We are doing a “Show Us Your MALS Spirit” event this year for February 17th (MALS Awareness Day). We are hoping to showcase what helped people cope during their MALS journey.
Examples:
The National MALS Foundation in partnership with Osmosis and NORD created this video to provide accurate information on causes, symptoms, diagnosis, and treatment of MALS for clinicians/patients. Visit malsfoundation.org for more info.
youtu.be/z18MhxJFoMM via @YouTube
#COVID19 pandemic relate weight gain seems to be a very real phenomenon. 10# average or so across my pts pat few weeks. Has anyone seen research (perhaps from large admin or device databases) documenting this?
Median Arcuate Ligament Syndrome is now recognized by NORD. How are you treating and supporting patients? malsfoundation.org
hashtag#MALS hashtag#rarediseases
Leading experts In MALS Christopher Skelly MD and David Dickerson share some insight in treating MALS. Learn more by visiting the Journal of Vascular Surgery (2018) doi:… instagram.com/malsfoundation…
60s video insight from #VLF2019 on assessing #mortality in endovascular trials.
Dr Jeffrey Olin (New York, USA) says you simply cannot assess mortality in #endovascular trials that have included small numbers of patients. #paclitaxel
National MALS Foundation Established to Provide Hope and Support for Those Suffering with Median Arcuate Ligament Syndrome (MALS) pr.com/press-release/…