Patient Worthy

At Patient Worthy, we aim to publish the realities of #RareDisease. Your voice is integral to achieving that goal. Would you like to contribute and share your story? You can submit here - patientworthy.com/contribute/ - OR let us know if you'd like to work with a writer.

Breaking Through: UniQure's Huntington's Gene Therapy Pursues UK Approval After US Setback bit.ly/4f1KjWo Read now at PatientWorthy.com #PatientWorthy #UniQure #Huntington'sDisease

Merck and Exelixis Team Up to Transform Treatment for High-Risk Colorectal Cancer Patients bit.ly/4dBbqVQ Read now at PatientWorthy.com #PatientWorthy #ColorectalCancer #Keytruda

Breakthrough Recognition: Atossa's (Z)-Endoxifen Earns FDA Rare Pediatric Disease Designation for McCune-Albright Syndrome bit.ly/3ROjdrT Read now at PatientWorthy.com #PatientWorthy #(Z)-Endoxifen #McCune-AlbrightSyndrome

Expanding Hope for Rare Skin Disease: CHOP Becomes Sixth Treatment Center for Revolutionary ZEVASKYN Gene Therapy bit.ly/3R8jHJr Read now at PatientWorthy.com #PatientWorthy #CHOP #EB #ZEVASKYN #GeneTherapy #RDEB

When Breakthrough Drugs Need a New Home: Inside the Arvinas-Rigel Partnership bit.ly/4nw4r59 Read now at PatientWorthy.com #PatientWorthy

Breaking Through Resistance: New Cancer Combo Shows Promise as Biotech Pipeline Advances bit.ly/4wuaMC4 Read now at PatientWorthy.com #PatientWorthy

The Quiet Revolution: When Hospitals Stop Being Your Second Home bit.ly/4u0TOtx Read now at PatientWorthy.com #PatientWorthy #SLE #SystemicLupusErythematosus

Solving Cell Therapy's Dirty Secret: How One Partnership Could Unlock Consistent Treatments bit.ly/3Rqa0pw Read now at PatientWorthy.com #PatientWorthy #EB #EpidermolysisBullosa #INmune Bio #Anthony Nolan

We're honored to share the story of Wojciech Biesaga, a patient from Poland who is fighting against severe Crohn's disease, as well as several other diagnoses and complications. Read here: bit.ly/4u7IJGS #PatientWorthy #ShareYourStory #Crohns #CrohnsDisease

Pre-Surgery Immunotherapy Rewrites Colorectal Cancer Survival: Zero Recurrence at Three Years bit.ly/4ddxmGm Read now at PatientWorhty.com #PatientWorthy #ColorectalCancer

Breaking Ground: New Targeted Lupus Treatment Enters Critical Phase 3 Testing bit.ly/4u41E5I Read now at PatientWorthy.com #PatientWorthy #Lupus #ClinicalTrials #Enpatoran

Ireland Embraces Hope: Revolutionary EB Gel Treatment Now Available Through HSE bit.ly/3P47iWc Read now at PatientWorthy.com #PatientWorthy #EB #EpidermolysisBullosa #Filsuvez

“I encountered a significant challenge when I was diagnosed with male breast cancer." If you are interested in sharing your healthcare journey, click the link: bit.ly/4dV7gru #malebreastcancer #shareyourstory #patientworthy #whatnext

Labcorp Brings Breakthrough Diagnostic to Identify Platinum-Resistant Ovarian Cancer Patients bit.ly/4dalCW8. Read now at PatientWorthy.com #PatientWorthy #Lapbcorp #OvarianCancer

FDA Priority Review Accelerates Path for IMAAVY as First Treatment for Warm Autoimmune Hemolytic Anemia bit.ly/4tNiRzS. Read now at PatientWorthy.com #PatientWorthy #IMAAVY #WarmAutoimmuneHemolyticAnemia #wAIHA

AstraZeneca's Tozorakimab Shows Promise as First-in-Class COPD Breakthrough bit.ly/4eMwECe Read now at PatientWorthy.com #PatientWorthy #AstaZeneca #COPD #ChronicObstructivePulmonaryDisease #Tozorakimab

Merck's Idvynso: A New Single-Tablet Breakthrough in HIV Treatment bit.ly/4ewiDJ1 Read now at PatientWorthy.com #PatientWorthy #HIV #Merck #HIVTreatment

Maddie and the Drug that Turned Her Life Around bit.ly/3QwphF6 Read now at PatientWorthy.com #PatientWorthy #RareDisease #WebMD

Game-Changing Eye Drop Therapy Now Available to Canadian Cystinosis Patients bit.ly/49b706s Read now at PatientWorthy.com #PatientWorthy #Cystinosis #Cysklar

Targeting Cancer's Hidden Killer: New Therapy Takes Aim at Muscle-Wasting Syndrome bit.ly/3QoQJoc Read now at PatientWorthy.com #PatientWorthy #Cancer #CancerCachexia