MPN Research Foundation

A heartfelt thank you to @_PharmaEssentia, our newest industry sponsor of the MPN PROGRESSion Registry™. Your support helps make this long-term, observational research possible, and we are very appreciative!     Enroll today: f.mtr.cool/ovhkabwosb

Congrats to Dr. Ann Mullally and colleagues on a new study clarifying risk in TP53-mutated #MPNs. By defining key factors that shape disease course, this work supports more informed monitoring. Learn more here: f.mtr.cool/eywgcckllz  #MPNresearch #bloodcancer

One week left! Join us March 19, 4pm CT for “Informed Consent”. This MPN pathways webinar explores the meaning of informed consent for patients in clinical trials, featuring Emily Largent, JD, PhD, RN. Register: f.mtr.cool/mfcbbnuxwn

Final reminder for MPN patients: The 2026 MPN Patient Unmet Needs Assessment closes March 18. If you haven’t yet shared your experience, your voice can still make an impact. 🕒 About 25 minutes 👉 Participate here: f.mtr.cool/gelenbyvle

#MPNnurses: Your expertise helps MPN patients feel in control, even when questions and worries about disease progression create uncertainty. Help share an opportunity with your patients that empowers them to contribute directly to future MPN research:  f.mtr.cool/drovejabfs

Living with an #MPN?  Your experience can help shape future research, education & advocacy around the world.  The 2026 MPN Patient Unmet Needs Assessment is open worldwide until March 18, 2026.  🕒 ~25 min  👉 Take the survey: f.mtr.cool/jnwjcvynhv

Today is #RareDiseaseDay! Together, we’ve raised over $77,000 to advance MPN research but there’s still time to make an impact.  Join us and donate today: f.mtr.cool/kkewckeuhx #MPN #SupportResearch #Donate

You’ve been thinking about enrolling in the MPN PROGRESSion Registry™ and want to know: Can it be trusted? Will my data be safe?   We are committed to protecting your privacy and ensuring your data is secure.   LEARN MORE: f.mtr.cool/wixvtxwfxk

95% of rare diseases lack FDA-approved treatments. Clinical trials are key — but most patients never hear about them.  This #RareDiseaseDay, help close the gap.   Donate today:  f.mtr.cool/xjberiqrzd #MPN #SupportResearch #Donate

Ever wondered what “informed consent” really means? Join us March 19, 4–5pm CT for an MPN Pathways session on how consent works in clinical trials and how patients can help improve the process. Register: f.mtr.cool/mfcbbnuxwn

Heart issues can signal undiagnosed blood cancer.  John thought stress caused his heart attack — until a biopsy revealed ET, a rare blood disease.  This #AmericanHeartMonth, help us fund research so patients get answers sooner.  👉 Donate today: f.mtr.cool/hnerslvcbp

The 2026 #MPNChallenge™ is here! We’ve already invested over $20M in high-risk, high-reward research to accelerate breakthroughs in ET, PV & MF and we’re not done yet.  Join our community & stay informed.   👉 Subscribe here: f.mtr.cool/bhyilsjwds

Fewer patients. More questions. For #MPNs, gaps in data mean delayed answers and care.  This #RareDiseaseMonth, help move science forward. Invest in research today: f.mtr.cool/tmbyxlnjsa

Med students learn: “When you hear hoofbeats, think horses, not zebras.” For rare disease patients, that mindset delays diagnosis.  This #RareDiseaseMonth, show your stripes and support MPN research.  👉 goto.mpnresearchfoundation.org/3Nj1xmb #MPN #RareDiseaseDay #SupportResearch #Donate

MPN Research Foundation invites #MPNpatients to take the 2026 Global #MPN Patient Unmet Needs Assessment, open now through March 18, 2026.   Take today: f.mtr.cool/oaybwezvtl prelim results in Summer 2026   Please share widely to help identify unmet needs worldwide.

2026 NCCN guidelines now list ropeginterferon alfa 2b njft (besremi®) as a category 1 preferred option for certain high-risk essential thrombocythemia (ET) patients! While use in ET remains investigational and under FDA review, more options are important for people with #MPNs.

Rare Disease Month’s theme this year is Equity. What do you think equity means in the MPN space? Comment here.

Learn about ongoing efforts in #MPNresearch and real-world data at our Feb. 10, 2026, webinar: The Importance of an MPN PROGRESSion Registry™ for Research Progress: Key ASH 2025 Takeaways. Register for this panel discussion today: f.mtr.cool/dvtggusati

Stephanie was just 16 when she was diagnosed with ET, a rare blood cancer. Today, she’s championing MPN research and patient education.  Join her mission this #RareDiseaseMonth.  👉 Donate today: goto.mpnresearchfoundation.org/3Nj1xmb #MPN #PatientVoice #SupportResearch #Donate

This observational research study will follow myeloproliferative neoplasm (MPN) patients for 5-10 years. It combines electronic medical records and patient reported outcomes to help researchers better understand MPNs. f.mtr.cool/asoivnxcbm