ORDIndia

2.5K posts

ORDIndia

@ORDIndia

National rare disease advocacy, 24/7 patients hotline, engage Hospitals, Physicians, Pharma/Biotech/Dx industry, Orphan drugs act for India, Global Alliances

India Katılım Aralık 2014

966 Takip Edilen1.5K Takipçiler

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ORDIndia@ORDIndia·25 Şub

Grateful for this powerful gesture of solidarity.A popular leader like you flagging off #racefor7 in Bengaluru sends hope to families fighting silent battles every day.Commitment to launch Karnataka State #RareDiseasePolicy brings renewed faith that change is truly on the horizon

Dinesh Gundu Rao/ದಿನೇಶ್ ಗುಂಡೂರಾವ್@dineshgrao

Deeply honored to flag off the ORDI Rare Disease Awareness Run in Bengaluru, a powerful testament to the extraordinary courage, resilience and indomitable spirit of individuals and families living with rare diseases, and a reaffirmation of our commitment to stand beside them with stronger care, early diagnosis, research and hope for a better tomorrow.

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ORDIndia@ORDIndia·2d

Understanding the latest advancements and real-life challenges in managing xeroderma pigmentosum is crucial for improving patient care, awareness, and long-term outcomes. #ORDI #RareInfoSeries #XerodermaPigmentosum #RareAwareness #RareCommunity #GeneticDisorders #RareSupport

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ORDIndia@ORDIndia·17 Mar

A Journey of 52 Weeks Comes to a Meaningful Milestone 💜 We are proud to celebrate the successful completion of the Rare Info Series – 52 Weeks by ORDI. #RareInfoSeries #ORDIIndia #RareDiseases #AwarenessMatters #HealthcareCommunity #MedicalAwareness #52WeeksJourney

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ORDIndia retweetledi

ICMR@ICMRDELHI·12 Mar

Why do rare diseases happen? 🧬 Dr. Monika Pahuja, Scientist, ICMR , explains: youtu.be/nh3zOKoQBCs #ICMR @DeptHealthRes @MoHFW_INDIA

YouTube

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1.9K

ORDIndia retweetledi

Dr. Prabhudev M Hiremath MD 🧠@Neuroptimist23·28 Şub

I was honored to attend and deliver my talk on rare disorders on Rare Disease Day at RV nursing college and Physiotherapy centre in #Bengaluru. It was a great interaction with the curious crowd. @ORDIndia #RareDiseaseDay #Medtwitter

Dr. Prabhudev M Hiremath MD 🧠 tweet media

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ORDIndia@ORDIndia·3 Mar

🌸✨ 𝗛𝗮𝗽𝗽𝘆 𝗛𝗼𝗹𝗶! ✨🌸 #HappyHoli #FestivalOfColors #CelebrateWithJoy #Holi2026 #CelebrateWithJoy #ColorfulVibes #SpreadLove #HoliCelebration #IndianFestival

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ORDIndia retweetledi

BioVoice News@BiovoiceNews·27 Şub

HEALTH: @novonordisk & #ORDI partnered for the 11th edition of #Racefor7 run in Bangalore. From #patients and caregivers to clinicians, the event brought together diverse voices in a collective push for stronger #healthcare. More details: biovoicenews.com/novo-nordisk-i…

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ORDIndia@ORDIndia·26 Şub

The Government of Karnataka is set to announce the State Rare Diseases Policy — a major step toward better care and access. Grateful to Dinesh Gundu Rao for his commitment to strengthening support for the rare disease community. #RareDiseases #Karnataka #ORDI

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ORDIndia@ORDIndia·21 Şub

Join us in making every step count at the Race for 7 – 11th Edition, organized by ORDI (Organization for Rare Diseases India). 🏃‍♂️🏃‍♀️ Run for Rare. Run for Lasting Care. 🌐 ordindia.in 📞 +91 8892 555 000 #RaceFor7 #RunForRare #ORDI #RareDiseaseAwareness

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ORDIndia@ORDIndia·15 Şub

Happy Maha Shivaratri #MahaShivaratri #HappyMahaShivaratri #HarHarMahadev #OmNamahShivaya #Mahadev #ShivShakti #Bholenath #ShivratriVibes #FestivalOfIndia #IndianFestivals #SpiritualVibes #Blessings

