MPN Research Foundation

Why do some people develop #MPNs, while others never do? What we know so far comes from years of research.  Progress depends on funding science.  Your support makes research possible.  Invest in research: f.mtr.cool/ceovjffdiw

What defines meaningful progress in MPN research? Clinical endpoints and perspectives that shape them. At #MPNRoundtable, researchers, clinicians, industry partners, and patients convened to align on how progress is measured. Patient-informed science moves the field forward.

Basic or pre-clinical research is the science that maps disease biology, tests ideas early, and identifies possible treatment targets. MPN Research Foundation is committed to this fundamental work.  Invest in research: f.mtr.cool/kkrjtokdcm #MPN #BloodCancer #CancerResearch

People living with #polycythemiavera are invited to share their experiences in a confidential 20‑minute survey conducted with The Harris Poll. Patient insights help inform future research and support needs. Take the survey: f.mtr.cool/xpxpnbhtfb #PV #MPNresearch

Introducing our brand‑new publication: MPN Global Clinical Trial Insights Digest. This digest offers accessible insights into MPN clinical research — including new studies, expanding trial sites, and an educational spotlight. Subscribe to learn more: f.mtr.cool/uvsujcnpef

Research linking #MPNs, treatment, and skin cancer risk is helping doctors improve screening and prevention. Support the science protecting patients today and improving care tomorrow. 👉Invest in research: f.mtr.cool/ifcufvkwho #BloodCancer #SkinCancerAwareness

MPN clinicians in the US: Have you requested your free Outreach Materials + Swag Kit for MPN PROGRESSion Registry® yet? Send us an email and we’ll ship one out! Email in comments.

For our founder Bob Rosen, MPN progression wasn’t abstract — it was personal. He didn’t live to see the Registry® launch, but it carries his vision forward. Invest in research: f.mtr.cool/bpeubshkke #MPN #BloodCancer #CancerResearch

The FDA has approved ruxolitinib extended‑release (Jakafi XR™), a once‑daily tablet for adults with #myelofibrosis and #polycythemiavera. Ongoing research helps clarify how new formulations may fit into MPN care. #MPNs #MPNresearch

Milestone reached! 500+ patients enrolled in MPN PROGRESSion Registry®! During Founder’s Week, no less. The achievement belongs to our entire community. Thank you for your trust, time, and dedication. Stay tuned! It’s only the start of our work toward PROGRESS over Progression.

Legacy isn’t just what you leave behind — it’s what continues to grow.  Today we honor our founder, Bob Rosen, and the mission he built.  Invest in research: f.mtr.cool/wmbyovbiyw #MPN #CancerResearch

We are led by those we’ve lost and by what they inspire us to build next. Tribute gifts honor loved ones while fueling research that moves the MPN field forward.  Invest in research: f.mtr.cool/xhkiltendk #MPN #CancerResearch

Governance and transparency are core to MPN PROGRESSion Registry®. Independent IRB oversight, HIPAA‑compliant data protections, scientific & patient committee guidance, and careful data‑use review keep research ethical, secure, and patient‑focused. f.mtr.cool/dlrzcirnxz

“They tried to support grants which were risky — work that probably wouldn’t be funded elsewhere.”  – Josef T. Prchal, MD  That courage built MPN Research Foundation.  👉 Invest in research: f.mtr.cool/rzixvircdb  #MPN #CancerResearch

New MF education module now live!  Animations, expert videos, patient stories, and shareable visuals make MF easier to understand for the MPN community.  Explore the module → f.mtr.cool/zkgienivbr #MF #myelofibrosis #MPN

New PV education module now live!  Animations, expert videos, patient stories, and shareable visuals make PV easier to understand for the MPN community.  Explore the module → f.mtr.cool/hzdffnkftc #PV#polycythemiavera #MPN

Dr. Janeana White is a physician, parent, and Patient Engagement Advisory Council member. She helps keep the MPN PROGRESSion Registry® focused on patients.  Take part in progress and enroll with Janeana. “You’ll be helping at the cutting edge.” Link: f.mtr.cool/pxesmpknoc

New ET education module now live!  Animations, expert videos, patient stories, and shareable visuals make ET easier to understand for the MPN community.  Explore the module → f.mtr.cool/mfksyrhhyh #ET #EssentialThrombocythemia #MPN

Fascinating research out of Italy by Biagioli et al.: Self-care in MPNs depends on more than engagement. The research shows improved outcomes when resources build self-efficacy — a patient’s confidence that they can manage their care.  f.mtr.cool/yivdqedhdq #MPN #MPNResearch

The March edition of ‘“Under the Microscope’” will hit your inboxes at 5PM CT today! Join our community to receive these stories and so much more with this link: f.mtr.cool/kxnkbogxlt