Effie Parks
10.7K posts

Effie Parks
@OnceUponAGene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Seattle, WA Katılım Kasım 2018
3.9K Takip Edilen6.5K Takipçiler

I have been going to this Thai food place for 12 years now. It is good, but thats not why I go there.
The reason I go there religiously is because the little Thai lady owner. She is an absolute treat, always happy, always smiling, always wants to know how my jobs are going and wants to see pictures.
She gives me a Christmas card every year with 1 free meal, she has ordered special peppers to make my extra hot fried rice even hotter 😂
Just being around her for the 3 mins I'm in there each week is like a reset, it changes my entire day because her happiness is so contagious.
Even tho I tip well, I still get the better end of the bargain, because I really cant put a price on how much her aura heals my soul when I am in need of it. 🫶

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@holisticgrenade Read her book.
I took myself off bc immediately.
share.google/luAMLxV5pmbBE1…
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@TheMaliaMarks @NRO @abigailandwords @waDCYF So much staff - so much union.
It's crazy.
And the task to even get a family member through their training program to watch their own family member?
Impossible.
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I spent a whole day visiting the Seattle daycares featured in my @NRO article with @abigailandwords about inexplicable spending by @waDCYF .
Most did not answer when I knocked. If there were children inside, thick curtains blocked any natural sunlight for them. Neighbors were unaware of daycares a one-minute walk away. Confused residents said that they had no knowledge of a daycare at their address, to which Washington State paid nearly $500,000 last year.
WA State Attorney General Nick Brown said that he would focus on prosecuting journalism like this instead of investigating welfare fraud. The State Auditor stated that DCYF records are so bad that millions of dollars over the past four years have been un-auditable. This violates the terms of their federal funding.
This video is only half of the footage we captured. Stay tuned.
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Effie Parks retweetledi

Ex-Blockbuster employee here. And I mean it with 100% sincerity that the world would be a better place if we shut down all streaming services, re-opened Blockbusters and video stores worldwide, and shoved people back out into the world to find and enjoy their entertainment.
Washingtons ghost@washghost1
That’s a good use of free will
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Effie Parks retweetledi

@alt_w_v_g I don't know, Ethan. I think you can be turned.
And it's therapeutic. Which you pay too much for.
Imagine it being $3?!
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@OnceUponAGene No offense but that's the last thing I want to do
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Just set my alarm for tomorrow
5:47am
Not 5:45
Not 5:50
5:47
Because 5:45 feels too early and 5:50 feels too late and the three minutes in between are the only thing I control anymore
My wife sets hers for 6:30
Same responsibilities
Different start time
She'll wake up refreshed
I'll wake up mid-dream about something I forgot to do that I didn't actually forget to do
Every night I check the front door
It's locked
I check it again
Still locked
I check it a third time because the first two didn't count for some reason
Then I check my phone one last time
Nothing new from work
847 new DMs
One guy sent me his entire divorce filing and asked for my "thoughts"
Another asked me to shadow his office
Someone sent a screenshot of their CAPTCHA and said "thought of you"
Twelve people asked if I'm real
I'm not sure anymore
My wife rolled over and asked what I'm thinking about
I said "nothing"
That was a lie
I was thinking about how to position my opening statement for Wednesday's HR meeting
Whether Costco still has the cargo shorts with six pockets
And why bread, milk, and eggs cost $47.63 when I'm only buying three things
I didn't say any of that
Because the last time I shared what I was actually thinking at 10pm she made me book another therapy session
So I said nothing
Every man who has ever said "nothing" was thinking about something he knew better than to say out loud
Goodnight
Sent from my iPhone
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@HerCuriousBooks @alt_w_v_g That is satisfying. I spent my entire childhood pouring the grain into my mom's machine 💓
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@alt_w_v_g @OnceUponAGene Same, but I bought a manual grain mill anyways because...
*gestures vaguely in all directions*
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@KeruboSk No fine haired women can shower at night.
Know they are not the night shower people.
Unless they pull their hair up every day and don't 'do' it.
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@ellymelly My oldest and I (states away) write letters back and forth regularly.
At her request... 🥹
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The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to PBGENE‑DMD, an in vivo gene editing candidate for the treatment of Duchenne muscular dystrophy (DMD)!
This designation is designed to facilitate the development and expedite the review of drugs that treat serious conditions and fill an unmet medical need.
“Fast Track designation is an important regulatory milestone for PBGENE-DMD and reflects the significant unmet need in DMD,” said Michael Amoroso, Chief Executive Officer of Precision BioSciences. “We believe this designation, together with our recent IND clearance, supports PBGENE-DMD’s continued momentum towards clinical investigation in boys living with DMD.”
Press Release: investor.precisionbiosciences.com/news-releases/…
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@alt_w_v_g It’s not just in their annual report. It’s a tax write off / donation from them that offsets gains.
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Went to the grocery store this morning
Bread, milk, eggs
$47.63
The screen asked if I'd like to round up to support a children's hospital
I pressed no
The cashier looked at me
The woman behind me looked at me
My wife looked at the ceiling
Again
This company made $14 billion last year
They can round up
Went to get gas after
The pump asked if I'd like to add $1 to support veterans
I support veterans
I pressed no
A $200 billion oil company asking me to fund their charity while I'm paying $3.89 a gallon
That's not philanthropy
That's outsourcing
Drove through for lunch
Taco Bell
The screen said "round up for education?"
A fast food company asking me to fund scholarships while paying their employees $11 an hour
I pressed no
My wife said "you know you're arguing with screens today"
She was right
But the screens started it
Went to the pharmacy
Picked up a prescription
$340 after insurance
The screen asked if I'd like to donate $1 to help families in need
I just paid $340 for a medication that costs $4 to manufacture
And now you want a dollar
I pressed no
The pharmacist said "it's just a dollar"
I said "it's never just a dollar"
She didn't respond
Got home
My wife said "you said no to a children's hospital, veterans, education, and families in need today"
I said "no. I said no to four corporations who want me to fund their goodwill so they can put it in their annual report"
She was quiet
Then she said "you're not wrong"
I said "I know"
She said "but you're still going to look like a monster"
I said "I'd rather look like a monster than quietly fund a billion-dollar company's PR strategy at the register"
She didn't disagree
But she didn't look at me either
Plz fix. Thx.
Sent from my iPhone
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@alt_w_v_g I will never again give companies money who then decide how it's allocated - it usually goes to people's salary. BUT - I did hear a beautiful first hand story from one of those taco bell employees who got their degree from those donations. Where is the @tacobell girl?
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@made_in_cosmos I would say this has something to do with growing up with loving parents, plenty of siblings, No social media, kick the can, camping, homemade food and staring at the stars.
Having some adversity - maybe a lot - but having a foundation.
Not autism.
Not neuro anything.
Life.
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