MyAlternativeReality

980 posts

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MyAlternativeReality

MyAlternativeReality

@MyAlternativeR1

Age 50, Stage IV ovarian cancer, trying to see life without a future

Katılım Şubat 2021
103 Takip Edilen555 Takipçiler
MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
It's the time of year when I think back to this time five years ago. Bloated, diagnosed, terrified, in short order. Thanks to great NHS care both physical & mental, I'm still keeping going! #OvarianCancer
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@aliciaandrz sending you lots of love and strength. i don't know you, but someone very dear to me is on the same path as you, and i've seen their struggles at times. surround yourself with those who will support you and help you when the going is tough xx
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dr. alicia andrzejewski (she/her)
I would be more nervous abt managing election anxiety sober but I did it in 2016 because I was pregnant. I know I'm in a dangerous space though because I feel accomplished after hitting one year. I need to plan out meetings to attend, etc. who else is doing election night sober?
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
Onc anxiety is building up again. I was astonished when blood results 2 months ago were good; can’t help feeling that I won’t be so lucky in 10 days. Recurrence is inevitable - and overdue. Almost wish it would happen so I can stop worrying about when :/ #OvarianCancer
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@ohyouresotough Oh so much! It's not just the 10" scar down my abdomen, or the tablets I have to take every day to try and keep the cancer at bay a few more days/weeks/months. It's that my ankles have never recovered properly from the year of Avastin which trashed my joints, and now crunch!
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Chelsey Gomez | Artist & Cancer Community Advocate
It’s difficult to reconcile the often total loss of self, and control over one’s own body that comes with cancer. I just wanted to let you know that you’re not alone and some days are harder than others. Hugs 🫂🤍
Chelsey Gomez | Artist & Cancer Community Advocate tweet media
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
Every time we get an email that a former colleague has died - or in this case a colleague in a related unit - I think of how it will be when my manager has to send out the email about me. #FuckCancer @ThanksCancer
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@JaneyGodley Ugh yes! The only brave thing I’ve ever done in. My life was walking back into that chemo unit every time, knowing how crap I was going to feel, but desperately hoping it was worth it.
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Janey Godley
Janey Godley@JaneyGodley·
Sometimes I’m sick of cancer and what it does to me I am grateful- so grateful to the Scottish NHS and to every single person who supports me, but some days I’m done in with being “brave” fucking cancer does my head in - but I’m still alive and grateful
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
Teen’s Uni housemates were unwell the few days before we brought her home from Uni. Now all 3 of us have covid. It’s really really not over. We’ve been so careful for the past 3 1/2 years. I’m raging. 🤬
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@katievscancer I would wear my moomin T-shirt and one of my favourite comfiest pairs of hand-knitted socks. My chemo bag had everything I could want. But still walking through the doors to the unit was the biggest act of bravery. Every time. Sending you love and strength.
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@JaneyGodley Not strange at all. I took a work phone call in the chemo unit at one point - I’m not self-employed and someone else could have handled the query, but I knew it would be a 5 min convo for me or a heap of hassle for someone else to get the same info. You do what you can!
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@CherryMorrello I’m glad you’ve got a place on the unit now. I hope you’re getting the best possible care mentally/emotionally as well as physically xx
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Cherry Morrello
Cherry Morrello@CherryMorrello·
I got transferred to the MacMillan unit yesterday evening around 11 pm. I’m in a bay with 2 other ladies which is fine. Immediately I feel more relaxed which is good. I have however started with a cough. Not sure if it’s because the change in atmosphere or if it’s because of the
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
Ugh, it’s the weight of waiting again. Blood test on Monday for an onc appt tomorrow morning. I just want it to be over. I’m scared because I feel like recurrence is due, even without any symptoms. Gah. #FuckCancer
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@CherryMorrello Sending you lots of love. It always brightens my day, seeing your chatty updates- I can only imagine the pain and fear behind them on days like this. I wish you peace xx
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Cherry Morrello
Cherry Morrello@CherryMorrello·
I’m badly jaundiced and there’s nothing they can do to correct it. The dr told me today they don’t expect me to make Christmas and are trying to get me a bed in the MacMillan unit to make me as comfortable as possible. I’ve been accepted there just isn’t a bed available yet.
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@itsnot_pink @AMJohnston1315 @LesleyKailani Not to mention that people don’t have to go through painful, frightening or unpleasant treatment to try and avoid being hit by a bus. Or have regular doctors appointments and scans to tell them if their likelihood of being hit by a bus has increased or decreased… 🚌
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Joanna Murray
Joanna Murray@JoYogaFitness10·
What are you grateful for? My first answer is that I’m alive and I’m cancer free. 😊❤️😊❤️ @ThanksCancer #CancerFree
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@katievscancer @ThanksCancer @Ale_R_Flaca Absolutely! If some find it helpful to use warrior/battle terminology for themselves that’s fine. But I’m not a warrior. I’m me, trying to live my life as well as I can for as long as I can. I’m scared, I’m angry, I’m happy, I’m exhausted, I’m busy, I’m working… I’m NOT fighting
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@gotthegistofit Absolutely! My supervisor at Uni once described me as bloody-minded. I can’t say he was wrong… But brave? Nope!
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Chris J
Chris J@gotthegistofit·
Not all cancer patients are brave. Some of us are just stubborn.
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
@shitscaredmum I’m so sorry. I can only imagine your heartbreak every time. Sending you love and hope that you can somehow find comfort even in the heartbreak xx
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shitscaredmum
shitscaredmum@shitscaredmum·
It’s six month since Laura’s last night on earth & we probably miss her even more right now, as we try to cope with the reality that she’s never coming back. I borrowed her coat & found half eaten mints, tissues & poo bags in the pocket, just 1 of a million tiny heartbreaks 💔
shitscaredmum tweet media
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MyAlternativeReality
MyAlternativeReality@MyAlternativeR1·
I haven't really been on here since the big change, but miss my cancer peeps, so am cautiously coming back. Sad to see so many are no longer with us :(
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