Filipino

ORDIndia@ORDIndia·12 Şub

We are proud to be supported by AstraZeneca, standing with us in our mission to advance care, awareness 🗓 Date: Sunday, 22.02.2026 ⏰ Time: 06:00 AM Register now: registration.racefor7.com 📞 +91 9343511011 📧 madhan@ordindia.in#RaceFor7 #RunForRare #ORDIndia

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ORDIndia@ORDIndia·12 Şub

We are proud to be supported by Laurus Labs, a company driven by “Chemistry for Better Living”, standing with us in our mission 🗓 Date: Sunday, 22.02.2026 ⏰ Time: 06:00 AM 🔗 Register now: registration.racefor7.com 📞 +91 9343511011 📧 madhan@ordindia.in #RaceFor7

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ORDIndia@ORDIndia·12 Şub

We are proud to have MedGenome as our Diagnostic Partner, supporting the cause with their commitment 🗓 Date: Sunday, 22.02.2026 ⏰ Time: 06:00 AM 🔗 Register now: registration.racefor7.com 📞 +91 9343511011 📧 madhan@ordindia.in #RaceFor7 #RunForRare #ORDIndia

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ORDIndia@ORDIndia·12 Şub

We are proud to have Novo Nordisk as our Gold Sponsor, supporting this meaningful cause and standing with the rare disease community. 🤝 🗓 Date: Sunday, 22.02.2026 ⏰ Time: 06:00 AM 🔗 Register now: registration.racefor7.com 📞 +91 9343511011 📧 madhan@ordindia.in #RaceFor7

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ORDIndia@ORDIndia·12 Şub

Race For 7 – Run for Rare, Run for Lasting Care! We are proud to have Sanofi as our Platinum Sponsor, standing strong in support of this meaningful cause. 🗓 Date: Sunday, 22.02.2026 ⏰ Time: 06:00 AM 🔗 Register now: registration.racefor7.com 📞 +91 9343511011 #RaceFor7

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ORDIndia@ORDIndia·27 Oca

ORDI proudly celebrates a moment of immense pride and inspiration. 🌟 We extend our heartfelt congratulations to Dr. Thangaraj on being conferred the Padma Shri. #PadmaShri #DrThangaraj #ORDI #HumanGenetics #RareDiseases #PrideOfIndia #ExcellenceInScience

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ORDIndia@ORDIndia·27 Oca

A moment of pride and celebration for the healthcare and rare disease community. 🌟 ORDI extends its heartiest congratulations to Dr. Suresh Hanagwadi #PadmaShri #DrSureshHanagwadi #ORDI #PrideOfIndia #HealthcareHeroes #ExcellenceInService #Inspiration

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ORDIndia@ORDIndia·27 Oca

Run with purpose. Run for impact. 🏃‍♂️🏃‍♀️ ORDI presents the 11th Edition of Race for 7 — Run for Rare. Run for Lasting Care. 📍 St. Joseph Indian High School Ground, Opp. UB City, Bengaluru 📅 22nd February 2026 ⏰ 6:00 AM 🔗 Register now: registration.racefor7.com #RaceFor7

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ORDIndia@ORDIndia·26 Oca

𝐇𝐚𝐩𝐩𝐲 𝐑𝐞𝐩𝐮𝐛𝐥𝐢𝐜 𝐃𝐚𝐲 𝟐𝟎𝟐𝟔 #HappyRepublicDay #RepublicDay2026 #ProudIndian #IndiaCelebrates #UnityInDiversity #JaiHind #VandeMataram

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ORDIndia@ORDIndia·14 Oca

Happy Makara Sankranti! ✨ #MakaraSankranti #HappySankranti #SankrantiVibes #HarvestFestival #SunGodBlessings #NewBeginnings #ProsperityAndHappiness #FestiveMood #IndianFestivals #Pongal #Uttarayan #Lohri

Indonesia

Keşfet

@DeptHealthRes @MoHFW_INDIA @novonordisk @elonmusk @BarackObama @taylorswift13 @cristiano @BillGates