Physios For ME

We've added more information about our new book to our website, including answers to some frequently asked questions 👇👇 physiosforme.com/our-book

@sunsopeningband @thecsp 😁🤗

@PhysiosForME @thecsp This is so good, friends. Congratulations on getting this work out into the world through this venue. I know it was challenging and you did it. 🙌🏻🙌🏻🙌🏻💯

This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!) csp.org.uk/frontline/arti…

Publishing an article like this has been one of our goals since we first formed as a group, so we are delighted to have an article published in a publication with such reach, and that the @thecsp have taken this matter with the seriousness it deserves. physiosforme.com/post/me-awaren…

The article is called: "Do no harm: supporting people with ME/CFS. How can physiotherapists provide effective therapies while ensuring patients with this debilitating condition feel safe and supported? "

1. Training of #hcps People with #ME/CFS and #longcovid I need your thoughts and ideas please. I would like to develop simulation training for all #hcps. We now use a lot of simulation which means that we can simulate severe #ME and #longcovid in a hospital setting.

@lammas_leaves @seanstidston @subversivepsych Not sure what REF stands for? There are ways physiotherapists can assist that have nothing to do with exercise, but not sure if this is what's referenced.

@seanstidston @subversivepsych Is there any chance it means the types of interventions @PhysiosForME are involved in? Eg supportive, not based on deconditioning hypotheses, based on true M. E. specific pacing techniques?

Hot off the press : Current status and future perspectives on the mechanistic and pathophysiological understanding of #longCOVID | Communications Medicine nature.com/articles/s4385…

@NobleRingleader @SabineHermisson We can't provide individual advice as depends on the person. In general, long rolled towels, V-pillows etc can provide support if tolerated. There are "sleep systems" for people needing 24hour postural support. Link for example not endorsement. smirthwaite.co.uk/product-catego…

@SabineHermisson @PhysiosForME I will gladly translate: Do you have suggestions how to help someone extremely severe change position in bed? A normal range of pillows isn’t supportive enough.

Tipps? Mila liegt seit 5.5 Jahren nur auf dem Rücken. Sie kann sich auf die Seite drehen, ist aber zu schwach, um länger als einen kurzen Moment auf der Seite zu liegen. Hat jemand eine Tipp, wie man sie abstützen kann, ohne sie zu überanstrengen? #MECFS

Q for #pwME who have given birth (while diagnosed with ME). Which kind of birth (vaginal birth or C-section) would be most tolerable for pwME? (As tolerable as these things can be!!)

Social Prescriber just sent me a list of activities. They really don’t understand: - adapted cycling - ME in-person support group (2hr sessions) - living well sessions (2.5hrs a week) Have replied to explain I have about 30 mins usable energy per day, mostly for food prep.

Natalie Hilliard @Hilliard_Nat on Physiotherapy for ME chroniclivingtherapy.com/natalie-hillia… Image is from the AMMES April 2026 newsletter #MEcfs #PwME @PhysiosForME @ChronicLiving1

One last post to highlight this survey. If you have #ME/CFS or #Longcovid and have tried hyperbaric oxygen please complete this survey. All experiences important. You can stop and complete at a different time allowing you to pace. Thanks @PhysiosForME physiosforme.com/post/new-surve…

Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme @MEAssociation @LC_Physio @LongCovidKids

This is where in-patient physiotherapists could really be advocates and lead in promoting safe care for people with severe ME. Setting up suitable environments, guidelines on safe handling - it's all in our skillset if we have the knowledge @thecsp

Progress report on our vagus nerve stimulation trial led by @ClagueNjc36 and @karenphysiocouk

@macanders @TanteRos Hope they did take note. Do encourage them to get in touch if they need further guidance. Should be taking note of a person's previous abilities rather than attempting a blanket approach

@TanteRos @PhysiosForME Me too! The physio and bone doctor read the ME printouts and seemed to listen - they have a set way of doing things tho.

Severe ME relative in hospital with broken femur after fall. Physios keep trying to make her walk even tho she couldn’t walk *before* accident. Desperately trying to explain to them

Quick catch up today to plan a new project 🙌😁

Two weeks and we've nearly hit 100 respondents. It would be great to reach this target. Please share widely @PhysiosForME @MEAssociation @LC_Physio @MindandBodyHBOT @mhyperbarics

This AI generated infographic below summarises our @PhysiosForME feasibility study of heart-rate monitoring to support pacing, which found the protocol was feasible, well tolerated and well received, with high levels of continued use after the study ended. 4/5