M. LUBINUS

Repurposing Drugs in rare diseases is a need to have program at the Rare Diseases Hub. Immune Idiopathic Myopathies would gladly benefit from such approach.We need to continue working on these from every technology angle.

@ColombiaOscura_ Porque si el dueño hace el phone kill para bloquear todo, todavía se roban los iPhones, podría alguien decirme, el celular se vuelve piedra

#PILAS. En Bogotá, este sujeto habría comprado un iPhone en la página web de Falabella con una tarjeta de crédito hackeada, la víctima recibió el reporte de la compra, fue hasta el lugar y encontró al individuo reclamando el dispositivo y lo confrontó con la ayuda de su pareja.

Look Mum no vaccines needed! The CDC 17 person comittee was fired today. I am forecasting that vaccines will be made optional and the states will no longer provide public health vaccination.The thing is if cancel all children vaccines for 20 years, we will see the consequences.

Interesting discussion on how to accelarate cellular and gene therapies with the new CBER and FDA management. Myositis needs new ways to treat patients, as long clinical trials with placebo have not provided new approved drugs except for IVIG. fiercebiotech.com/biotech/fda-ce…

@pons_sabate Jordi, también os agradecemos nosotros los que tenemos otras enfermedades degenerativas como la Myositis de cuerpos de inclusión, que también lentamente nos estamos quedando paralizados, solo hace tres años estuve en Barcelona y aún podía caminar sin ayuda. de corazón!

TE QUIERO Penélope Cruz ❤️ GRACIAS, GRACIAS Y GRACIAS vallhebron.org/ELA #PenélopeCruzEH

@DougWahl1 Will there be an App for this in the future? many of us, take drugs manufactered abroad and would like to know the cost of tariffs on those products.

SHOULD AMAZON SHOW THE COST OF TARIFFS? Amazon says it will begin displaying the added cost of Donald Trump’s tariffs on items. This has enraged the White House! Press secretary Karoline Leavitt called the move a “hostile and political act.” Your thoughts?

Really a very sad story affecting hundreds of thousands. ⁦@FDA⁩ How the FDA Helped Ignite, and Then Worsened, the Opioid Crisis bloomberg.com/news/features/…

Myositis Support and Understanding Medical binder and downloads for Myositis patients. #selfhelp #myositis understandingmyositis.org/downloads/

For a decade, @MyositisSupport has been a lifeline for patients, caregivers, and advocates - Now, we need YOU to help us continue this mission. 💙 Give $10 💙 Challenge 10 friends 👉 Donate today: bit.ly/msu10101! #MSU101010 #

@christine_rez See our patient-led paper on pain and myositis @MyositisSupport pubmed.ncbi.nlm.nih.gov/35579332/

@docrota Yes! The pain is absolutely indescribable, but interestingly so many doctors don’t recognize it.

Pain is often ignored in myositis - comes from active disease, muscle damage & pain syndromes. Pain is common in myositis and associated with disease activity, so treating disease activity is imp. academic.oup.com/rheumatology/a…

@yslburnerr @Level20EastGuy @DrEricDing Unfortunately you are thinking about leprosy

@Level20EastGuy @DrEricDing It’s can easily be traced by the local health department - treatable with antibiotics and requires several hours of close contact to spread.

⚠️Do you wonder why you haven’t heard much about this massive TB outbreak recently? Cuz the CDC can’t hold any press conferences or issue public statements of any kind. ➡️Most of the world 🌎 has been vaccinated against TB… but the US has not, which is now extra vulnerable.

@NancyBeigel @DrEricDing I am vaccinated

@DrEricDing I had no idea that a vaccine for TB existed.

@southern_WayMan @sam_d_1995 I had to sell my car when I lived there so I only took the train to Hoboken

@sam_d_1995 I don’t understand the logic, people still have places to go. BTW this hurts the poorest communities most. If you’re wealthy you don’t notice the fee and the roads are no longer filled with the poor people so it’s a win win for them

congestion pricing has accomplished what highway widenings never could: it has almost completely fixed New Jersey traffic approaching NYC. and it actually *raises* billions in revenue instead of costing billions

@acnewsitics Ira hard but we can get maga crédits for groceries

MAGA got played. 🤣

Anthem Backs Off Plans to Deny Anesthesia Claims After Public Backlash, Really sad that patients are placed at risk by the care organization supposed to assist them. Reform is needed. barrons.com/articles/anthe…

Here is a song done by Jerry King one of our Myositis warriors about his life with #IBM with a poem of his set to music. Mr king has created more than 120 educative videos educating patients and providing helpful resources #MYOSITIS #advocacy youtu.be/tOsoPVqINAs?si…

@orthohand Why are you surprised ?

When you #retire it rapidly becomes apparent that many people you thought were friends were merely acquaintances. You'll never see or hear from them again. The place where you work will forget you in a blink of an eye. Bear that in mind when you're expected to go above & beyond

he FDA’s Center for Biologics Evaluation and Research (CBER) Office of Therapeutic Products (OTP) is pleased to host this webinar on managing clinical trials as patients fda.gov/news-events/ot…

🦋 Today, on World Myositis Day, September 21st marks a significant moment for the global myositis community. A shout-out to all of you! WorldMyositisDay #MyositisAwareness #PatientAdvocacy#RareDiseases #PatientLedResearch