What a fantastic evening of networking and discussing advance care planning in MND. Great to share experiences and exchange ideas. Thanks @drcarolinebarry and Dani Ayre for leading us through this important area of practice
English
Norfolk MND Network
134 posts
Norfolk MND Network
@NorfolkMND
The official twitter feed for the Norfolk MND Care and Research Network
Katılım Eylül 2016
59 Takip Edilen126 Takipçiler
@mndassoc @mndcampaigns Thank you, Sue, for your unwavering commitment and tireless campaigning to support people with MND and their families. You are so appreciated.
English
Sue Heal has been a dedicated @mndCampaigns Volunteer for years following the death of her husband, Jim.
Initially Sue influenced her council to adopt the MND Charter. Since then she's shared her experiences at @mndassoc events and locally campaigned on #ActToAdapt.
📣 #IWD2023
English
Wow! What a busy week! Great steering group hearing about the wonderful new hospice build @PBHospice. Then meeting with super local volunteers @mndassoc @MNDANorWave. Followed by research meeting to plan our next steps @UEAResearch @FactorMND @EneidaMioshi
English
Congratulations to @drcarolinebarry our @NorfolkMND Co-director. Great news!
Norfolk and Norwich University Hospitals@NNUH
We are delighted to announce our first ever Clinical Associate Professors to boost our research profile. Eight Consultants have been awarded the posts in translational and clinical medicine following funding from the UEA Medical School and NNUH. orlo.uk/NYzd7
English
Thank you for our invite to speak about #mnd at today's neuroscience study day @nnuh. Great to be back in the room with you all @mndassoc @emmajlarner
English
We are pleased to now be offering the use of telehealth to support communication with our patients with #MND across the Norfolk network. Thanks to our colleagues in Sheffield for sharing this great service development @LiamKnox92 @DrEstherHobson @profcjmcdermott
English
This is such wonderful news. Thank you to everyone who has worked tirelessly as part of the #United2EndMND campaign.
MND Campaigns@mndcampaigns
🥳Today the Prime Minister agreed to commit £50million to fund specific #MND research in response to our #United2EndMND campaign This is an incredible achievement, only made possible by the tireless efforts of our community & supporters. Thank you! 🎉👏
English
Thank you @MNDANorWave for a lovely branch meeting today. Great to be with you all again. Good to hear about the positive campaigning on behalf of people living with with #mnd. Plus research update on understanding needs of family carers from @EneidaMioshi
English
Norfolk MND Network retweetledi
Collaborative review between the #MND team @NNUH and @UEA_Health just out in @CO_Sup_Pal_Care discussing
Non-invasive ventilation support for people with #ALS & #MDT management
@drcarolinebarry @emmajlarner @UEAHSCP @NorfolkMND @mndassoc @mndresearch
pubmed.ncbi.nlm.nih.gov/34561341/
English
@hocking_sian @SallyHughesMNDA @mndassoc @ejmayberry Thank you for an excellent day so far, highlighting that good psychological care is such a vital part of looking after patients and families well.
English
Round #2 of the @mndassoc
Psychological Care Masterclass series commences in just over an hour.
Key messages:
1) Psychological care matters 2) Psychological care is everyone's business
@mndaeducation @ejmayberry
English
Care Centres and Care Networks funded by the MND Association improve the support and coordination of services for people living with #MND. Our work includes clinical research and everyone here @NorfolkMND is proud to be a part of a global effort that's #DrivingMNDResearch
English
@emmajlarner Thank you @emmajlarner. It is a privilege to be part of such a great team and I was grateful for the opportunity to reflect today on just how important that team has been over recent months @mndassoc @MNDANorWave @drcarolinebarry
English
@NorfolkMND So proud to hear and work with Helen Copsey who presented at the National Annual MNDA Care and Network Conference today talking about our experiences, innovations and learning during the pandemic in Norfolk.
English
@ratkorad @mndassoc @emmajlarner @ChelseaAnnRad @C_Crockford @c_mchutchison Well done Ratko. Knew you wouldn't let us down! Thank you for joining in the #icefoot92 challenge @mndassoc #TrustLen
English
Done & done with the @mndassoc #icefoot92 challenge. Cheers @NorfolkMND & @emmajlarner for thinking of me. Massively chilling experience & worth doing! I nominate @ChelseaAnnRad @C_Crockford @c_mchutchison for some super cold times! #TrustLen
English
Here is our #icefoot92 challenge in support of #TrustLen @mndassoc.
Text MNDLEN to 70085 to donate £10 to the MND Association. Thank you @emmajlarner. We nominate @ratkorad @EneidaMioshi @ElleBoycePhysio.
English
We are forever grateful for the wonderful support of the @MNDANorWave volunteering team. So crucial to supporting people living with #mnd and their families. Please consider joining this great team if you can @mndassoc
MNDANorwichWaveney@MNDANorWave
Looking for a valuable way to spend your spare time? We are recruiting volunteer Association Visitor's across Norfolk and Waveney to provide friendship and support to people living with #MND. For more info please visit our website: mndassociation.org/get-involved/v… ~MS
English
Yes, excited to share our experience of having a specialist respiratory physiotherapist as part of our MND team to improve symptom management and end of life care for our patients @emmajlarner @mndassoc @drcarolinebarry
Caroline Barry@drcarolinebarry
Looking forward to sharing the excellent work of @emmajlarner in helping our MND patients receive care in their own home and avoiding hospital admissions @NorfolkMND @mndassoc
English
Norfolk MND Network retweetledi
Over the next 5 years we want @GOVUK to invest £50 million into motor neurone disease (#MND) research.
You can help us. We're #United2EndMND.
Please add your name to our petition 👇 petition.parliament.uk/petitions/5645…
English
Norfolk MND Network retweetledi
🌟We’re very proud of our awesome band 5 Elle Boyce on the publication of her paper on the evidence of pain in ALS with recommendations for the tools that should be used be used to reduce the distressing impact of severe pain symptoms 🌟#ALS #phyisosinresearch
English
Care Centres and Care Networks funded by the MND Association improve the support and co-ordination of services for people living with #MND. Our work includes clinical research and everyone here at @NorfolkMND is proud to be part of a global effort that's #DrivingMNDResearch
English
Norfolk MND Network retweetledi
Learn how to voice bank your client (50 phrases=30 mins) and record up to 300 of their personal phrases in their natural voice at the same time same system. Join this free online session, bank your own voice & demo to patients Wed 24/March 10-12 email richard.cave@nhs.net pls RT
English