MPN-MATE RESEARCH FOUNDATION – Rare Blood Cancers

Evening All... 8-) Here is a latest Cycling Fundraiser Event... Spaces are 'Limited' to this "Fully Guided" 'No-Drop - No Pass' Professionally led cycling adventure in & around the mighty Hawkesbury River...

MPN-MATE RF is about to commence its next Cycling Fundraiser. To help pay the costs we are selling a rare Australia v. India Framed / Signed Cricket Bat Here's the Link: mpn-mate.com/mpn-mate-rf-au… We are hoping to raise $1,500.00 Thank you Steven

@InsidersABC @SenatorHume Jane needs NO rescuing, as Jane managed all of her responses w/adept articulation, Sam obviously has her own agenda to follow, in my view...

"We don't have policies. We're in Opposition." Does the Coalition support ending the fuel excise cut? @SenatorHume responds #Insiders #auspol

@SenatorHume Jane, you did NOT require rescuing by Samantha at all on Insiders. Not a Coalition supporter but admired all you had to say. Thank you.

@kangaroos991 David you did not exceed your mandate, given Sam's brazen retort. Admired Jane's responses completely. No need for a rescue by Sam, in my view... Thanks Insiders

WOW. David Speers is NOT going to like that the “horrible horrible” Twitter people are going to SHARE this!   So, you won’t RETWEET this, will you? #JustSayingWow  #InsidersABC

@kangaroos991 Sam, David was not unkind at all. Jane Hume managed her responses very well & did NOT need you to rescue her at all. You are so out of touch! Serving your own demons 1 feels...

@iluvthegong @ABCaustralia Thanks for your bravery Stan... I am not indigenous at all... However, I do have a few Koori friends. We used to go on surfing safaris before he died of pancreatitis in his early 30s. Chooky was such an incredible soul friend... I am 63 these days, I miss & still think of Chooky

After Queen Elizabeth II's death, Indigenous Australia can't be expected to shut up. Our sorry business is without end abc.net.au/news/2022-09-1… via @ABCaustralia

@johannhari101 Hey Johan... Saw Q&A & found your views on Lost Connections in community interesting 6 yr ago I was Dx w/ a rare blood cancer, Myelofibrosis (MF). At first overwhelmed, enveloped & eventually depression subsided... PLs reach-out to me mpn-mate.com

@power4patients Always happy to be learning that someone else out there is helping to Grow greater Awareness about MPNs... Thank you guys... Steve 😍😎

Five Tips to Participate in MPN Care and Treatment Decisions buff.ly/39oAySB #mpnsm #MPN

Interestingly, there are a number of studies that help to illuminate how the 'Nitrate' in Beetroot aids in replenishing the O2 within the blood, and helps to free restrictive endolitheal blockages... Great plant-based source! Super COOL Beets... 8-)

@LLSusa @MPNVoice @MateMpn @Incyte @ACS_Research February 28, 2022 is Rare Disease Day, which means it is the ideal time to raise awareness of the rare, chronic blood cancers known as myeloproliferative neoplasms (MPNs) I have BLOOD CANCER, so make a donation on my behalf.

@PatsKarvelas Dear Patricia, WHY is Australia's media not creating, (on a grandiose scale), the pictorial coverage a news worthy item of this magnitude deserves & desperately needs, especially, (w/ a Federal election soon due) Torres Strait Islanders & Sea-Level-Rise? Thanks PK

It was a pleasure to have a Ride w/ Frank after all his driving efforts to help me achieve this MPN Research Fundraising effort... You're a good man Frank...

Hey Rupert 8-) I completed the MPN-MATE Sydney to COFFS Ride 600km in 5 Days Didn't manage to raise much tho Must be a nice thing to attract so many sponsors Go Rupert GO! 8-)

@rupertguinness @guardian Hey Rupert You're amazing.Just completed SYD to COFFS 600km in 5 Days for MPN-MATE RF. Love to be joining you on your Ride. Steve

Thanks for the coverage @guardian. We start today! #powerofthepedal ‘It’s the journey, not the destination’: cycling writer rolls out on 4,900km odyssey | Kieran Pender theguardian.com/sport/2021/jun…

SYDNEY TO COFFS SOUVENIR APRIL 10-17, 2021

SYD TO COFFS a 139.0 km Ride MPN-MATE STAGE 5 Bad bruising on my lower back & almost one-armed Riding most of the time but still managed to complete my Final Stage today... So stoked... YAY! 8-) strava.com/activities/512… #strava

SYD TO COFFS a 85.9 kilometer Ride MPN-MATE STAGE 4 Bad day! Slid down our Cabin (timber polished) stairs Unfortunately, that incident caused me a number of issues: * Re-injured my left shoulder * Injured my back * Smashed my mobile, (write-off) strava.com/activities/512… #strava

SYD TO COFFS a 116.2 km Ride STAGE3 Late start due to Tech problems comms not charging Serene moment down the beach AM. Off to NRMAs Port MAC Resort 3 Days 340km & Epsom salt recovery bath before doing all again tomorrow to South West Rocks 😁😎 strava.com/activities/511… #strava

SYD TO COFFS a 124.7km Ride. 2ND LEG STOCKTON TO BLUEYS BEACH Unscheduled route saw this days climbing much bigger than the last... Not my original course but a good challenge all the same. Added a few lost kms too... Stage 3 tomorrow... 😎 strava.com/activities/510… #strava