TOFS

#OA / #TOF is more common than many people realise, yet awareness of its impact is often lacking. Let’s change that! Please share this post! Find out more about OA/TOF at: tofs.org.uk/what-is-oa-tof/ #oatof #tofoa #ea #tef #eatef #tefea 2/2

It’s OA/TOF Awareness Week. Did you know a baby is born with Oesophageal Atresia and Tracheo-Oesophageal Fistula (OA/TOF) in the UK roughly every other day? That’s around 180 babies a year, facing a condition with lifelong implications. 1/2

The TOFS Christmas Cards are back & every card you send helps us support those impacted by OA/TOF. For 1 donation, you can share your card with up to 100 people via email, WhatsApp, or Messenger. Support TOFS and send a card today: dontsendmeacard.com/ecards/chariti…

Corey, who was born with OA/TOF, led @wwfcofficial out at their recent match. To mark the occasion, Corey’s parents held a raffle with prizes donated by the club and raised just under £3000 to support those born unable to swallow. An amazing achievement! Thank you all😍

In a change to our advertised speaker, we are happy to announce that we will now be joined by the TOF Cough Prof himself, Professor Alyn Morice. Prof. Morice will be on hand to answer your questions on respiratory issues, in adults born with OA/TOF. us02web.zoom.us/webinar/regist…

Make double the difference this week! Can you help us support those born with OA/TOF? Donate before 12pm Monday (30th June) and your gift will be doubled - at no extra cost to you - thanks to Global’s Make Some Noise. go to: donate.biggive.org/campaign/a05WS…

It’s almost time! From noon on Monday till noon on the 30th June any donations made to TOFS will be doubled thanks to Global Radio’s Make Some Noise and the Big Give! Can you help us hit the £10,000 target? So get ready to double your donation! tofs.org.uk/double/

This week is National Volunteers’ Week, where we highlight the amazing work our volunteers do. Join us throughout the week as we celebrate the time and hard work our volunteers give at TOFS to help support our #OA / #TOF community. #VolunteersWeek

Don't miss next week's virtual meet-up for adults born with OA/TOF on Thursday, 5th June @ 8pm (UK) Register at: us02web.zoom.us/meeting/regist…

The latest video from our Bristol Seminar is now live! Watch Clare Skerritt, Paediatric Surgeon and Emma Griffiths explore the early years of OA/TOF care, share real-life surgical insights, and give an update on Surgical-PEARL project tofs.org.uk/oa-tof-informa…

Exciting News! We've been selected for The Big Give’s match funding campaign! Supported by Global Radio, the campaign is taking place during #SmallCharitiesWeek (23rd - 30th June) During the campaign donations will be doubled for free! Find out more at: tofs.org.uk/double/

TOFS Annual General Meeting Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. on the 24th April, 2025 by Zoom at 7:00 pm. Invited to attend: Council of Management, TOFS office staff, all Members and Associates tofs.org.uk/event/tofs-ann…

We’re hiring! Role: Communication and project support officer (UK) We are looking for a skilled communicator with experience in health-related content creation. tofs.org.uk/2025/03/vacanc… Please share this message with your contacts.

Calling all adults born with #OA/#TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF on 3rd April us02web.zoom.us/meeting/regist… This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share

Don't miss this week's virtual meet-up for adults born with OA/TOF. 6th March, 2025 , 8:00pm Sign-up: us02web.zoom.us/meeting/regist… This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories/experiences

As TOFS Awareness Week 2025 closes, we want to express our deepest thanks. You've shared, you've fundraised, you've told your stories & you've made a difference! This is an incredible #OA / #TOF community. But our work continues. Please keep sharing to help raise awareness.

A huge thank you to everyone who bought a ticket in our Winter Raffle. Together you have raised an incredible £2100 for TOFS. Are you a winner? Check the website to see. tofs.org.uk/2025/03/tofs-w…

Today is international #RareDiseaseDay. Join in the Global Chain of Lights and Share Your Colours tonight at 7pm & decorate your home with the Rare Disease Day colours. Find the video at: tofs.org.uk/event/rare-dis… Please tag us and use #rarediseaseday #tofs #lightupforrare

Did you know that we have a dedicated library of resources available for health professionals (inc. FREE digital copies of The TOF Book & The Soft Food Recipe Book)? If your health care team have questions on #OA / #TOF, share the QR or direct them to tofs.org.uk/library

Thank you Naomi & Rhi for sharing your OA/TOF story with the press. inyourarea.co.uk/news/young-swa… If you would like to do the same, we’ve produced a short press briefing about #OA / #TOF that you can use when speaking to journalists. Find out more at: #awareness" target="_blank" rel="nofollow noopener">tofs.org.uk/oa-tof-awarene…