Prof Manjit Matharu

"Type 1 spinal CSF leaks in patients with SIH are mostly high-flow leaks that take, on average, 1.5 seconds to pass the ventral dural tear. DSM offers high temporal resolution and was ideally suited for detecting these leaks when used as a first-line investigation."

📺 Our trustee Dr Bern Hard featured on TV BBC Wales News! Raising awareness of #CSFLeaks and championing the need for better diagnosis and care for patients. 👁️ Watch from 2:00 - 4:23 mins: 👉 bbc.co.uk/iplayer/episod… Link expires at 6:28 PM GMT on 30/12/25 don’t miss it!

📣 If you've had transvenous embolisation to repair a CSF venous fistula in the 🇬🇧UK🇬🇧 ❗️And you would like to help ensure this procedure continues to be available to patients in the UK in future: 👉Please contact us today at office@csfleak.uk

It's a condition you may not have heard of - with truly devastating effects. Learn more about the reality of CSF leaks and why more research and funding is urgently needed. Watch the new documentary, which launches on 03 December via our YouTube channel. #CSFleak

Open Access: 🧠Persistent postural-perceptual #dizziness (PPPD) and vestibular #migraine (VM) share symptoms—but are they the same disorder? 📖This review explores their overlap, distinctions, & treatment implications 🔗…adachejournal.onlinelibrary.wiley.com/share/WGXERZKC… David Moreno-Ajona MD, PhD

@csfleakuk This work by the Queen square Csf leak is a testament to the resilience of our patients.

It was a pleasure to present the Queen Square CSF Leak Team’s work on management of ventral leaks and CVF at #EANS2025. #csfleak #SIH @SayalParag @Manjit_Matharu @sanjay_cheema @QSNeurosurgery @UCLIoN @csfleakuk @spinalCSFleak

🧠 Headache Academy Reflections A clear CSF leak thread ran throughout, culminating in Dr Cheema's brilliant overview of orthostatic headache syndromes. 🗣️ Precise leak site now located in most MRI+ve patients 🗣️ SIH curable in majority of patients Momentum building! 💙

I have spent decades calling for more minority Muslim representation in the corridors of power but if this is what it looks like, an eagerness to suck up to power and suppress dissent and opposition to genocide, then no thanks.

Love to see this progress 🙌🏼 Link to the @csfleakuk Clinician Facing SIH Guideline Infographics shown in the post ⬇️ csfleak.uk/news/clinician… #HeadacheAcademy #spinalCSFleak #CSFleak #NeuroX #Neurology @RCPhysicians @Manjit_Matharu

✨ Amazing day at Headache Academy! ✨ 200+ delegates & huge interest in CSF leaks — fantastic to see so many keen to learn Our new guideline infographic was a hit ⭐️ great to hear it'll be shared in clinics to raise awareness 👁️ 🙏 thanks to all who stopped by 💙 #csfleak

“Jewish people in that Manchester synagogue are not responsible for Israeli foreign policy - likewise Muslims going to a mosque are not responsible for what some crazy jihadist might do." "I 𝘸𝘪𝘴𝘩 we could separate the two things.” @maitlis | @jonsopel

🧠 Thrilled to be at #HeadacheAcademy - Royal College of Physicians London! 💡 Raising awareness of CSF leaks through patient experience & advocacy 👩‍⚕️ With neurologists, pain specialists, GPs & more! 💙 Work together to drive progress in CSF leak care! 💙 #csfleak #Neurology

🆕️ The Diagnostic Burden of Spontaneous Intracranial Hypotension: Imaging Volume and Specialists Involvement Prior to Diagnosis ✒️ @parnian_habibi et al. via @TheAJNR 🧠💧 #spinalCSFleak #CSFleak #SIH #CSFVF #NeuroRad #NeuroX ajnr.org/content/early/…

💥 #AAC2025: Bern surprised to be asked to join the Q&A panel to share about her story and the charity 🎤 No script just heart, powerfully raising awareness of SIH and the guideline. 👏 Huge thanks to Bern #standupforleakers 🫶 & to the chair and delegates for the warm welcome 💙

We have identified further cases of CVF with syrinx and recently presented our surgically treated series at the #Hydrocephalus2025 World Congress 🧠 @hydrocephalusso @csfleakuk @spinalCSFleak

🚨Our recent publication from the Queen Square CSF Leak Team of a CVF associated with a large syrinx successfully treated with surgical disconnection of the CVF 🧠 #sih #csfleak @Manjit_Matharu @SayalParag @AhmedToma13 @UCLIoN @QSNeurosurgery pn.bmj.com/content/early/…

🎥 Bern reflects on key moments from #Hydrocephalus2025 
We’re deeply grateful to everyone who contributed to this vital dialogue on CSF leaks, building bridges across disciplines and uniting clinicians, researchers, and patients to improve outcomes for those affected 💙

@SayalParag @spinalCSFleak @csfleakuk @csfleakinfo My son is proof of this, @SayalParag @Manjit_Matharu @csfleakuk multiple Venous Fistulas identified, fixed 🙏 Dr Parag & Prof Matharu and team in London listened to my son, his body, now slowly getting his life back & hopefully his career as a Jump Jockey, thanks to them all 🙏

🎥 Bern looks forward to the EANS–Hydrocephalus Society–CSF Leak Association Joint Session on SIH at #Hydrocephalus2025 📣 Bern will advocate and connect with clinicians driving change in SIH treatment