PDSA ITP SUPPORT
3.3K posts

PDSA ITP SUPPORT
@PDSA_ITP
Platelet Disorder Support Association ~ the premier source for information, treatments, and support for people with ITP (immune thrombocytopenia).
Brecksville, OH Katılım Nisan 2011
49 Takip Edilen1.8K Takipçiler

Lupus Awareness Month is a reminder that many in our ITP community carry more than one diagnosis. Whether lupus came first or presented at a later date, we see the challenges you navigate and the resilience you show every day. #ITP #Lupus #SLE #LupusAwarenessMonth



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Honoring every kind of motherhood in our ITP community today. Whether you’re celebrating, remembering, or navigating a tender path, you’re part of a community that holds you close today and every day. #HappyMothersDay #ITPcommunity

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Primary Immune Deficiency Week reminds us that patients with a primary immunodeficiency not only struggle to fight infections, their immune system may mistakenly target their own cells like platelets which can lead to ITP. Learn more at pdsa.org/other-causes-l…. #ITP #WorldPIWeek




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🌧️Spring weather can change fast—so can life with ITP. Be ready to transition when you need to with a PDSA raincoat!
Visit The Platelet Store at pdsa.org for ITP accessories and awareness items that support you every season. #ITPAwareness #ThePlateletStore



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More than a conference! Join us in Salt Lake City, UT July 24-26th for PDSA's Annual ITP Conference featuring world-renowned ITP experts, a Teen Track, Kids Kamp, and much more! Visit pdsa.org/conferences to register today! #ITP #ITPconference


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Your experience matters. Your voice matters. And someone out there needs to hear your story.
✨ Share your ITP journey for a chance to be featured! Visit pdsa.org for more information and to submit your story! #ITP #ITPWarriorWednesday #ITPWarriorStory

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Pediatric ITP treatment is evolving and collaboration is leading the way. Join Barbara and Dr. Kristin Shimano on how ICON is reshaping research, improving care, and focusing on quality of life for families.
Listen on Apple, Spotify and pdsa.org/s2e31
#PediatricITP

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🍀Just like a clover, every ITP journey is unique. Every story unfolds differently, yet each one reflects remarkable resilience. Leave a 🍀 in the comments if you’re cheering on others in the ITP community — or giving yourself a little extra encouragement today! #ITP

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Expand your ITP expertise with education designed for clinical practice. This no‑cost CME reviews chronic ITP’s impact, current + emerging treatments, and practical tools for real‑world care. HCPs can earn 1.0 CME/CE credit at pdsa.org/itp-cme.

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ITP is one of many platelet‑related bleeding disorders. While most cases aren’t life‑threatening, severe untreated cases can lead to very serious complications. Awareness leads to earlier recognition and better support for those living with these often invisible conditions. #ITP




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FACT: We can’t see the full picture of ITP without patient data. Your data helps strengthen research and drives progress. Enroll in the PDSA ITP Natural History Study Registry. #ITP #ITPresearch

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Tomorrow is Rare Disease Day. As we prepare to recognize the 300 million people living with rare conditions worldwide, we invite you to hear Michael's empowering journey with ITP and Evan's Syndrome now on Apple, Spotify and pdsa.org/podcast. #ITP #RareDiseaseDay

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Rare Disease Day is coming up this Saturday. To get ready, check out our podcast episode with the CEO of NORD, where we talk about the importance of visibility and support for the rare disease community: pdsa.org/s1e12 #ITP #ITPpodcast #RareDiseaseDay


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Send a valentine to your #ITPwarrior! These little notes are a simple way to remind someone they’re seen, supported, and never facing ITP alone. #ITP #ITPcommunity




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No two ITP stories look the same. Daisy reminds us that the impact of a diagnosis can follow you through different stages of life, and that giving yourself grace is an essential part of your journey. Read Daisy's full story at pdsa.org/patient-warrio…. #ITPWarriorStory #ITP

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New year, new ways to support you!
Our new website is LIVE! 🎉Redesigned to make it easier to find resources, connect, and get the support you need. Explore what’s new 👉 pdsa.org
#ITP #ImmuneThrombocytopenia #Hematology #PatientSupport




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A recent episode of THE PITT spotlights a young patient’s unexpected ITP diagnosis — reflecting what many families face in real life. 🔗 Read the full story at pdsa.org/itp-news/2827-…

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Save the date: 2026 ITP Conference in Salt Lake City!
Whether you’re newly diagnosed, returning for another year, or ready to get more involved, start imagining the conversations, friendships, and empowerment waiting for you there! #ITPConference2026 #SaveTheDate

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