MitoAction

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MitoAction

MitoAction

@MitoAction

MitoAction is a 501(c)3 charity, tax id 55-0899427, that provides support, advocacy & educational resources FREE for all those affected by mitochondrial disease

Boston, MA Katılım Haziran 2009
486 Takip Edilen2.5K Takipçiler
MitoAction
MitoAction@MitoAction·
Take a look at this week's support program schedule! We have four amazing support calls this week, you can register for any of these programs on our website today. mitoaction.org/calendar/
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MitoAction@MitoAction·
Today is Rare Disease Day! This day is about visibility, advocacy, and hope. It’s a reminder that no one living with mito is alone, and that every story shared helps build understanding and drive research. Today, we raise our voices for the millions affected by rare diseases!
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MitoAction@MitoAction·
Join us tonight for our February Wondering Wednesdays: Ask the Genetic Counselor! Click the link to learn more and register to join us at 8pm EST tonight! mitoaction.org/mitoaction-eve…
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MitoAction@MitoAction·
Join us tonight at 6pm EST for our February Men’s Support Call! Click the link or visit our website to learn more about this wonderful support program and register. mitoaction.org/mitoaction-eve…
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MitoAction@MitoAction·
Join us tonight for our CPEO & Me support call! Visit our website to learn more about this special space for CPEO patients and caregivers and register to join us at 6pm EST! mitoaction.org/mitoaction-eve…
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MitoAction@MitoAction·
Thank you to everyone who joined us yesterday for the MELAS PFDD Meeting. Together, we are elevating the voices of the MELAS community and driving meaningful change. The recording will be available in the next few days! mitoaction.org/join-the-cause…
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MitoAction
MitoAction@MitoAction·
There’s still time to register for the Writing as Healing Workshop next Sunday, February 15th! Join us for a supportive, creative session led by author Brad Buchanan, exploring the power of expressive writing. Click the link to learn more and register: mitoaction.org/resources/mito…
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MitoAction
MitoAction@MitoAction·
Today, we honor the life and legacy of Dr. Martin Luther King Jr., whose vision of justice, peace, and love continues to guide us. Through courage, he challenged racial injustice and worked toward a more inclusive, nonviolent nation where everyone could thrive.
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MitoAction@MitoAction·
Join us at 12pm EST TODAY for the 2026 Mito Town Meeting! Registration will be open right up until meeting time. If you are interested in joining us, head over to our website to register and learn more. We will see you all soon! mitoaction.org/resources/2026…
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MitoAction@MitoAction·
Join us next Friday for another Expert Series presentation! Dr. Sarah Chang will be helping us better understand TK2d and the approval of KYGEVVI, the first and only FDA-approved therapy for TK2d. Click the link to learn more and register! mitoaction.org/resources/expe…
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MitoAction@MitoAction·
Our January Mito Matters Newsletter is out now! Check it out to see what we have in store for the beginning of the new year. If you are interested in being added to our newsletter mailing list, click the link or visit our website to sign up! mitoaction.org/newsletters/ne…
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MitoAction@MitoAction·
Join us at 12pm EST for our first Weekly Support Call of the year! Click the link or visit our website to learn more and register to join us shortly. mitoaction.org/mitoaction-eve…
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MitoAction@MitoAction·
Join us tonight at 8:15pm EST for our first FAOD Support Call of the year! Visit our website to learn more, register, and join us soon! mitoaction.org/mitoaction-eve…
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MitoAction
MitoAction@MitoAction·
There is still time to register for the 2026 Mito Town Meeting! We cannot wait to hear from clinicians, pharmaceutical partners, and patient advocacy groups about what they have in store for this year. Click the link or visit our website to register mitoaction.org/resources/2026…
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MitoAction
MitoAction@MitoAction·
We are thrilled to be back this week with some amazing support calls! This week we have three support call options: the POLG Support Call, FAOD Support Call, and our Weekly Support Call. Visit our website to register for any of these wonderful programs! mitoaction.org/calendar/month…
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MitoAction@MitoAction·
We hope everyone had a great holiday season and we are so excited to be back to normal hours this coming Monday, January 5th! Check out or events calendar to see what we have coming up next week and the rest of the month! mitoaction.org/calendar/month…
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MitoAction@MitoAction·
Happy New Year! We can’t wait for another amazing year with our incredible mito community. Thank you for being part of the MitoAction family! We had such an incredible 2025, let's keep the momentum going in 2026!
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MitoAction@MitoAction·
Thank you to everyone who made this year one to remember. We are so grateful for our amazing community. As we head into the new year tomorrow, we wanted to share some cherished moments from events and programs throughout the year. We’ll see you in 2026!
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