PedPallCarePA

739 posts

PedPallCarePA

PedPallCarePA

@PPCC_PA

Pediatric Palliative Care Coalition provides resources for medical professionals, caregivers, and families working together for medically fragile children in PA

Pennsylvania, USA Katılım Haziran 2017
166 Takip Edilen286 Takipçiler
PedPallCarePA
PedPallCarePA@PPCC_PA·
PPC Webinar on 3/17/26 - The Calm and the Storm: Hypothermic Dysautonomia Through a Palliative Care Lens. Dr. Vallely will review the pathophysiology of "cold" storming in children with SNI & discuss dynamic goals assessment. ppcwebinars.org #pedpc #pedspc #hapc #hpm
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PedPallCarePA
PedPallCarePA@PPCC_PA·
Register for the PPC Webinar on 2/19/26! Ped. palliative providers care for patients and families facing stressful and emotionally overwhelming situations. Explore communicating with compassion while cushioning the well-being of providers. pppwebinars.org
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PedPallCarePA
PedPallCarePA@PPCC_PA·
Join us January 22nd for our first PPC Webinar of 2026! This presentation will utilize an impactful clinical case to demonstrate the importance of ongoing assessment of a family’s understanding and goals of care. Register: ppcwebinars.org #pedpc #pedspc #hapc #hpm
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PedPallCarePA
PedPallCarePA@PPCC_PA·
As we say goodbye to 2025, we are deeply grateful for our community. We could not do this work without you! Wishing you a New Year filled with peace, hope and meaningful moments with those you hold dear!
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PedPallCarePA
PedPallCarePA@PPCC_PA·
We hope you'll join us for our Firefly Chat on Dec 10th at noon EST: "Bridging Language Gaps: Effective Support for Non-English Speaking Families" During this Firefly Chat, we will be focused on language boundaries to ideal patient care and more! ppcc-pa.org/firefly-chat
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PedPallCarePA
PedPallCarePA@PPCC_PA·
Today is National Day of Giving! PPCC has provided education, resources and support for over a decade. Please consider donating to help light the way for children with medical complexity, their caregivers and their care providers. ow.ly/QLWh50Qc26y
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PedPallCarePA
PedPallCarePA@PPCC_PA·
Registration for the 2026 PPC Webinar Series Opens December 1! This series is designed to raise the visibility of pediatric palliative care to help families & caregivers & to build clinicians’ competencies & confidence in providing care to children. ow.ly/7NcO50XpoYY
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PedPallCarePA
PedPallCarePA@PPCC_PA·
Register for today's PPC Webinar - Using Photo-Narratives to Enhance Humanistic Care. In this webinar, presenters will explore what photo-narratives are and how they have been used in serious illness care for children and families. mailchi.mp/ppcc-pa/regist… .
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PedPallCarePA
PedPallCarePA@PPCC_PA·
October 10 Webinar: Navigating Periviable Birth Explore survival, outcomes, and NICU care for infants at the edge of viability. Learn about ethical challenges, emerging treatments, and the role of palliative care in supporting families and care teams. ppcwebinars.org/deeper-dive
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PedPallCarePA
PedPallCarePA@PPCC_PA·
Join us for a 3-part Deeper Dive into Ethics in Perinatal and Neonatal Care with presenters, Dr. Brian Carter, Dr. Christopher Collura and Dr. Robert Macauley. This program will take place over 3 weeks: October 3rd, 10th and 17th, 12pm ET. tfaforms.com/5164780
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PedPallCarePA
PedPallCarePA@PPCC_PA·
PPCC is excited to announce the launch of the LANTERN Initiative, providing peer support to Pennsylvania families of children with medical complexity and intellectual/developmental disabilities as part of the new Resource Matching Program. ppcc-pa.org/resource-match…
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PedPallCarePA
PedPallCarePA@PPCC_PA·
There is still time to register for the September 2025 PPC Webinar - Living in the Gray: A Case Series of "Everything But" for the Chronically, Critically Ill Child and Their Families. More information and registration at ppcwebinars.org
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PedPallCarePA
PedPallCarePA@PPCC_PA·
Betsy Hawley was recently featured on the Remembering a Life podcast.  They talked about how to help ensure families have the resources & support they need while caring for a child at end of life and honoring their life in meaningful ways. ow.ly/wJB250WMqiL
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PedPallCarePA
PedPallCarePA@PPCC_PA·
Our next PPCC Firefly Chat, Managing Pediatric Complex Care, will highlight the importance of communication, collaboration and strategies to support patients and families. Firefly Chats are FREE, but registration is required. Register at ow.ly/E9OY50WAby7
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PedPallCarePA
PedPallCarePA@PPCC_PA·
This summer, your kindness can shine bright. ✨ Join our Firefly Campaign to bring hope, knowledge and resources to families facing the unimaginable. 💛 Be a light in the darkness. 💡 Donate today and help us Light the Way. ppcc-pa.org/donate
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PedPallCarePA
PedPallCarePA@PPCC_PA·
Register for the August PPC Webinar - Deprescribing in Children: Is It Even Possible? This webinar will discuss possible strategies for discontinuing non-essential medications as children enter hospice & suggestions for open communication. Learn more at mailchi.mp/ppcc-pa/regist…
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