Open Medicine Foundation
9.6K posts

Open Medicine Foundation
@OpenMedF
OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
California, USA Katılım Aralık 2012
1K Takip Edilen14.5K Takipçiler

One day left to take the CTN Lite survey.
We know energy is precious. If you have a few minutes to share your perspective, it goes straight to the researchers working on what comes next.
Closes tomorrow: forms.gle/1RAx657KFx9Hoa…

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May 12 marks International ME/CFS Awareness Day. This year we asked our community to share the questions they live with because of #MECFS. Here are some of their responses.
Visit omf.ngo/maymomentum/ to join us in raising awareness.
#MECFSis #MECFSAwareness
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What are your research priorities? Over 1k patients and caregivers have already shared theirs. The CTN Lite survey closes May 15.
Help shape research for ME/CFS. Caregivers can complete on behalf of patients & answers save if you need to take breaks.
forms.gle/1RAx657KFx9Hoa…
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Open Medicine Foundation retweetledi

May is #MECFSAwareness Month and as national nonprofits in the US we are dedicated to promoting education & understanding of this devastating disease. Whether you're an individual or org, feel free to join us in adding the tag #UnitedForMe to all your ME-related posts this month.

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Open Medicine Foundation retweetledi

From Anna Redshaw:
I'm getting there! Just a few more links to update for Blue Sunday 2026 and then everything will be ready.
the-slow-lane.com/donation-pages
#BlueSunday2026 #TeaPartyForME2026
@MEResearchUK @OpenMedF @Invest_in_ME @SmileForMEUK @MEGroupAust

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Open Medicine Foundation retweetledi

May is ME/CFS Awareness Month 💙
Alongside @OpenMedF, @MEActNet, & @PlzSolveCFS, we’re promoting education & understanding.
Join us: use #UnitedForME on ME-related posts this month.
#MECFSAwareness #MECFSAwarenessMonth

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4/4 OMF’s Ronald G. Tompkins Harvard ME/CFS Collaboration specializes in cardiopulmonary-based research in ME/CFS, studying factors like hypoxia, impaired blood flow, and more and how they impact symptoms of the disease. Read more here: omf.ngo/ronald-tompkin….
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Imagine the worst flu you've ever had and it never goes away."
That's how Linda Tannenbaum of @OpenMedF describes ME/CFS — a chronic illness with no blood test, few treatments, and a shortage of trained doctors.
Read the full story: ow.ly/WSWs50YQR9f

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