Mike Matters

This weekend we’re at the @ActionDuchenne Conference. Stay tuned for updates on here and through Action Duchenne on Facebook!

Mike Matters at #ADConf17

.@AvrilKennan of @MRCGie - patients are experts too and they need to be involved in the medicines reimbursement process #access2meds

Last year Michael Young campaigned to get #Translarna in Scotland. This year he wants it in Ireland! change.org/p/simon-harris… #duchenne

At #Translarna briefing in @OireachtasNews We need 2 catch up with the rest of Europe Maith thú @conwaywalsh 4 facilitating

New: #ParliamentAdvocate4Rare, a network of EU & national members of parliament advocating for #raredisease ow.ly/liuF30fNw8R

This week @MDUK_News launched their new #FastTrack campaign for faster access to treatments. Sign the petition here change.org/p/theresa-may-…

#standwithlewis #Translarna Lewis and his family on TV tonight asking for medicine that is available in 22 European countries. tv3.ie/news_sub_page.…

@theSNP @MikeMattersDMD Michael Young (age11) is still walking and living life to the full after the SNP ensured he got Translarna, a life enhancing medicine. #SNP17

Fellow tweeters pls sign this so the boys Ireland can start receiving #Translarna every day counts, they need this drug now thank you 💙 twitter.com/MikeMattersDMD…

Please sign this petition. Little Lewis Harte is being denied Translarna. He is five years old and desperately needs this life enhancing medicine as quickly as possible. change.org/p/simon-harris…

Managed Access Programme announced for Exondys51 by Sarepta Therapeutics. Suitable for deletions amenable to exon 51 investorrelations.sarepta.com/mobile.view?c=…

Progress for VISION_DMD as trial sites expand internationally @BushbyKate @Vision_DMD @EU_H2020 #DMD #RD @findacure @trinds_nmd twitter.com/trinds_nmd/sta…

Cross Party meeting for Muscular Dystrophy on Wednesday focused on Adult Services @markichapman @h0pefulmummy @ActionDuchenne @jackiebmsp

What will you be doing for #RareDiseaseDay tomorrow?

I've volunteered a few hours each month. So, if you are interested in helping get in touch with Fraser 👇 twitter.com/cwafalkirk/sta…

Great to see so much support for today's @MDUK_News family fund Defeating Duchenne Kerr's Cause with #charity #football tournament

Please support Duchenne families in Ireland Here’s the link: change.org/p/hse-ireland-…

Our boy is home 22 nights in hospital taken off traction now has a cast on #brokenfemursucks #braveboy #beatduchenne #stillsmiling