Neda Eftekhar

@netflix @NIHDirector @CDCDirector No healthcare for #severeME .Should have home health service, but died at 42, no hospice. #afflicted

@jenbrea Government in general. The hoops you have to jump through applying for SSDI are exhausting and very difficult to do if you're ill. Then after all that you get a denial letter saying you can work when you so clearly can't.

Institutionalized ableism? Check. Welfare spending, scientific research, the medical system, public access, hiring & employment, consumer design, the media. We don't even do the minimum rational, in everyone's self-interest stuff yet.

Guys, I just learned that *A LOT* of people are ableist. 😲

#Afflicted is what happens when money-driven, able-bodied people try to make a documentary about the severely chronically ill #IamJamison #IamBekah #IamJake #IamJill #IamStar #IamPilar #IamCarmen

@JessicaXDiamond There's a steep learning curve and even long timers learn something new every day, so just focus on the bigger picture for now, so you don't get overwhelmed, crash and burn. You will learn as you go and as you do it will get easier Context: 12 years veg, most of them vegan

Preying on the severely ill to make a buck is NOT ok #IamJamison #IamJake #IamBekah #IamJill #IamCarmen #IamPilar #IamStar #Afflicted #mecfs

@Jamiejhagen @jenbrea @netflix Here: change.org/p/netflix-remo…

@jenbrea @netflix Is there any push to get this series removed from @netflix considering it so misrepresents the stories of those featured?

Participants in @netflix's #Afflicted speak out. We were all told that we would be participating in a project that would show our lives and our struggles with illness through a “compassionate lens.” @afflicted/the-truth-behind-netflixs-afflicted-92e92d32cd7c" target="_blank" rel="nofollow noopener">medium.com/@afflicted/the…

@NLizaki Whoa! Are you in Iran?

Why the docu-series #Afflicted is harmful to people with chronic illness: themighty.com/2018/08/afflic… #MECFS #pwME

@Hippiechickie36 Confused as to why you're in such a huff over people being upset about this film. What do you gain by berating the severely ill and their allies?

Petition to remove #Afflicted from Netflix: change.org/p/netflix-remo… #mecfs #pwme

@NotTheWhiskey This petition to remove Afflicted from Netflix has received nearly 2,000 signatures in the two days it's been up: change.org/p/netflix-remo…

@freeandclear1 @SukiSMiller @KaivanShroff @palmbeachresist @AMarch4OurLives I'm getting that too (boxes with X's). Perhaps someone could translate?

@MEflattened @jenbrea @JanetDafoe cont'd... The fact that they are likely mostly younger (it's mainly residents and some med students) means they're not set in their ways yet, so there's probably a better chance we could get through to them

@jenbrea @NedaEftekhar Thanks, Jen. The mocking of patients by Drs sickening. See esp “NoFlyingMonkeys,” MD, PhD at Univ, particularly horrible (click on all “addl comments” so you don’t miss anything by this hateful human).Even calls Ron Davis’s research wrong as patients “deconditioned.” @JanetDafoe

If nothing else, #Afflicted drives home that the destigmatization of "mental" illness and "physical" chronic illness are inexorably linked. The dismissal of autoimmune/allergic/neurological conditions is possible in part BECAUSE it's socially acceptable to call people "crazy"

@MEflattened @jenbrea @JanetDafoe He's really arrogant for sure. I think I was so shocked because these doctors are young (or at least young to the profession), and with medicine moving towards a more collaborative model I expected them to be a bit less arrogant and close-minded.

@jenbrea @MEflattened Your reply hit it out of the park. Thanks for chiming in!

@MEflattened @NedaEftekhar OK, finally broke down and made a comment: reddit.com/r/medicine/com…

@jenbrea Just saw your amazing comment on the subreddit. Thanks for making it.

@NedaEftekhar Thanks for fighting the good fight! 👊

@jenbrea Thanks, Jen. I do what I can.

@Saturnation8 @jenbrea Yes, a few acknowledge it is real. A couple more say it *may* be real- not because they believe us, but because there is a lot of research to support it. The arrogance of doctors who will only consider that something is real if there is research to support it!

@jenbrea @NedaEftekhar And it's not just patients chiming in. I'm sure the majority of doctors are getting this wrong, but that's not EVERY doctor thank goodness. reddit.com/r/medicine/com…

@jenbrea Totally understand. I left a comment and at least one other me/cfs warrior has done the same. Hopefully they will read them and see how damaging their attitudes are

@NedaEftekhar Yeah, I'd rather not. Real life medical interactions are already harrowing enough.