N.I.Disability & Carers Group

@theeconlit @taramillstv @StephenNolan @BelTel @healthdpt And we know this is not the case. Staff are accessing as they wish who have nothing to do with healthcare.

@NIDisability @taramillstv @StephenNolan @BelTel @healthdpt That information should only be accessible by (1) essential staff and (2) that need that information to provide care. And when those essential staff access the information, they must have a legitimate reason. Too much is made about having full and complete information readily avl

Are you aware staff who have nothing to do with your young person's health records and medical notes can access everything on the My Care app and read info and then share with their staff? @taramillstv @StephenNolan @BelTel @healthdpt

@hollybunty Nothing changes been the same for years

“#Carers are being stressed, burnt out, & lacking support is a growing problem. The UK has around 6️⃣million carers. 1️⃣third are over the age of 65, & those carers are often in poor health themselves. Few receive any statutory support.” Care Act failure. bmj.com/content/392/bm…

@dunkingwithfish @taramillstv @StephenNolan @BelTel @healthdpt You can upload a copy of his birth certificate.

@NIDisability @taramillstv @StephenNolan @BelTel @healthdpt How do they access it? I am having problems setting mine up for my son as he has no ID obviously

@dunkingwithfish @taramillstv @StephenNolan @BelTel @healthdpt If your young person is in adult services all staff have full access to the app. You can check using the drop box on top left and click on my care team, you will see who is accessing and viewing the information.

@AlanStout19 It's currently happening young adults in daycentres staff are looking through medical notes and sharing with staff, a Trust is saying this is not a GDPR Breach, staff say they can access and share what they like.

@NIDisability I don’t know I’m afraid, encompass not used by GPs so it won’t be the GP record, and I don’t know a lot about app. Sounds concerning though

The government appears to be gearing up for fresh cuts and “radical” reforms that will increase the pressure on young disabled people to move off out-of-work disability benefits. disabilitynewsservice.com/mcfaddens-spee…

Parents 'traumatised' by SEND system, says mum bbc.co.uk/news/articles/…

"Between the beginning of August and the end of October 2025, there had been six incidents where observing nurses were found to be asleep whilst they were supposed to be continually observing a patient," the report continued. share.google/ZUivupIJfrhhE7…

Unpaid carers ordered to repay benefits despite DWP knowing rules were unlawful theguardian.com/society/2026/m…

Help announced for homes reliant on heating oil – who is eligible belfastlive.co.uk/news/northern-…

More than a quarter of consultant psychiatry posts in Northern Ireland are "effectively empty", according to the Royal College of Psychiatrists. bbc.in/4cKRJMv

🩺 The Health Minister met with GPs in County Fermanagh to hear about challenges and opportunities within their work. 🧑‍⚕️ Minister Nesbitt was also able to discuss the Neighbourhood model of care with GPs and staff.

How can we allow this in 2026? People are locked away just because they have a learning disability or are# autistic? @mencap_charity thank you for putting on this amazing exhibition highlighting the over 2000 people who are locked away. #HomesNotHospitals #TheFightForFreedom

Absolutely shocking

The lived experiences of our families cannot be silenced or hidden away. These stories deserve and will be heard openly and honestly. For the month of March, We will continue sharing direct accounts and quotes from those at the heart of this journey. #CovidInquiry #EvaluationRejected #CareChampions #Transparency

CCTV footage reveals staff assaulting patients at mental health hospital independent.co.uk/bulletin/news/…

Happy Mother’s Day to all the mums who are carers. 🌸 Your strength, love and dedication never go unnoticed. Thank you for everything you do every single day. 💜#HappyMothersDay #Carers

Breaking - Gp’s tell @BBCNewsNI that a service for older people @BelfastTrust has effectively collapsed. It follows the trust apologising to older patients after cancelling appointments, existing, new or follow up referrals to psychiatry of old age service. More on @BBCNewsNI