Thalassaemia and Sickle Cell Australia

Have a read of TASCA's article on our ambassador Peter Bol featured in this month's edition of #GlenEira news. gleneira.smedia.com.au/news/shared/Sh… #Awareness #Ambassador #Thalassaemia #SickleCell

I’m thrilled to announced that my #autobiography called #ironboy is now available to buy on #Amazon. Although the #paperback version will be available in the next 72 hours to order, if you have a #kindle, you can purchase now! #donateblood mybook.to/ibab

Congratulations to @OfficialTASCA #ambassador Peter Bol on reaching the men's 800m finals in the #Olympics, beating Australian and Oceania records along the way! 🇦🇺 We are so proud of you and will be cheering you on this Wednesday night! #Thalassaemia #SickleCell

This World Hepatitis Day, we support the global call to eliminate hepatitis especially for those with genetic haemoglobin disorders. Australia can’t wait to eliminate hepatitis! #WorldHepatitisDay #HepCantWait

Blood supplies across Queensland are at frighteningly low levels. If we don't roll up sleeves urgently, the consequences could be dire. For more: 9Soci.al/wBpM30rz89F @SallyGyte #9News

Thank you to @georgecrozier for bringing attention to mental health needs and support for thalassaemia & sickle cell patients and their families. TASCA eagerly awaits a response from Minister @JennyMikakos on this very important issue that has been ignored for a long time.

Looking for something to do over the Easter weekend? Why not hunt for the elusive TASCA Easter Egg on our website for your chance to win 1 of 5 Easter Care Packages prizes from Thalassaemia & Sickle Cell… instagram.com/p/B-wCQQyDXF9/…

Billy is strolling down Lonsdale Street! Come grab a photo with him at the #antipodesfestival! #PhotoOp #lifeblood #lonsdalestreet @ Lonsdale Street, Melbourne instagram.com/p/B9LHZ9SH6tm/…

We have some 10 free bottles to give away right now at the #antipodesfestival on Lonsdale St in Melbourne! Come take a photo with us and share this post to get your free TASCA bottle! #festival #freebie #giveaway… instagram.com/p/B9K1DrWH8a5/…

RSVP for our Family Fun Day on March 15 by heading to tasca.org.au now! There will be a free karaoke machine on the day for you to belt out your favourite classics! #events #family #community @ Thalassaemia &… instagram.com/p/B8-nEVgAsj7/…

🇩🇪🇩🇪Germany, here we come! Counting down the days until #TIF's Capacity Building Workshop for #Patients' Organizations & Individuals with #thalassaemia this October 11-13, in Hamburg! Read the programme here thalassaemia.org.cy/event/capacity… and stay tuned for more details to follow...

What exactly is β-#thalassaemia? What are its symptoms and in which countries is it most common? A comprehensive infographic by @Celgene highlights key aspects of this serious disease all of us should know about! celgene.com/value/what-is-…

CAF’s “Guide to Living with Thalassemia” is a useful resource that may enable patients to live their strongest and healthiest lives. This Guide can be downloaded at: tinyurl.com/CAFGuide

Only 9% of the population have O Negative blood, but because it’s so versatile it accounts for 17 per cent of the blood ordered by hospitals. If you are O Negative, someone in your family could be too, talk to your relatives and encourage them to donate.

Lennie celebrated his 275th donation last week at our Robina donor centre. He had to stop donating due to his age, but our team called him to give the good news of a change to our eligibility criteria and he was back in a flash! Very deserving of a cookies and cream cupcake 😊

Novartis today announced today the #FDA accepted the company's Biologics License Application (BLA) and has granted Priority Review for its investigational #SickleCell medicine Crizanlizumab! Read more: thalassaemia.org.cy/news/fda-accel…

It's #DiabetesWeek. To find out more about the chronic condition, read our guide created with the help of @DiabetesAus: ow.ly/6KeO50uSihW

Self-care is an important aspect to improve your mental wellbeing. If you’re feeling overwhelmed, try @Qldhealthnews's self-care bingo card or visit the Head to Health website for additional support headtohealth.gov.au #MentalHealthMonday twitter.com/qldhealthnews/…

Routine hearing👂👂assessment is not currently on the list of monitoring tests for #SickleCell Disease (SCD). However findings from a recent study, suggest that hearing loss is much more common in children with SCD than in their healthy population. journals.lww.com/thehearingjour…