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We've added more information about our new book to our website, including answers to some frequently asked questions
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physiosforme.com/our-book
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Physios For ME
3.3K posts
Physios For ME
@PhysiosForME
A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Katılım Haziran 2019
555 Takip Edilen6.7K Takipçiler
Physios For ME retweetledi
Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme @MEAssociation
@LC_Physio @LongCovidKids
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This is where in-patient physiotherapists could really be advocates and lead in promoting safe care for people with severe ME.
Setting up suitable environments, guidelines on safe handling - it's all in our skillset if we have the knowledge
@thecsp
Henry Anderson@macanders
My relative w severeME is having a predictably awful time in hospital. She is not believed about her own illness. Family advocate but we can only be there during visiting hours.
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Progress report on our vagus nerve stimulation trial led by @ClagueNjc36 and @karenphysiocouk
ME Association@MEAssociation
Vagus nerve stimulation trial: update A feasibility trial looking at “transcutaneous auricular vagus nerve stimulation” (taVNS) in people with ME/CFS has now completed data collection. Read the full progress report on the blog: meassociation.org.uk/g1i9 #MECFS #pwME #Research #VagusNerve #MyalgicEncephalomyelitis
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@macanders @TanteRos Hope they did take note. Do encourage them to get in touch if they need further guidance. Should be taking note of a person's previous abilities rather than attempting a blanket approach
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@TanteRos @PhysiosForME Me too! The physio and bone doctor read the ME printouts and seemed to listen - they have a set way of doing things tho.
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Severe ME relative in hospital with broken femur after fall. Physios keep trying to make her walk even tho she couldn’t walk *before* accident. Desperately trying to explain to them
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Physios For ME retweetledi
Two weeks and we've nearly hit 100 respondents. It would be great to reach this target. Please share widely @PhysiosForME @MEAssociation @LC_Physio @MindandBodyHBOT @mhyperbarics
Physios For ME@PhysiosForME
New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy. Please share widely. For all the info and survey link, head on over to physiosforme.com/o2survey
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Physios For ME retweetledi
This AI generated infographic below summarises our @PhysiosForME feasibility study of heart-rate monitoring to support pacing, which found the protocol was feasible, well tolerated and well received, with high levels of continued use after the study ended. 4/5
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Physios For ME retweetledi
Today I had the pleasure of speaking with @randkmegroup about pacing in ME/CFS, with a particular focus on how wearables might support pacing and symptom management.
In preparing the talk, I looked at the emerging research on wearable-supported pacing including.. 1/5
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Well done @MichelleBull4 for being involved in this important letter. Great to collaborate with @s4me_info
Tom Kindlon@TomKindlon
Open Letter to British Association for Clinicians in ME/CFS (BACME) in Response to the Document ‘Guide to Therapy’, 2025 s4me.info/threads/an-ope… Letter authors Jonathan Edwards (professor of connective tissue) Michelle Bull (physiotherapist) Joan Crawford (psychologist) #MEcfs
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Physios For ME retweetledi
** TRIGGER WARNING: Very upsetting content **
Yesterday, The Times reported on Savannah Victora-May, 23, who has Severe ME and been in hospital for 11 months.
meassociation.org.uk/op4u
#pwME #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis
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Physios For ME retweetledi
After one week - 76 survey responses and nearly 15 people to interview. Thank you all for taking part and using your valuable energy. Please share. Plenty of time - open until end of March. If needed it can be paused and continued at another time. Thank you @PhysiosForME
Physios For ME@PhysiosForME
New Survey now out: experiences of people with ME and Long Covid with hyperbaric oxygen / oxygen therapy. Please share widely. For all the info and survey link, head on over to physiosforme.com/o2survey
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The e-learning wasn't made mandatory and this is a major issue.
@thecsp how do we raise the profile of this essential learning to physiotherapists?
Adam@ABrokenBattery
FOI response shows uptake of ME/CFS e-learning from the government delivery plan: • Intro: 371 • Community care: 101 • Severe ME: <50 From a workforce of ~188k doctors & ~423k nurses This is the problem when training is “promoted” and not mandatory. skyview.social/?url=https%3A%…
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Physios For ME retweetledi
Absolutely agree. We are trying so hard to change this. I teach the physio students @ liverpooluni and @NorthumbriaUni and soon @sheffhallamuni and @CaledonianNews trying to reach as many universities as possible. @PhysiosForME @thecsp @thecspstudents
Tom Kindlon@TomKindlon
From "Physical Therapy (= physiotherapy) Must Catch Up:Teaching #MECFS is No Longer Optional" batemanhornecenter.org/physical_thera… Related Clinical Management of ME/CFS as a Curriculum Thread to Meet Accreditation Standards in Physical Therapy Education nsuworks.nova.edu/ijahsp/vol24/i… #PwME
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Physios For ME retweetledi
3/n
UK Gov stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share/promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.
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Physios For ME retweetledi
Physios For ME retweetledi
Hospital Support Pack for people with ME/CFS:
This free downloadable pack was designed to help you explain the care you need when going into hospital and features references to the NICE Guideline on ME/CFS.
It was jointly produced by the 25% Group, AfME, BRAME, and the ME Association in May 2024.
Read more about the pack and download it here: meassociation.org.uk/2mzx
#pwME #MyalgicE #SevereME #Hospital #Support
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And we have published a book aimed at Physios who wants more in-depth understanding of this condition and management options/challenges
physiosforme.com/our-book
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We have created a quick one-sheet guide on how to adapt your practice to work safely with people with ME
physiosforme.com/onesheetprinto…
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These are the stories we hear and why we formed to educate, advocate and research.
Physios MUST have a baseline understanding of how to work safely with people who have ME or we risk causing significant harm.
@thecsp
Carole Bruce@CaroleBruce17
@TomKindlon @BatemanHorne In the 90s a physio got me out of bed and made me walk down the road. She was very pleased with herself. 24 hrs later I couldn’t move or speak, breathing was an effort. The GP came, nothing to be done but I never saw that physio again. I very rarely spoke or got out of bed again
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