Maruzza Foundation

Perinatal Pallaitive care is starting in India! Great to see this amazing initiative ehospice.com/inter_children… @SpandanaRayala @twoworldscancer @CanuckPlace Supported by the Children's Palliative Care Leadership Program!

@DEBraybrook Thanks so much to all of our partner sites, children, families, @Tog4ShortLives , our great research team and to @ERC_Research for funding

Ann Goldman is the Honorary President of the Maruzza Congress. Working as the 1st PPC Consultant at GOSH, she is considered THE pioneer of Children’s Palliative Care. She is an editor of the Oxford Textbook of Palliative Care for Children. youtu.be/CBdTQr2EXMc

What should be included in a #PCOM for #children with #LifeLimiting/#LifeThreatening conditions #pedpc? @DrLucyCoombes led a #Delphi survey, #YPAG engagement & item generation meeting to gain consensus & develop initial versions of C-POS:UK. Full article: doi.org/10.1177/026921…

Listen to the leading PPC experts who will be at the 6th Maruzza Congress on the theme “Roots and Horizons" this Oct. Ulrika Kreicbergs, RN, PhD, holds the Louis Dundas Chair in Palliative Care for Children and Young People, at GOSH Ist, UCL, in the UK youtu.be/R-pjwX-aORk

Don't miss out! Presenting authors under the age of 35 years can participate in the Vlček Family Foundation Young Researchers’ Award for Excellence in Paediatric Palliative Care Visit the Congress website: childrenpalliativecarecongress.org/congress-2024/

The Maruzza Congress offers the perfect opportunity to share your research with an international audience of healthcare professionals, researchers and leading experts working in the field paediatric palliative care. Submit your abstract; childrenpalliativecarecongress.org/congress-2024/… #PPC

In this letter @RHardingCSI, @WolfePPC & @justinnbaker discuss the methodological challenges to developing valid & useful #PCOMs for #children with #LifeLimting conditions. They highlight the importance of South-North partnerships to share lessons learnt: doi.org/10.1089/jpm.20…

"Roots and Horizons - Learning From Yesterday, Living Today, Shaping The Future" The 6th Maruzza International Congress on Paediatric Palliative Care aims to address this theme. See the scientific programme childrenpalliativecarecongress.org/congress-2024/… Register now! childrenpalliativecarecongress.org/congress-2024/… #PPC

Our Neonatal Nursing Workforce MUST be supported & funded in dedicated roles, ensuring families have equitable access to choices & high quality Palliative & Bereavement Care #COINN24 @NNAUK1 @CNOEngland @louisewlowe @cwpluscharity @NeoPallCare @BAPM_Official @Blisscharity

To celebrate 25 years of activity, we are publishing a series of interviews. The first, with the former Italian Health Minster, Hon. Livia Turco, retraces the origins of law 38/2010 that guarantees access to PPC for thousands of children. fondazionemaruzza.org/en/encounters-…

The outcome of the PalliPed Project mapping the situation of dedicated paediatric palliative care (PPC) services in Italy has been published in the Italian Journal of Pediatrics (IJP). fondazionemaruzza.org/en/palliped-th…

Wishing all our friends, colleagues and supporters a very happy and peaceful Easter

buff.ly/3x80oG7 is home to Me and My Illness, an activity book developed for #kids aged 6-12 years living with life-limiting illness, to help them with their thoughts, feelings and questions. This resource is available for free download. @AWC_Grief buff.ly/3xbFjKT

Development of the Parental Experience with Care for Children with Serious Illnesses (PRECIOUS) quality of care measure dlvr.it/T3r0Pg

Children with cancer at the end of life in a middle-income country: integrated pediatric palliative care improves outcomes. #Research #StanfordQoLA🐨 pubmed.ncbi.nlm.nih.gov/38302931/

From the Chief Koala in person

@PalliativeMed_J Scoping Review: How Do Children With Medical Complexity Die? #utm_source=FastTrack&utm_medium=email&utm_campaign=jpm" target="_blank" rel="nofollow noopener">liebertpub.com/doi/full/10.10… Grace Mei Chan Ng et al #PalliativeCare #pediatrics

Share your research with an international audience of healthcare professionals, researchers and leading experts working in the field paediatric palliative care. Abstracts must be submitted by the 2nd of June 2024 childrenpalliativecarecongress.org/congress-2024/…