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NECPAD

NECPAD

@NECPADOrg

Katılım Mayıs 2017
69 Takip Edilen37 Takipçiler
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Ajinomoto Cambrooke Metabolic Nutrition
#HCU NEW Homactin AA Plus Powder in Lemon Lime*! Request at samples.cambrooke.com or call 866 456 9776. You're RARE. We CARE. For every sample feedback card received, we will donate $10 to HCU Network America**. *Indicated for HCU. **Terms & conditions apply.
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NECPAD
NECPAD@NECPADOrg·
Message us for Meet-up link
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NECPAD
NECPAD@NECPADOrg·
NECPAD wants to invite everyone to attend our (FREE!) virtual meet up TONIGHT! Check out our Facebook page, for Facebook event. PLEASE RSVP as soon as you can so we know who is coming or email us at necpad.org@gmail.com. Zoom link will be posted and emailed at 6PM.
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NECPAD
NECPAD@NECPADOrg·
YOU’RE INVITED to attend our (FREE!) virtual meet up next Tuesday night! This will be an amazing opportunity for our rare community to all get together! Check out our Facebook page, we have a Facebook event posted PLEASE RSVP. The day of the call we will post the meeting link.
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NECPAD
NECPAD@NECPADOrg·
Join us in 2 weeks!
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NECPAD
NECPAD@NECPADOrg·
Do you know that your PKU story can have an impact on educating Members of Congress and galvanize their support for the Medical Nutrition Equity Act? Have you shared your PKU story? Do you want to make a difference? What are you waiting for? nutritionequity.org/share-your-sto…!
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NECPAD
NECPAD@NECPADOrg·
Fact of the day: Anyone with PKU or it's allied disorders can live a long normal life, if they stay on diet.
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NECPAD
NECPAD@NECPADOrg·
Fact of the day: While PKU isn’t deadly, most of it’s allied disorders are, either with brian edema or by long term effects that can cause death.
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NECPAD
NECPAD@NECPADOrg·
Fact of the day: PKU's Allied Disorders includes Organic Acidemia Disorders that has a range of disorders. To find a complete list and description of them visit oaanews.org/oa-disorders.h…
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NECPAD
NECPAD@NECPADOrg·
Fact of the day: PKU’s allied disorder, Tryosinemia (TRY), is when someone has a hard time breaking down the amino acid, tyrosine.
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NECPAD
NECPAD@NECPADOrg·
Fact of the day: PKU’s allied disorder, Homocystinuria, (HCU) is when someone has a hard time breaking down the amino acid, homocysteine.
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NECPAD
NECPAD@NECPADOrg·
Fact of the day: PKU's allied disorder, Urea Cycle Disorder occurs in people when there is a deficiency of one of the enzymes in the urea cycle which is responsible for removing ammonia from the bloodstream.
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NECPAD
NECPAD@NECPADOrg·
Fact of the day: One of PKU’s allied disorders, Maple Syrup Urine Disease (MSUD), is when a person is missing or has an BCKDC enzyme that is not fully active. As a result their bodies can’t breakdown the amino acids leucine, isoleucine, and valine completely.
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NECPAD
NECPAD@NECPADOrg·
Fact of the day: PKU is a genetic disorder caused due to the deficiency of an enzyme called phenyl alanine hydroxylase
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NECPAD
NECPAD@NECPADOrg·
Fact of the day: Most of NECPAD members are on low-protein diets. In many cases their diets includes medical foods and formula.
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NECPAD
NECPAD@NECPADOrg·
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NECPAD
NECPAD@NECPADOrg·
Happy Rare Disease Month! Check back here every day this month for facts and information about PKU and it's allied disorders.
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