NELFT - Paediatric Epilepsy Community Service

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NELFT - Paediatric Epilepsy Community Service

NELFT - Paediatric Epilepsy Community Service

@NELFTPECS

Paediatric epilepsy community nursing service, providing care to C&YP in south west essex. Part of the Roald Dahl Specialist nursing family. @roalddahlcharity

United Kingdom Katılım Aralık 2017
54 Takip Edilen111 Takipçiler
NELFT - Paediatric Epilepsy Community Service
their secretary. Please contact 999 if seizure activity lasts longer than 5 minutes or as directed in your child’s care plan. We are here to help with seizure advice & support, medications and prescriptions queries. I hope you are all keeping safe and well.
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NELFT - Paediatric Epilepsy Community Service
Please note that the epilepsy service is still operating Mon - Fri, 8 to 5, if you have any concerns regarding your child’s seizure please do not hesitate to contact the service on 0300 300 1521 opt 2, secure email nem-tr.nelftpens@nhs.net  or contact your Consultant or....
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RCPCH_and_Us
RCPCH_and_Us@RCPCH_and_Us·
Who doesn't love a #lifehack! Great to see this new digital resource for young people with #epilepsy co-designed by young people with epilepsy 💜 @Epilepsy_12 @drcolindunkley @DrRichJBrown @NELFTPECS @PENSteam @MirekQI @HQIP @sparklescot @PaediatricFOAM @Paedsinapod @RCPCHtweets
Young Epilepsy@youngepilepsy

Find life hacks. Share experiences. Get answers. Spread the word. Visit thechannel.org.uk today! #TheChannel 💜

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Roald Dahl Charity
Roald Dahl Charity@RoaldDahlFund·
Such a thrill to see the amazing Lara (star of our Christmas Appeal) play Tiny Tim in A Christmas Carol @oldvictheatre tonight with a marvellous group of #RoaldDahl Nurses and children and families they support!
Roald Dahl Charity tweet mediaRoald Dahl Charity tweet mediaRoald Dahl Charity tweet mediaRoald Dahl Charity tweet media
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NELFT - Paediatric Epilepsy Community Service
SUDEP is real and you are more at risk if you have sleep seizures. Medication concordance, trigger avoidance and attending clinic appointments are a must for reducing the risks. RIP Cameron, our thoughts are with your friends and family.
Epilepsy Foundation of America@EpilepsyFdn

We are very sad to hear about the passing of @DisneyChannel star #CameronBoyce. His family said Cameron passed away in his sleep due to a #seizure. This bright young actor was known for his roles in the Disney franchise #Descendants and TV show “Jessie." abcn.ws/329pAb3

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NELFT - Paediatric Epilepsy Community Service
#EpilepsyWeek #SeizureSaviour Its Epilepsy Awareness week, would you know what to do if you found someone having a seizure? We would love to hear your experiences if you have helped someone having a seizure. We can all be super heroes!
Epilepsy Action@epilepsyaction

Do you have a #SeizureSaviour? 💪Is there anyone in your life that helps you with your epilepsy? Has a stranger ever helped while you've had a seizure in public? Now is your time to share your stories. Drop them in the thread below 👇#EpilepsyWeek

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NELFT - Paediatric Epilepsy Community Service
Good morning all, this video is a perfect for showing what an absence seizure can look like and how easily they can be missed in a classroom setting in a busy environment. Thank you Alfie.
Epilepsy Action@epilepsyaction

Would you know what an absence seizure looks like? 🤔 Here is 7 year old Alfie with a powerful demonstration of what to look out for. For more information on absence seizures this #EpilepsyWeek head to epilepsy.org.uk/absenceseizures

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NELFT - Paediatric Epilepsy Community Service
On Friday I was at Roald Dahl specialist nursing conference, inspiring each other with transition success stories and looking at our services at what we could improve. So many ideas to put into place! Exciting times! Thank you @RoaldDahlFund for a fantastic marvellous conference!
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Irene O'Donnell
Irene O'Donnell@IreneodonnelO·
“I’m not a condition I am a person “ powerful panel presentation sharing young people and parents perspective of their health care transition experiences @RoaldDahlFund #MarvellousConf #TransitionOfCare
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Roald Dahl Charity
Roald Dahl Charity@RoaldDahlFund·
‘My son wanted choice and to be in control over his own life’ Powerful words from mum Karen sharing her personal experiences of her son transitioning from paediatric to adult services #MarvellousConf #TransitionOfCare
Roald Dahl Charity tweet media
Paddington, London 🇬🇧 English
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