Effie Parks

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Effie Parks

Effie Parks

@OnceUponAGene

Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1 🦓

Seattle, WA Katılım Kasım 2018
3.9K Takip Edilen6.5K Takipçiler
Final Cut Tile 🇺🇸
Final Cut Tile 🇺🇸@FinalCutTile·
I have been going to this Thai food place for 12 years now. It is good, but thats not why I go there. The reason I go there religiously is because the little Thai lady owner. She is an absolute treat, always happy, always smiling, always wants to know how my jobs are going and wants to see pictures. She gives me a Christmas card every year with 1 free meal, she has ordered special peppers to make my extra hot fried rice even hotter 😂 Just being around her for the 3 mins I'm in there each week is like a reset, it changes my entire day because her happiness is so contagious. Even tho I tip well, I still get the better end of the bargain, because I really cant put a price on how much her aura heals my soul when I am in need of it. 🫶
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Riley Check
Riley Check@holisticgrenade·
So the birth control pill was given out like candy to every female millennial at age 15 and now IVF is a 50 billion dollar industry. Must be a coincidence.
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Dom Lucre | Breaker of Narratives
🔥🚨DEVELOPING: The world first virtual reality train has opened in Aussie aged care facility, residents can be seen enjoying an afternoon tea while touring 10 countries from the comfort of their seat.
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Effie Parks
Effie Parks@OnceUponAGene·
None of our kids are getting the help they have been approved for. The list of providers and phone numbers: I've never had one answer. Or the number is disconnected. Or they don't take new clients. It's all bullshit. The actual most vulnerable in our state are getting screwed.
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Malia Marks
Malia Marks@TheMaliaMarks·
I spent a whole day visiting the Seattle daycares featured in my @NRO article with @abigailandwords about inexplicable spending by @waDCYF . Most did not answer when I knocked. If there were children inside, thick curtains blocked any natural sunlight for them. Neighbors were unaware of daycares a one-minute walk away. Confused residents said that they had no knowledge of a daycare at their address, to which Washington State paid nearly $500,000 last year. WA State Attorney General Nick Brown said that he would focus on prosecuting journalism like this instead of investigating welfare fraud. The State Auditor stated that DCYF records are so bad that millions of dollars over the past four years have been un-auditable. This violates the terms of their federal funding. This video is only half of the footage we captured. Stay tuned.
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Effie Parks
Effie Parks@OnceUponAGene·
Homemade cheez-its: Sourdough starter, cheddar, flour & seasoning. 🧡
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Rob (Ro2R)
Rob (Ro2R)@Ruleof2Review·
Ex-Blockbuster employee here. And I mean it with 100% sincerity that the world would be a better place if we shut down all streaming services, re-opened Blockbusters and video stores worldwide, and shoved people back out into the world to find and enjoy their entertainment.
Washingtons ghost@washghost1

