ParticipantPIA

121 posts

ParticipantPIA banner
ParticipantPIA

ParticipantPIA

@ParticipantPIA

The @ISTAART Partnering with Research Participants PIA supports best practices to integrate the lived experience of people with dementia.

Katılım Kasım 2022
33 Takip Edilen124 Takipçiler
ParticipantPIA retweetledi
Helen Bundy Medsger
Helen Bundy Medsger@HelenMedsger·
Our future doctors, nurses, Physios, and researchers come from great establishments like University College Cork (UCC), and it was an honour to talk to our future, lecturers, professors, and world leading researchers. @ParticipantPIA
Helen Bundy Medsger tweet media
English
0
1
0
125
ParticipantPIA retweetledi
Sarah Walter
Sarah Walter@SarahW_research·
So thrilled to hear that researchers are now sharing individual research results to #ADRC participants. Progress! Listening to your participants matters and will change the way you do science. @ParticipantPIA
English
0
2
6
304
ParticipantPIA retweetledi
PPI Ignite Network Ireland
PPI Ignite Network Ireland@PPI_Ignite_Net·
📢Ignite Insight seminar series. Made by PhD scholars, for PhD scholars. Online and in-person events throughout October. Learn how PPI can help your research and your career, hearing from those interested in PPI in all walks of life. To find out more: tinyurl.com/mtz5cmkc
PPI Ignite Network Ireland tweet media
English
1
21
36
6.5K
ParticipantPIA retweetledi
Sarah Walter
Sarah Walter@SarahW_research·
Barker 2000: Technology may permit us to develop the means to prolong life, reshaping our bodies to eliminate disease. The risk we face, perhaps, is that the human experience that marvels at everything from the sunset and warm rain… (cont) #research @ParticipantPIA
English
1
1
0
149
ParticipantPIA retweetledi
Helen Bundy Medsger
Helen Bundy Medsger@HelenMedsger·
“If I don’t who will.” That’s what PPI is all about. Those with lived experience putting themselves out there, even when it’s hard. Research needs to listen. @ParticipantPIA @Aida_Suarez_
Irish Dementia Working Group (The ASI)@IrishDementiaWG

Our brave and amazing advocate Frank Jennings and his wife Angela spoke today on @TodaywithClaire When asked to be interviewed he replied 'I have to, if I don't who will?'The world is a better place thanks to advocates like Frank #DementiaSupports #TODAYCB #Dementia2023

English
0
2
10
601
ParticipantPIA retweetledi
Sarah Walter
Sarah Walter@SarahW_research·
Let’s create inclusive research by building Partnership with our participants in research! Webinar hosted by Latin American and Caribbean consortium ⁦@DrRAshworth⁩ ⁦@ParticipantPIA⁩ @latiname
Sarah Walter tweet media
English
1
1
5
364
ParticipantPIA retweetledi
Sarah Walter
Sarah Walter@SarahW_research·
A close collaborator and research participant’s view of the new blood test for Alzheimer’s by Quest. Results that indicate risk for dementia must show evidence of accuracy with peer reviewed data and provide counseling and support! #endalz ⁦@ParticipantPIA⁩
Sarah Walter tweet media
English
0
2
4
333
ParticipantPIA retweetledi
Alexander Clough
Alexander Clough@_AlexClough·
Sharing our work co-designing resources for and with people with dementia and carers to help with medication management when in hospital and at discharge. Lots of fantastic insights and chats at #AAIC23 on more ways to partner with people with dementia and carers in research.
Alexander Clough tweet media
English
2
5
30
1.9K
ParticipantPIA retweetledi
Sarah Walter
Sarah Walter@SarahW_research·
Come to poster 580 to hear what participants want to happen to their individual research results (YUP - they want them back!!) My dear friend and ACTC advisor, Cynthia Huling Hummel is coauthor and here for #AAIC23 #makescienceinclusive ⁦@ParticipantPIA⁩
Sarah Walter tweet media
English
0
1
10
367
ParticipantPIA retweetledi
Helen Bundy Medsger
Helen Bundy Medsger@HelenMedsger·
How do you build trust while involving PPI in your dementia research? Combine researchers, clinicians, those LWD and their carers/supporters through Walking the Talk for Dementia... fresh perspectives touched by the insights and experience of fellow walkers... @GBHI_Fellows
ParticipantPIA@ParticipantPIA

English
0
1
8
210
ParticipantPIA retweetledi
Helen Bundy Medsger
Helen Bundy Medsger@HelenMedsger·
It was energizing to interact with young researchers discussing trust building in the development of PPI. Important questions and answers. 100% hope to carry it forward into practice.
ParticipantPIA@ParticipantPIA

@HelenMedsger & @DrKaramacoska facilitating our @ParticipantPIA workshop on how to partner with research participants. Gave important insights such as conducting focus groups to identify research priorities, define questions, and design projects!

English
0
1
5
338

Keşfet

@Aida_Suarez_ @GBHI_Fellows @PPI_Ignite_Net @SMaciulskyte @latiname @elonmusk @BarackObama @taylorswift13