Osteosarcoma Now

Scientists at Johns Hopkins found that nerves carrying pain signals may also help osteosarcoma tumours grow and form blood vessels. Read our latest blog to find out more 👉 osteosarcomanow.org/new-study-link… #Osteosarcoma #CancerResearch

Could mifamurtide help reduce relapse risk in osteosarcoma? New results from Italy & Spain suggest benefits for some higher-risk patients. Read our latest blog lnkd.in/ePMmHrHB #Osteosarcoma #BoneCancer #CancerResearch #Immunotherapy #ClinicalTrials #PatientAdvocacy

The Osteosarcoma Now Trial Explorer gives patients, families & clinicians the latest info on global #osteosarcoma clinical trials. Explore new trials, filter by location & trial type, and feel empowered in decision-making. 👉osteosarcomanow.org/clinical-trial… #Sarcoma #clinicaltrials

The Osteosarcoma Now Clinical Trial Explorer (ONTEX) summarises each clinical trial to give a clear picture of its aims and what it involves. To find out more and search for the latest clinical trials visit osteosarcomanow.org/clinical-trial… #ClinicalTrials #osteosarcoma #childhoodcancer

Big changes are coming to Osteosarcoma Now❤️ ONTEX will be back online and updated this week. We are sorry for any inconvenience caused. Feel free to drop us a message with any questions. We love hearing from you 🤗⭐️😀

We are looking forward to joining the @OSInstitute and the @FDAOncology at the Advancing Osteosarcoma Drug Development workshop on 10 October 2025. Visit bit.ly/4kLiRLw to book your space for this hybrid event #osteosarcoma #CancerTreatment #research

It is with great sadness that we announce the passing of our founder, Dimitris. This is a major loss to the communities we support as we request voluntary liquidation. Find out more about Dimitris and our future by visiting lght.ly/d5nak9m @BardoFoundation

Sending best wishes for a Happy Easter from all at the Myrovlytis Trust. Our offices will be closed on Friday 18 and Monday 21 April 2025. You can find out more about Osteosarcoma Now by visiting our website lght.ly/530fbd8

Sarcoma UK is launching a new research call for projects dedicated to improving outcomes for adolescents and young adults (AYA) with sarcoma (15-39 years old), with grants of £100,000 and £200,000 available. More info can be found at bit.ly/3QSvzM6 #osteosarcoma

Treatment for progressing bone sarcomas can be challenging. A recent trial looked at combining two treatments. These were an immunotherapy treatment and a TKI Inhibitor treatment, called nivolumab and sunitinib. We discuss the trial in our new blog: lght.ly/ji8olnm

📝 @Sarcoma_UK is running its National Sarcoma Survey to gather vital insights from those affected by #sarcoma. Your experiences can help shape support services, research and policy change. Survey closes on 31 March. Share your voice today: lght.ly/8feh6ki

No parent should ever have to explain a cancer diagnosis to their child. We are so proud to work with @BardoFoundation to fund vital medical research for osteosarcoma. You can support us by making a donation at myrovlytistrust.org/donate-2/ Thank you.

OsteoBites is a weekly webinar and podcast where Osteosarcoma Experts share their research, hope, and innovation. This is run by the amazing @AgentsMIB The sessions are led and paneled by OsteoWarriors. Find out more by visiting mibagents.org/education/oste… #osteosarcoma

Today is International Women's Day. We want to recognise all of the women who have impacted those with rare diseases including patients, researchers, clinicians, and staff. Thank you for being outstanding in your field. It is an honour to be part of your journey #WomensDay

View the research grants we co-fund with the @BardoFoundation to help better understand osteosarcoma and find a cure for this rare cancer- osteosarcomanow.org/osteosarcoma-r… Help us continue to fund vital research by donating at bit.ly/41dv7he #cancerresearchmatters #osteosarcoma

Happy #RareDiseaseDay! 💚 Today, we want to raise awareness around #osteosarcoma - a type of cancer that arises in the bone & affects 3.4 people per million every year worldwide! Please help us make noise today. Check out our toolkit & share it online: lght.ly/525879k

📖 Did you know that you can share your story with the #RareDiseaseDay team? 💚 We encourage patients to share their story to help raise awareness of #osteosarcoma. View other peoples stories and share your own: lght.ly/dfla6e0

For #RareDiseaseDay, Bionews is bringing together voices from across the rare disease community for a series of powerful conversations with Dr. Al Freedman, one of the world’s leading therapists specialising in rare diseases. Find out more here: lght.ly/mlk6gnj

Join @RareDiseases in celebrating the Faces of Rare. Their Faces of Rare wall features people who live with rare conditions. If you live with #osteosarcoma, you can also join the wall to share your story. Find out more 👇 lght.ly/llea6gk

NORD Rare Disease Center of Excellence at UNC North Carolina Children’s Hospital are hosting a hybrid symposium on 28 February titled "Beyond the Horizon: The Changing Landscape of Rare Disease Treatments." Register at lght.ly/gk9m2g3 @rarediseaseday @RareDiseases