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MedicsforRareDisease
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MedicsforRareDisease
@MedicsForRare
This account is no longer active, please continue to follow our work on Instagram and Bluesky! @medicsforrare
United Kingdom Katılım Şubat 2014
2.3K Takip Edilen5.2K Takipçiler
Today Helen is over at the @RCPCHtweets conference! If you see her make sure you say hello! #RCPCH2025
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MedicsforRareDisease retweetledi
Be #Ataxia aware at #Swansea #RareDisease Study Day - Saturday 8th March
Unlock the mysteries of rare diseases
booking link:
eventbrite.co.uk/e/swansea-rare…
@SwanseaUni / @MedicsForRare #SwanseaRDStudyDay
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MedicsforRareDisease retweetledi
Read the England Rare Diseases Action Plan 2025 gov.uk/government/pub…
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@LizTwistMP Thank you Liz for your unwavering support of the Rare Disease Community. We are glad you like your socks! #ShowYourStripes
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TODAY IS RARE DISEASE DAY! 🦓
Rare diseases are much more common than you think, affecting around 1 in every 17 people!
As a long time campaigner on doing more, today I have shown my love for those working in this field by wearing some lovely socks and my pin badge.
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MedicsforRareDisease retweetledi
Dr Daybell is also an ambassador for @MedicsForRare, a charity helping to drive rare disease awareness. Its campaign #ShowYourStripes on @rarediseaseday today encourages medics to wear stripey socks in support.
Read the full interview here: [5/5]
thedoctor.bma.org.uk/articles/life-…
#RareDiseaseDay2025
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Check out our Ambassador and Paralympian legend in this piece by @Seren_Boyd @ParalympicsGB #ShowYourStripes #RareDiseaseDay
The Doctor Magazine@TheDrMagazine
Table tennis star @KimDaybell was at the peak of his career and preparing for his third @ParalympicsGB games... But he shelved his sporting dreams to work full-time as a doctor in Covid and retired from his sport soon after. Has it all been worth it? @Seren_Boyd asks [1/5] thedoctor.bma.org.uk/articles/life-…
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@Seren_Boyd @TheDrMagazine @KimDaybell Thank you for using your platform to highlight the challenges face by the rare community but also how important this resilient community is to society and medicine 🤍🖤🤍🖤🤍
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I've had the privilege of meeting the #RareDisease community recently, thru reporting on @MedicsforRare for @TheDrMagazine and thru a relative's diagnosis
They're determined because they have to be, and none more than @KimDaybell, Paralympian, doctor, ambassador
#ShowYourStripes
The Doctor Magazine@TheDrMagazine
Table tennis star @KimDaybell was at the peak of his career and preparing for his third @ParalympicsGB games... But he shelved his sporting dreams to work full-time as a doctor in Covid and retired from his sport soon after. Has it all been worth it? @Seren_Boyd asks [1/5] thedoctor.bma.org.uk/articles/life-…
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@aishseedat @jamilaslegacy You all so wonderful! Thank you! You can send us your photos via this page mailchi.mp/m4rd/rdd25
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@jamilaslegacy proudly wearing their stripes for #RareDiseaseDay for @MedicsForRare #ShowYourStripes
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@GallowayAdam @Leeds_Childrens @NIHRresearch @LeedsHospitals @OCTRUctu @STEPS_Charity @LTHTPaedPhysio @NONSTOPPhD Ahh what great photos! We love the mix-n-match job - great work team. You can submit your photos to our gallery here mailchi.mp/m4rd/rdd25
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Happy #RareDiseaseDay everyone 💪
The physio team @Leeds_Childrens have donned our amazing socks to #ShowYourStripes 🦓
Thank you @MedicsForRare 🧦 🙏
Check out the blog below to find out more about our clinical trial in #PerthesDisease
ISRCTN: the UK's Clinical Study Registry@ISRCTN
In Q&A with Adam Galloway (@GallowayAdam) for #RareDiseaseDay, he discusses his journey and the Op Non-STOP Study, the first-ever RCT in Perthes’ disease #ClinicalTrials #RareDisease @MrDanPerry #ISRCTN: isrctn.com/ISRCTN83315571 bit.ly/4idjigU
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@Dr_FelixChan @UoB_Pharmacy So many great stripes here! And so happy to see our socks amongst them! You can submit your photo to our gallery here: mailchi.mp/m4rd/rdd25
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On behalf of @UoB_Pharmacy, we wish all a happy #RareDiseaseDay2025. Here at @UoB_Pharmacy, we engage in rare disease research and educate our next-gen pharmacists about caring for rare disease pts. Partnering with @MedicsForRare, we #ShowYourStripes in support of rare disease.
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@pamslater26 Glad to see the Zebra is such a fan of our socks, Pam! Thanks for Showing Your Stripes! You can submit you photo to our gallery here and find out what to do next: mailchi.mp/m4rd/rdd25
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@GivingVoiceUK @RCSLT Looks like this dog loves stripes nearly as much as we do! We would love to put this photo in our gallery - if you are happy for us to do that, could you consider submitting it here please? Thank you! mailchi.mp/m4rd/rdd25
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Today @RCSLT we’re showing our stripes for #RareDiseaseDay - because just like a zebra’s stripes, every rare individual’s journey and story is unique 🦓
Join us and #ShowYourStripes to raise awareness for people living with rare diseases on #RareDiseaseDay2025
Giving Voice@GivingVoiceUK
Today is #RareDiseaseDay. Rare diseases affect millions of people worldwide. SLTs provide vital care for individuals with rare conditions, helping them communicate. Explore @RCSLT's resources: 🔗 rcslt.org/wp-content/upl… For more information: raredisease.org.uk
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Dr Emma Huskinson is featured in the @Telegraph today about the Red Flags of Rare Disease study. While innovation in diagnostics and treatment march on healthcare professional training has been left behind. HCPs need to know when and how to suspect undiagnosed rare conditions
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@genomicsedu @rarediseaseday This is brilliant - so many lovely stripes! 🦓🦓 You can submit your photo to our gallery here: mailchi.mp/m4rd/rdd25
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We are participating in #ShowYourStripes for #RareDiseaseDay. Rare diseases are collectively common, affecting 3.5 million people in the UK. So, when you hear hooves, think zebras. Find out more about this day via: @rarediseaseday
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@Seren_Boyd @TheDrMagazine @UHSFT We're so glad we've been able to work with you Seren! Thanks for Showing Your Stripes!! You can submit your photo to our gallery here: mailchi.mp/m4rd/rdd25
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It's only in the past year I've understood the challenges of #RareDisease through a relative falling ill and my work @TheDrMagazine, specifically meeting the amazing @MedicsForRare
Huge thanks to the neuro team @UHSFT on #RareDiseaseDay from me & my relative #ShowYourStripes
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