That’s a good use of free will

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Unhinged
Unhinged@unhingedfeed·
Dude just casually lifting his world
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Effie Parks
Effie Parks@OnceUponAGene·
@alt_w_v_g I don't know, Ethan. I think you can be turned. And it's therapeutic. Which you pay too much for. Imagine it being $3?!
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Ethan Brooks
Ethan Brooks@alt_w_v_g·
Just set my alarm for tomorrow 5:47am Not 5:45 Not 5:50 5:47 Because 5:45 feels too early and 5:50 feels too late and the three minutes in between are the only thing I control anymore My wife sets hers for 6:30 Same responsibilities Different start time She'll wake up refreshed I'll wake up mid-dream about something I forgot to do that I didn't actually forget to do Every night I check the front door It's locked I check it again Still locked I check it a third time because the first two didn't count for some reason Then I check my phone one last time Nothing new from work 847 new DMs One guy sent me his entire divorce filing and asked for my "thoughts" Another asked me to shadow his office Someone sent a screenshot of their CAPTCHA and said "thought of you" Twelve people asked if I'm real I'm not sure anymore My wife rolled over and asked what I'm thinking about I said "nothing" That was a lie I was thinking about how to position my opening statement for Wednesday's HR meeting Whether Costco still has the cargo shorts with six pockets And why bread, milk, and eggs cost $47.63 when I'm only buying three things I didn't say any of that Because the last time I shared what I was actually thinking at 10pm she made me book another therapy session So I said nothing Every man who has ever said "nothing" was thinking about something he knew better than to say out loud Goodnight Sent from my iPhone
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Effie Parks
Effie Parks@OnceUponAGene·
@KeruboSk No fine haired women can shower at night. Know they are not the night shower people. Unless they pull their hair up every day and don't 'do' it.
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Sophia ❣️
Sophia ❣️@KeruboSk·
Apparently there are people who shower at night instead of the morning. I genuinely want to understand this. Night shower people… explain yourselves
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TheKnowsNose
TheKnowsNose@cyranosgazette·
@ellymelly My oldest and I (states away) write letters back and forth regularly. At her request... 🥹
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Alexandra Marshall
Alexandra Marshall@ellymelly·
Curious. When was the last time you picked up a real pen and wrote something on a piece of paper???
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Effie Parks
Effie Parks@OnceUponAGene·
The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to PBGENE‑DMD, an in vivo gene editing candidate for the treatment of Duchenne muscular dystrophy (DMD)! This designation is designed to facilitate the development and expedite the review of drugs that treat serious conditions and fill an unmet medical need. “Fast Track designation is an important regulatory milestone for PBGENE-DMD and reflects the significant unmet need in DMD,” said Michael Amoroso, Chief Executive Officer of Precision BioSciences. “We believe this designation, together with our recent IND clearance, supports PBGENE-DMD’s continued momentum towards clinical investigation in boys living with DMD.” Press Release: investor.precisionbiosciences.com/news-releases/…
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VonDoom ☕️
VonDoom ☕️@CryptoVonDoom·
@alt_w_v_g It’s not just in their annual report. It’s a tax write off / donation from them that offsets gains.
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Ethan Brooks
Ethan Brooks@alt_w_v_g·
Went to the grocery store this morning Bread, milk, eggs $47.63 The screen asked if I'd like to round up to support a children's hospital I pressed no The cashier looked at me The woman behind me looked at me My wife looked at the ceiling Again This company made $14 billion last year They can round up Went to get gas after The pump asked if I'd like to add $1 to support veterans I support veterans I pressed no A $200 billion oil company asking me to fund their charity while I'm paying $3.89 a gallon That's not philanthropy That's outsourcing Drove through for lunch Taco Bell The screen said "round up for education?" A fast food company asking me to fund scholarships while paying their employees $11 an hour I pressed no My wife said "you know you're arguing with screens today" She was right But the screens started it Went to the pharmacy Picked up a prescription $340 after insurance The screen asked if I'd like to donate $1 to help families in need I just paid $340 for a medication that costs $4 to manufacture And now you want a dollar I pressed no The pharmacist said "it's just a dollar" I said "it's never just a dollar" She didn't respond Got home My wife said "you said no to a children's hospital, veterans, education, and families in need today" I said "no. I said no to four corporations who want me to fund their goodwill so they can put it in their annual report" She was quiet Then she said "you're not wrong" I said "I know" She said "but you're still going to look like a monster" I said "I'd rather look like a monster than quietly fund a billion-dollar company's PR strategy at the register" She didn't disagree But she didn't look at me either Plz fix. Thx. Sent from my iPhone
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Effie Parks
Effie Parks@OnceUponAGene·
@alt_w_v_g I will never again give companies money who then decide how it's allocated - it usually goes to people's salary. BUT - I did hear a beautiful first hand story from one of those taco bell employees who got their degree from those donations. Where is the @tacobell girl?
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Effie Parks
Effie Parks@OnceUponAGene·
@made_in_cosmos I would say this has something to do with growing up with loving parents, plenty of siblings, No social media, kick the can, camping, homemade food and staring at the stars. Having some adversity - maybe a lot - but having a foundation. Not autism. Not neuro anything. Life.
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Maria Made in Cosmos ✨
Maria Made in Cosmos ✨@made_in_cosmos·
is there something like the opposite of autism where you're exceptionally skilled at reading people and love being around them, and instead of perceiving the world through categories you see it all as divinely connected and full of signs everywhere
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👉M-Û-R-Č-H👈
👉M-Û-R-Č-H👈@TheEXECUTlONER_·
This momma filmed her baby boy every month for his first year. He turns 1 tomorrow. Tell me those aren’t the sweetest and most loving brothers ever. ❤️ The middle brother wanting to hold him so bad. 🥹 They grow up so fast right before our eyes, don’t they? 😭
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