ALS brain transcriptome-/proteome-wide association study (TWAS/PWAS) elucidates molecular mechanisms, highlights drugs reversing ALS risk profiles, and generates blood-based polytranscriptomic scores predicting ALS risk. tinyurl.com/2jdukhb6 (1/6)

Thanks for tweeting for us 👍. #MNDresearch #MNDcarers

#Branches & #Groups if you have @MNDPatients in need of an #AAC device Pls contact @MND_CommsAids or #MND Connect Helpline it's free and offers information & support on all aspects of motor neurone disease 📞 0808 802 6262 📧 mndconnect@mndassociation.org mndassociation.org/support-and-in…

What an amazing feat! Go Lennie! #fundraising #MND #TeamMND @mndassoc

Family carers have compassion in abundance! If you care for someone with #MND & are interested in finding out more about our virtual peer support #research trial please contact Rebecca at peersupport@kcl.ac.uk or follow this link rb.gy/scyv6s @DrEstherHobson @st_marg

We have the ‘Match Ball’ for the ‘Doddie Cup 555 Ride’ and we’ve taken it on tour. Anyone know where we are? #doddieaid2023 #mnd #doddiecup555 #dc555 #mndresearch #doddieaid

HELP REQUIRE D; Jordie now requires an Air Flow mattress and I am having trouble finding holiday cottages that have this, plenty with electric bed but not air flow mattress. MND friends can you help 🤞🙏❤️@mndassoc @MNDoddie5 @Rob7Burrow @DarbyRimmerMND

Are you a family Carer of someone with Motor Neuron Disease (MND)? We are looking for Family/informal carers of someone with MND for a research study of online peer support. To sign up: peersupport@kcl.ac.uk

@MalabikaDr @LaneFoxResearch @NgoShyuan @WillowKaty @JustinePilgrims @DoddieGump @MNDoddie5 @MNDsessex @MNDNEWales @st_marg @trudi_mnd